on June 1st, Enlighten’s “Tackling epilepsy” campaign was launched with total support from the
(Hong Kong Rugby Football Union). Led by former Lions player and Enlighten’s patron and co-founder, Tom Smith, the campaign aspires to highlight what people with epilepsy are capable of achieving.
For the youth in Hong Kong, coming to terms with any disorder can be daunting. It is all the more difficult for youth with epilepsy, due to the strong social stigma and the many myths and misconceptions that surround epilepsy. Many people with epilepsy are not encouraged to play any sport for fear of having a seizure and most of the time, their teammates are uncomfortable too. Sports is an integral part of every child and youth’s life providing opportunities for social inclusion, exercise, teamwork and fun and for this reason, the campaign strives to help those with epilepsy realise their own potential, whether it is on the sports field or in the classroom.
Just as our patron, Tom Smith made a name for himself in international rugby despite having epilepsy, the campaign hopes to motivate all the affected children and youth in Hong Kong with well-controlled seizures to continue playing sports.
The ongoing campaign will partner with outdoor activity providers and youth organizations in the city to open a dialogue with the public about seizure management, the importance of encouragement towards those with epilepsy, and the characteristics of the condition itself.
With the help of Enlighten’s supporters, donors and volunteers the campaign can achieve its aim to encourage children and youth with the condition to play sports and, just as importantly, establish an environment where they are welcomed and encouraged to do so.
「超越界限 齊助腦癇」計劃是我們最近期推出的活動。主要是教育青少年多認識腦癇症及鼓勵患有腦癇症的孩子去參與運動。在六月一日㰖球戰的前夕，這計劃得到英國蘇格蘭隊及香港欖球總會的支持，由前英倫雄獅隊隊球員和啟迪會創辦人-Tom Smith帶領下正式推行。這計劃是為了說明腦癇症患者也有能力獲得成就。香港青少年或會對病患感到害怕。但對於患有腦癇症的青少年，面對社會上的歧視及其他對腦癇症的誤解所承受的壓力更大。不少人反對腦癇症患者參與運動，因害怕在運動期間發作和令隊友造成困擾。但運動是一個為小孩及青少年學習被社會接納，發揮團隊精神和玩耍的平台。有見及此，這計劃希望能令受影響的小孩及青少年在運動場上或生活上都能發展他們的潛能。 我們的創辦人，Tom Smith，雖患有腦癇症，亦能成為國際㰖球員，以此希望可為更多在腦癇症得到控制下而想參與運動的小孩帶來龧光。計劃會與更多運動供應商及青年機構會合作為大眾舉辦一些關於認識腦癇症、處理腦癇症發作、及鼓勵大眾對腦癇症患者加以支持的講座或活動。在啟迪會支持者，善長以及義工的協助下，活動都達到了其目的。不但鼓勵腦癇症青年參與運動，更重要的是令他們明白社會對他們的接納及包容。
As part of Enlighten’s commitment to providing support and care to those
affected by epilepsy and to remove prejudice through community education, Enlighten introduced the first and only Helping Other People with Epilepsy (HOPE) Campaign in Hong Kong last year to impact a positive change in the community.The first phase is to identify 60 HOPE Heroes, who have epilepsy. We are excited that 13 new heroes have joined the campaign taking the total to 30. The HOPE heroes have all taken a stand to fight the stigma, share their experiences with others around them and become epilepsy ambassadors.
Primary School Training
The “Sunflower Schools Primary Education Programme” is Enlighten’s flagship training programme for the primary school children in Hong Kong. With Kadoorie Foundation’s support, we have been trying to raise epilepsy awareness among the young for the past three years.
In the past quarter, we have conducted 25 sessions training over 608 students and 316 teachers and staff from primary schools across Hong Kong.
It is also heartening to note that 7 schools agreed to be identified as “epilepsy friendly schools” making a commitment to help us in our aim to build epilepsy awareness.