Is this email not displaying correctly?
View it in your browser
EURORDIS eNews, 22 May 2014
Like EURORDIS eNews: Over 750 stakeholders gather at the 7th European Conference on Rare Diseases & Orphan Products on Facebook share on Twitter
The Voice of Rare Disease Patients in Europe
ECRD 2014 Berlin: Putting the rare disease puzzle into place
The 7th European Conference on Rare Diseases and Orphan Products ECRD 2014 Berlin on 8-10 May brought together over 750 stakeholders – patient representatives, health professionals, scientists, industry, policy makers, regulators, payers – converging from over 40 countries in the lively city of Berlin. The biennial ECRD is the unique platform to debate and steer rare disease policy across all rare diseases, across all European countries and beyond, and across all stakeholders.
Read more
ECRD 2014 Berlin stakeholders

Online Communities for Rare Disease Patients
Take a look at the poster and presentations from the RareConnect workshop at the EURORDIS Membership Meeting 2014 
Read about living with a rare disease and the services available
RehabCare's respite care services give people with disabilities a holiday while families take a break from full-time caring
Compelling videos from the rare disease community on EURORDIS TV
Rare Disease Day 2014 in Ireland
Avril Daly (EURORDIS, GRDO and Fighting Blindness) participates in an All-Ireland Rare Disease Day event in Belfast with patient representative Katie Murphy from Cystic Fibrosis Ireland

Towards comprehensive National Plans and Strategies for Rare Diseases across Europe
EUROPLAN Conferences foster national plans for rare diseases. Next conference: United Kingdom, 24 June 2014, London
Upcoming international rare disease events
EUROMIT 2014: International Meeting on Mitochondrial Pathology. Patient Meeting on 18-19 June, Tampere, Finland 
International rare disease events
News and events from our members
ASRIM, the Swiss French & Italian Myopathy Association, Benefit Concert 25 May 2014, Bulle, Switzerland

Follow us
EURORDIS twitter EURORDIS facebook EURORDIS flicker EURORDIS youtube
This publication (or activity) has been funded with support from the European Union's Health Programme. This material only reflects the views of the author, and funders cannot be held responsible for any use which may be made of the information contained herein.
afmtelethon Health Programme of the European Union
Sent to | Why did I get this?
You signed up at to subscribe to the EURORDIS newsletter
unsubscribe from this list | update subscription preferences
Sign up to receive this message in EN | FR | DE | ES | IT | PT | RU
Copyright © 2014 EURORDIS, All rights reserved. EURORDIS 96 Rue Didot Paris 75014, FRANCE