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EURORDIS eNews, 22 May 2014
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The Voice of Rare Disease Patients in Europe
ECRD 2014 Berlin: Putting the rare disease puzzle into place
The 7th European Conference on Rare Diseases and Orphan Products ECRD 2014 Berlin on 8-10 May brought together over 750 stakeholders – patient representatives, health professionals, scientists, industry, policy makers, regulators, payers – converging from over 40 countries in the lively city of Berlin. The biennial ECRD is the unique platform to debate and steer rare disease policy across all rare diseases, across all European countries and beyond, and across all stakeholders.
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ECRD 2014 Berlin stakeholders

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RARECONNECT
Online Communities for Rare Disease Patients
Take a look at the poster and presentations from the RareConnect workshop at the EURORDIS Membership Meeting 2014 
RareConnect
PATIENTS, ORGANISATIONS, SERVICES
Read about living with a rare disease and the services available
RehabCare's respite care services give people with disabilities a holiday while families take a break from full-time caring
EURORDIS TV
Compelling videos from the rare disease community on EURORDIS TV
Rare Disease Day 2014 in Ireland
Avril Daly (EURORDIS, GRDO and Fighting Blindness) participates in an All-Ireland Rare Disease Day event in Belfast with patient representative Katie Murphy from Cystic Fibrosis Ireland

NATIONAL PLANS
Towards comprehensive National Plans and Strategies for Rare Diseases across Europe
EUROPLAN Conferences foster national plans for rare diseases. Next conference: United Kingdom, 24 June 2014, London
EVENTS
Upcoming international rare disease events
EUROMIT 2014: International Meeting on Mitochondrial Pathology. Patient Meeting on 18-19 June, Tampere, Finland 
International rare disease events
MEMBERS' CORNER
News and events from our members
ASRIM, the Swiss French & Italian Myopathy Association, Benefit Concert 25 May 2014, Bulle, Switzerland
MEMBERS' CORNER

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This publication (or activity) has been funded with support from the European Union's Health Programme. This material only reflects the views of the author, and funders cannot be held responsible for any use which may be made of the information contained herein.
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