welcome to the latest Pain Toolkit Newsletter. Find out all our updates and news here.

Dear Pain & Self Care Toolkit supporter

In this Pain & Self Care Toolkit e-newsletter October 2011
  1. Pete’s update
  2. Pain Toolkit workshops for patients
  3. Pain Toolkit workshop for health care professionals
  4. Pain Toolkit website – new links, educational and useful educational resources to buy
  5. Pain Summit UK 2011
  6. Ordering Pain & Self Care Toolkits
  7. Self Care week 2011
  8. Talking Health
  9. Change Pain
  10. Long Term Conditions 2012
  11. The LTC QIPP work stream is driving forward the changes needed to improve patient care
  12. Lifepsychol®QoL - Monitoring and Tracking Quality of Life in One Complete System
  13. Societal impact Pain – update
  14. Pain Toolkit in Australia
  15. Pain & Self Care Toolkit in other countries
  16. Pain Toolkit on Twitter
  17. Pain Toolkit DVD
  18. Pain Toolkit 2012 Calendar

Pete's Update

So, what’s been happening this summer with the Pain & Self Care Toolkit?  The simple answer is lots.  Here is a summary
  • Lots of interest in the Pain & Self Care Toolkit workshops
  • Over 48,000 visitors to the Pain Toolkit site
  • Interest from European organisations regarding the Toolkits
  • Over 80 followers on Twitter
  • UK’s first Summit and yes the Pain Toolkit Team will be there
  • Toolkit team invited to self-care NHS & SHA initiatives 
It’s been an interesting few months for the Pain & Self Care Toolkit concept.  Loads of interest from organisations here in the UK, Europe, Australia, New Zealand, Canada and not forgetting Ireland.
With all the changes that are happening in the NHS and other places, these are challenging times for many people who are working in health and social care.  Where to invest and develop services?  Self Care and self management is becoming high on everyone’s agenda, especially when you read information like this regarding cost: -  Long term conditions represent 50% of GP appointments, 64% of outpatient attendances and 70% of inpatient bed days (Source: 2009 General Lifestyle Survey)
I was at a meeting recently where Sir John Oldham said the NHS is suffering from ‘Pilot itus’.  I have to agree and we should just get on a ‘do’.  Do what we do best and deliver services where patients become more confident to self manage their health condition.  
And lastly…
Time moves fast these days to keep up to date with what we are doing, follow us on Twitter #paintoolkit2 or keep an eye on the website
Kind regards

Pain & Self Care Toolkit plus

I’m in the process of writing a longer version of the Pain & Self Care Toolkit which I hope to finish in the spring of next year.  Let me know if you would like copy at pete.moore@paintoolkit.org It will expand on all the tools in the Toolkit and again an informative and easy read.

Pain & Self Care Toolkit workshops for Patients 

There has been a lot of interest from both health care professionals and people with pain and long-term health conditions about the Pain & Self Care Toolkits workshops.  All are saying they are needed and a great resource.  
We have developed half-day educational Pain & Self Care Toolkit Workshop for people with persistent pain and long-term health conditions. The workshops would excellent for patients to begin their journey to becoming active self-managers and could also work alongside other local self-management initiatives. 
They could be also ideal for patients who are;
  • High intensity users of health care
  • Waiting to see a health care specialist or for another medical intervention.
  • Waiting to attend pain management programme
  • Have completed a pain or other self-management programme and need a reminder
  • Just come out of hospital and need some self-management skills
For more information, please contact me via the site www.paintoolkit.org/contact.

Pain Toolkit workshops for HCP’s 2012

We are pleased to announce we are running a Pain Toolkit workshop for health care professionals in partnership with the Andrew Sims Centre, Leeds on 7th February 2012.  For more information and to book, please go to http://www.andrewsimscentre.nhs.uk/events/269/pain-toolkit-workshop---self-management-approaches-for-long-term-pain/  

Pain Toolkit website

Over the next month the Pain Toolkit website will be updated and refreshed and extra new links will be included, so keep an eye on the new exciting links.  Here are a couple of new ones;
Clips from You Tube.  Health care professionals and patients speak about pain and self-care management of pain and long-term health conditions.  
Understanding Pain and what to do about it in less than five minutes
Long-term health condtions by Sir John Oldham http://www.youtube.com/watch?feature=player_embedded&v=RlQGr47eFZU
Resources at Pain info
Information about buying pain and self-management books and other supportive materials for health care professionals to support people with pain and long-term health conditions.  Please go to www.paininfo.org.uk 

Pain Summit 2011

The first national Pain Summit will take place on Tuesday, 22 November 2011 at Central Hall, Westminster.  Featuring contributions from medical specialists, individuals living with pain, and key figures from within the health services, the Summit will highlight the issues raised by pain and current pain services in order to determine how these might be improved.
After an initial plenary session underlining these issues, delegates will take part in one of three specialised participative workshops, which will form the basis for a post-Summit report. This report will be circulated to policymakers and healthcare professionals early next year in order to disseminate and promote the actions agreed upon at the Summit. 
We are keen to ensure that the voices of those living with pain will be heard throughout the development of the Summit. For that reason, if anyone living with pain would like to share their experiences with us, in the form of a short written testimonial to be published on our website, we would be most eager to hear from you.
For more information, and to keep up-to-date with progress on the Summit, please visit our website (www.painsummit.org.uk), email us (info@painsummit.org.uk), or follow us on Twitter (@PainSummit).

Ordering Pain & Self Care Toolkits

You can order hard copies of the Pain toolkits on www.orderline.dh.gov.uk or by telephoning 0300 123 100. Quote 403298/Pain Toolkit. The minimum order is 50. If you are experiencing any difficulties in ordering the Pain toolkit online, please give the order-line a call, they will take your details and arrange delivery. If you have any problems ordering the quantity you require, please contact the Long Term Conditions Team atlongtermconditions@dh.gsi.gov.uk and they will be happy to help you.
Please note: there are no more printed Self Care Toolkits. I have arranged with Charlie the Printer to print off the Self Care Toolkits at a discount rate. Please contact me for an order form at www.paintoolkit.org/contact 

Self-Care Week 2011

Following the success of previous years, please note that Self Care Week 2011 will take place from 14-20 November 2011. This is an opportunity for you to raise awareness of support available locally to help people to take more control of their health and wellbeing, particularly those people who live with a long term condition. Please make a note in your diary and pass this on to anyone else with an interest. In the lead up to Self Care Week, tools and resources, including a web button that links to the NHS Choices self-care pages, as well as posters, and free leaflets, will be available from the DH website and orderline. 
Read more about self care and Self Care Week resources on the DH’s long term conditions web pages (http://www.dh.gov.uk/en/Healthcare/Longtermconditions/index.htm)
  1. Find out more about the Self Care Forum (http://www.selfcarecampaign.org)
  2. Keep an eye on the DH orderline for patient leaflets (http://www.orderline.dh.gov.uk/ecom_dh/public/home.jsf)
Further details will follow in due course, but you can keep up to date via the DH website (www.dh.gov.uk/longtermconditions) or if you have any specific queries, please contact Angela Hawley in the DH long term conditions team - longtermconditions.@dh.gsi.gov.uk 

Talking Health Network

Talking Health (www.talkinghealth.org) is a Network of independent freelance consultants, organisations and individuals supportive of the development of values based, lay led self-management and empowerment training for people living with long-term conditions, and the health and social care professionals that support them.
Self care and self management of long-term conditions is high on everyone’s agenda.  Talking Health has the expertise to train NHS Health Trainers or leaders in local communities to deliver self-management to those who need it. For more information contact info@talkinghealth.org

Change Pain

Raising awareness among healthcare professionals about the needs of patients suffering from chronic pain is one of the objectives of the CHANGE PAIN initiative which is wholly funded by Grünenthal and endorsed by the European Federation of IASP® Chapters (EFIC) - the European association for pain. This educational initiative was started in 2009 by Grünenthal, a research-based German company that specializes in the management of pain and is supported by a group of renowned international experts with a high reputation in the field of pain management. This group provides guidance and aims to develop solutions for healthcare professionals in order to improve the management of severe chronic pain.
Good communication between patients and healthcare professionals is essential for successful pain management - because only by understanding the needs of patients can individual treatment goals be agreed, which should be the basis for choosing the most adequate therapy. Finding the best balance between efficacy and side effects of analgesic treatments can sometimes be a challenge but is also crucial for successful pain management. It is very important for healthcare professionals to understand the underlying mechanisms of chronic pain in order to choose the best treatment option for each individual patient.
To support healthcare professionals in their education about pain management is a key activity of the CHANGE PAIN initiative across Europe. In the UK, a number of online learning modules are available on the website www.change-pain.co.uk (if you are viewing from outside the UK then please go to www.change-pain.com). Upon completion of these modules physicians can obtain CME (continuing medical education) points by further increasing their knowledge about pain therapy. In addition, educational workshops are organized and a number of research projects are on-going to further increase the awareness on chronic pain.
Written by Sabine Wiemer (Sabine.Wiemer@grunenthal.com) 
Global Lead for CHANGE PAIN
Grünenthal GmbH
52099 Aachen

Long Term Conditions 2012

1st February, QEII Conference Centre, London
Building on the huge success of GovNet’s Long Term Conditions 2011 conference we are pleased to invite you to Long Term Conditions 2012 on 1st February at the QEII Conference Centre in central London. 
Join over 350 delegates, 20 service providers, and 20 high level experts from across the health sector and the wider public sector to address the key issues around long term conditions.
With an estimated 15.4 million people in England living with at least one long-term condition it is essential to meet and discuss how to improve the quality of services and the quality of life of patients.
Confirmed speakers include:
  • Dame Sally Davies, Chief Medical Officer, Department of Health 
  • Dr Michael Dixon, Chair, NHS Alliance 
  • Professor David Oliver, National Clinical Director for Older People, Department of Health
  • Jonathan Mason, National Clinical Director for Primary Care and Community Pharmacy, Department of Health
  • Dr. Mark Porter, MBE, GP, broadcaster and journalist (Chair)
To view the full agenda please click here - http://www.long-term-conditions-conference.co.uk/programme.php
Pain Toolkit has negotiated an exclusive discount for all of its members. Quote booking discount code ‘TOOLKIT’ when booking directly with Chris Callaghan on the details below:
Tel – 0207 484 5226
Email – chris.callaghan@govnet.co.uk
Book Online - http://www.govnet.co.uk/cenreg/reg_step2.php?confcode=Longterm2012

The LTC QIPP workstream is driving forward the changes needed to improve patient care: 

The current NHS requires a paradigm shift in the provision of health care to meet the needs of a population in which most of the disease burden is attributable to chronic diseases. The shift calls for a radical reappraisal of current patterns of investment in health care if changing population needs are to be met effectively.
The QIPP challenge, therefore, is not only to transform the way we deliver care to those people with long term conditions and contribute to the current financial imperative of £20 billion savings, but also to set the NHS itself in a better position to remain viable for the future.
No healthcare system as it is currently configured for long term conditions care is sustainable - it is everyone's responsibility to help change this. Unless we work together to achieve this change for long term conditions care, - clinicians and managers, primary and secondary care, health and social care – the NHS is not sustainable.
The workstream is delivering a national support and improvement programme that is enabling local geographic areas to implement an evidence based system for supporting patients with LTCs. The programme is designed to facilitate and enable local health economy teams to deliver change at pace, in a measured and supported way. To support the workstream there will be a number of strands of work;
1. 3 drivers:
To encourage the adoption of the 3 key drivers in each local health economy
  • Risk Profiling
  • Shared decision making and self care
  • Integrated Neighbourhood Care Teams
2. Changing the financial model 
A commissioning group has designed a number of recommendations for changes to PbR and tariff that will ensure that the commissioning model supports the delivery model being promoted through the workstream, with a particular focus on realising efficiencies. This work will be ongoing.
3. Third Sector Group 
A group of seventeen of the leading third sector organisations allows patient groups to have an ongoing input into the development of the workstream. This group is central in helping to create the „pull‟ from patients that is required within the system to systematise supported self care / shared decision making.
4. Workforce 
We are analysing the implications that the LTC care model will have on the workforce. The intention is to assist workforce planners with information regarding the appropriate skill mix and competencies for the future workforce.
For more information please visit: 

Lifepsychol®QoL - Monitoring and Tracking Quality of Life in One Complete System

Lifepsychol®QoL is a new system enabling you to track how your services are affecting the quality of life of people living with a long term condition. The completed dial (handheld or computer) provides a quick reference helping to highlight the areas of concern for the patient, and with timely intervention may help to reduce the risk of hospitalisation. Also, with repeated use Lifepsychol®QoL enables you to make sure you are supporting and improving the quality of life of patients when in your care.
Using Lifepsychol®QoL can help you deliver a service that:
  • Supports personalisation
  • Saves staff time
  • Reduces unplanned visits to hospitals and GPs
  • Meets the requirements set out by the Outcomes Framework
For more details go to www.lifepsychol.com or email neil@innervate.co.uk

Social Impact of Pain

Exciting News about Societal Impact of Pain (SIP)
Pete Moore was invited to Brussels in early May to be part of the inaugural meeting SIP meeting in the European Parliament. It was an excellent meeting where a mixture of people who work in pain management across the EU spoke and listened to the challenges and experience in their respective countries.
So what is Societal Impact of Pain and how can you get involved?
The objective of the platform SIP - “Societal Impact of Pain” is to stimulate discussion between representatives of consumers, patients, pain specialists, health care assessors, politicians, budget holders and strategic decision makers in the EU on pain care related topics. The scientific framework of the symposium SIP 2011 has been designed under the responsibility of the European Federation of IASP® Chapters (EFIC®). The scientific program of SIP 2011 has been endorsed by 88 organisations. The pharmaceutical company Grünenthal is responsible for logistic support, preparation and organisation. More info you find under: www.SIP-Meetings.org 
You can also find SIP on Linkedin where SIP - “Societal Impact of Pain” is a networking group for those participating in the symposium or platform “Societal Impact of Pain” (SIP). 
So, how can you find out more and follow the discussions, it’s easy, to go to SIP - “Societal Impact of Pain” on LinkedIn you use the following link to join:

Pain Toolkit and Australia

In June I successfully finished a short tour of Australia (Sydney, Brisbane and Darwin) speaking to health care professionals and patient (consumers as they are known there) groups about pain self management.

During my visit I was privileged to co-present a breakfast symposium with Professor Lorimer Mosley called How to engage patients to self-manage.  Over 200 attended and many participants wanted to know more about the Pain Toolkit workshops.  See clips of Lorimer Mosley on our news Educational Link.

I would like to thank Dr. Sven Richter (Grünenthal EU & Australia), Jim Malamatinas (CSL Biotherapies) and all those who supported his trip, but special thanks to Elizabeth Carrigan, APMA www.painmanagement.org.au  (for letting me stay at her house), Lesley Brydon (Pain Australia) www.painaustralia.org.au,  Dr. Tim Semple (Australian Pain Society) www.apsoc.org.au  Dr. John Quinter, Melanie Galbraith and Dr. Stephanie Davies for making him welcome during his trip.

Pain Toolkit now available in other countries

Please see links coming soon on our website to download other versions of the Pain Toolkit:
  1. Australia
  2. New Zealand
  3. Self Care Toolkit (NHS Tayside DVD) http://www.nhstayside.scot.nhs.uk/ltc/videos/index.shtml 

Pain Toolkit on Twitter

If you would like to follow the Pain Toolkit on Twitter, please go to @paintoolkit2

Pain Tookit DVD

If you would like copies of the Pain Toolkit on DVD, please contact www.paintoolkit.org/contact See a clip at http://www.youtube.com/watch?v=nW-978qGs1I&feature=related It is subtitled and also dubbed in Urdu.  Good discounts for large orders.

Your Pain Toolkit Calendar for 2012

Yes we have produced another Pain Toolkit calender for 2012.  They seemed to be a big hit with everyone last year.  This years is even more colourful and again supporting the pain self-management message.
Please contact Pete Moore who will send you an order form at www.paintoolkit.org/contact  excellent discounts for multiple orders
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