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National Family Camp, PEP Talk, ACEET, and the Latest News from HFNZ
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The latest from the Haemophilia Foundation of New Zealand - October 2016

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HFNZ National Family Camp was AWESOME!

On September 30th 98 Campers assembled at Keswick Camp in Rotorua for the 2016 HFNZ National Family Camp. This was another fantastic weekend, even though the weather didn’t quite play ball. The kids had a great time fishing, bike riding, and other fun stuff. Meanwhile, the adults learned heaps about bleeding disorders, and the issues faced by people with bleeding disorders.

There were a number of really valuable sessions, including:
 

  • The basics of bleeding disorders, with BJ Ramsay
  • Developing resilience in children, with Linda Dockrill
  • von Willebrand Disorder and other rare bleeding and platelet function disorders, with Maureen Hayes
  • The complications of haemophilia, with Dr Nyree Cole
  • Haemophilia Physiotherapist Cat Pollard from Auckland, presented a session, and took the time to offer individual consultations
  • Ask the Experts’, where parents were able to ask young adults about their experiences of growing up with a bleeding disorder.

From the treatment room, big ups to Alex Rutherford and Izack Silva for doing their own treatment for the first time, with many other Campers making great strides in their self-management. Nice work!

While the grownups were doing learning, the kids were kept busy with interesting and fun activities:
 
  • In the Crèche the Speedy Construction Workers were kept busy with painting, play dough, and a huge array of toys.
  • The 4 – 7 year olds, aka the Pink & Blue Wrecking Crew, and the 8 – 12 year olds, aka The Architects, undertook a range of activities like rifle shooting, confidence course, and woodworking.


A highlight for many of the kids was an afternoon out fishing, organised voluntarily by Doug Stevens. There was much excitement when 10-year-old Joseph Esera landed the first trout, followed closely by Danny Guevara, Andrew Scott, Dylan Christiansen, and R-leeo Maoate. Back at Camp, the trout were carefully gutted and smoked by HFNZ Vice President Richard Scott, and enjoyed by many. It was so good it's even in the news.

Despite a lot of rain, the HFNZ Carnival Day went ahead as planned, with an array of activities for families to participate in topped off by a one-hour tour of the picturesque Lake Rotoiti.

At the Final Assembly eight children graduated from Family Camp. That means they’re now ready to attend HFNZ Youth Camps. We also took the chance to farewell Southern Outreach Worker Linda Dockrill, as this was her last National Family Camp before taking up a new role.

So, HFNZ Family Camp was AWESOME! We loved it, and by all accounts our members loved it too. A big THANK YOU to all those who made it possible.

The countdown is on for next year…

PEP Talk: Ideas for building positive families


By Colleen McKay
 

Building Responsible Kids…


Many of HFNZ’s families are fresh back from National Family Camp. This time it was Camp was construction themed, where we were immersed in building and constructing a great many things. One of the areas we looked at was the enormous task of building fantastic kids, complete with all of the skills, attributes, and values that we can be proud of: this task we call parenting.

We all want to raise responsible kids, but a responsible kid doesn’t just appear by magic. Kids are born with the capacity to become responsible people, but it’s up to us as parents to develop those skills in them. So, how do we raise our kids to be trustworthy, to take responsibility for their choices and their impact on the world, and to be accountable for their actions and interactions with others?

Encouraging children to be responsible starts from an early age, it takes a lot of work and patience, but in the long term it’s worth it.

Building a responsible child can be likened to building a house:

Build a Firm Foundation. When your child is young take steps to build a strong foundation:
  • Establish rules and consequences
  • Help your child to develop concern for others
  • Give your child household chores or jobs around the home
  • Allow your child to make choices.

Frame the house. As your child matures, they will have a steady and strong foundation upon which they can then ‘build’ the house of responsibility. As your child frames their house, give guidance in the following ways:
  • Wherever possible, act as an adviser, not a director
  • Continue to establish age appropriate household rules and follow them through with consequences
  • Encourage your child to earn and manage money
  • Help your child to understand the importance of giving to others.

Role model responsibility yourself. And finally, your child’s house of responsibility will crumble if you don’t model responsibility yourself. Show them what responsibility looks like in an adult, put it into action. Your own actions have a huge impact on the development of responsibility in your child.

All of this might seem daunting, but it is doable… one building block at a time.

This is a brief snapshot of developing responsibility in children. Want to learn more? Watch for the full article in the March issue of ‘Bloodline’ and/or sign up for the Parents Empowering Parents (PEP) Programme in 2017 – watch Pānui for the dates.

Sneak Peek...




It's that time again, and Bloodline is in production for the third time this year...

The November issue is very much focused on the recent WFH World Congress in Orlando, Florida. HFNZ had seven representatives at Congress in various capacities. Each of them attended several sessions, and provided reports on them. In the November issue you can read their reports on everything from extended half-life factor products to transition challenges for young adults.

Also in the November issue:
  • Feedback on the recent HFNZ National Family Camp in Rotorua. This was another great event, despite all the rain. Staff and volunteers came together well to provide a fantastic educational experience for our members.
  • Information about ACEET grants. Hear what one grant recipient did with her grant, and learn how you can benefit too.
  • Plus more!
Email is the best way to get Bloodline; direct to your inbox, in full glorious colour, the day it's published. If you'd like to be added to the list, just contact Leanne at head office: leanne@haemophilia.org.nz.

How ACEET can help you...


The closing date for applications for the next round of Alan Coster Educational Endowment Trust (ACEET) grants is November 30th. That means you need to have all your details lodged with your Outreach Worker by November 15th at the latest, so they can be processed and make it to the trustees on time. The ACEET trustees do not accept late applications.

ACEET grants help people with haemophilia and other rare bleeding disorders access vocational training and education. Over the years ACEET has helped many HFNZ members to change their lives, by providing them with financial support for education that they may not otherwise have been able to access. 

The ACEET grants are not just for university study. The ACEET trustees consider applications for primary, secondary, undergraduate, postgraduate, trades, or vocational training. That means, if you have a bleeding disorder, a dream, and a course that will help you to get where you want to be, then an ACEET grant could be what you need.

Previous recipients have used their grant to complete courses from reading assistance, to plumbing. If it's going to improve your prospects, then it's worth getting an application in.

To apply for a grant, just contact your Outreach Worker. Remember, November 15th.
 

Southern Outreach


Well, this is it. Linda has had her last day, and is now officially no longer the Southern Outreach Worker. Very sad...

Fortunately, our search for her replacement has been successful. HFNZ welcomes Josiane McGregor to the team. Josiane will start towards the end of November, and has already been out and about with Linda meeting some of you. We know that she will hit the ground running, and quickly come to grips with her new role.

In the meantime, Richard and Colleen will be dealing with any urgent matters arising for members in the Southern region, and the three other Outreach Workers, Joy, Lynne, and Nicky, will also be around to help out. Just email us, or give us a call, and someone will be in touch.

Keep your eyes peeled for...

 
The New Year 

Hooray! Time for a break and some well-earned time with family and friends, before launching into another big HFNZ year.

Some regions are holding events to coincide with the holiday season; including Central, who are going 10 pin bowling on Saturday November 26th @ 2pm. To find out more about this event you can contact them at hfnzcentral@gmail.com

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Advanced Leadership Training

Over Waitangi weekend 2017 HFNZ are running an invitation-only educational event for our young leaders. A group of young men and women identified as the next wave of leadership for our organisation will be involved in a variety of activities aimed at giving them all the tools they'll need for the future. This is a very important part of securing the future of HFNZ. The venue is still a secret, but we can disclose that the port of entry will be Auckland... 

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National Youth Camp

Our first open event of 2017 is the National Youth Camp, for boys and girls (young men and women?) aged 10-18. This year the camp is being held from April 20th to the 23rd, at the Waipara Adventure Centre, in North Canterbury. If this event is anything like the last one, then a whole lot of fun will be had, and your young people will come away with a whole new understanding of what it takes to manage their bleeding disorder. Keep an eye out for this, it's a valuable experience.

P.S. Please contact Colleen if you're keen to volunteer as a Youth Leader at camp. It's great fun, and a great way to help...

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National Inhibitor Workshop

This very important residential workshop is scheduled for July 7 - 9 in Auckland. It's an opportunity for members and families who are affected by inhibitors, an immune response to factor treatment, to get together to learn about management, and to share their experiences. This is always a very valuable experience for a group that can find dealing with their bleeding disorder harder than most. Keep a look out for more information in the new year.
 

In Other News...

 
 
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