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Buddy Awards, The End of an Era, Theatre time, PEP Talk, and all the Latest News from HFNZ
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The latest from the Haemophilia Foundation of New Zealand - March 2017

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Countdown to the HFNZ Buddy Awards

That's right, April 17th is World Haemophilia Day, which means there's not much time left to get your nominations in for the HFNZ Buddy Awards. 

We all have those special people who we can rely on to do the right thing when we need a bit of support. The people who lift you up when you're feeling down, who make the fun times that much better, who are there for you no matter what. The HFNZ Buddy Awards are a great opportunity to recognise those who have really gone above and beyond the call of duty to make life better for you, or for someone you know with a bleeding disorder.

Nominations must be in to head office by Friday April 7th, so get your thinking caps on!

Contact head office at karen@haemophilia.org.nz to get your nomination form today. And contact your Outreach Worker to find out what's happening in your region to celebrate World Haemophilia Day and the HFNZ Buddy Awards.

The end of an era


Well, it was always going to happen sometime, but we've been trying not to think about it. As some of you may already have heard, our wonderful Camp Mother is stepping down from her role with the Foundation. After more than 20 years working with our people, Colleen McKay has decided to call it a day.

Colleen has been an integral part of the Foundation right from when she started as a volunteer many moons ago. She has run our camps and workshops, always bringing something new and exciting to the table. She's also been 2IC of the head office team for many years. We're just not sure how we'll cope without her. Colleen has been a fantastic advocate for HFNZ members at all times. She has represented us with distinction on the world stage, and is highly regarded in the international bleeding disorder community. We all just love her to bits, and are sad to see her go.

Colleen's last day will be Friday May 5th. She's hoping that as many of you as feel the need pop in to the office through the afternoon to wish her well and reminisce about the good old days.

A Night at the Theatre with HFNZ


On Saturday May 6th, HFNZ in conjunction with Brick Road Productions will again be hosting the Southern Play Night at the Heaton Intermediate School Performance Centre. This year's play is Forget-Me-Knot by David Tristram, an hilarious tale of amnesia, mistaken identity, and dysfunction. Southern Play Night is always a good time, and raises funds for HFNZ programmes. The Southern team will be running a cash bar, serving food, and offering raffle tickets, so it pays to get there early. Tickets are $20.00, with 40% going to HFNZ.

To book tickets, or find out more, just drop Karen at head office a line on karen@haemophilia.org.nz or 03 371 7477.

PEP Talk: Ideas for building positive families


Parenting – the most important job in the world: The quest for doing our best!


By Colleen McKay

It is often said that there is no more important role in life than being a parent; to turn your children into kind, loving, caring members of the community, who know right from wrong. Parents shape the future of our world, because they shape the values and behaviours of their children.

For most of us, parenting is the hardest, and the most important, thing we will ever do. The list of skills needed are many and varied: you are a nurse, cleaner, teacher, financial controller, chef, psychologist, playmate, adventurer, nanny, and counsellor. Not to mention the many hours of taxi driving. 

Parenting is a huge job, it may be tough; but it is also one of the most meaningful and rewarding jobs that a person can devote their life to. The pride you feel in your child’s successes and struggles and the satisfaction of seeing your child grow and develop every day is immeasurable. There is no greater love than parenting. The bond that you share with your child will bring you great happiness and enjoyment.

Parenting is already difficult enough, without adding a child or children with a bleeding disorder into the mix. The international programme Parents Empowering Parents (PEP) is designed to give parents the chance to develop more of the skills needed to effectively parent children with bleeding disorders. PEP is designed to affirm positive existing behaviours while focusing on the unique problems faced by children with bleeding disorders. PEP values differences in culture and recognises individual family structures. Each family is different, each child is unique, and as a parent that challenges you to parent them differently – PEP offers something for everyone.

HFNZ is holding a PEP Programme in Wellington over the weekend of 16th – 18th June. We are privileged that one of the US PEP Programme Faculty Directors – Ed Kuebler, is coming to New Zealand to facilitate this Programme. Why not register to attend?

Contact Karen at Head Office to find out more.


ANZ Conference Time!


The 18th Australian & New Zealand Conference on Haemophilia & Rare Bleeding Disorders is coming up in Melbourne on October 12th - 14th. The theme for the conference is 'Looking Forward to Change'.

This is a great opportunity to get together with people with bleeding disorders, carers, health professionals, policy makers, and industry to learn, discuss, and plan for the future. The programme covers everything from new treatments for haemophilia, to pain management, to sport and healthy activity. There's something for everyone.

If you're interested in attending the conference you can find out more here: https://www.haemophilia.org.au/conferences/conference-2017

 

Building new HFNZ heroes...


It's now less that three week until National Youth Camp. This year the NYC will be held at the Waipara Adventure Centre in North Canterbury from April 20th to 23rd. This is a great chance for young men and women aged between 10 & 18 to get together, learn new things about bleeding disorders and self-care, develop some independence, and have a whole lot of fun.

Registrations have now closed, and we're looking forward to reports of fun, learning, and heroism!

Keep your eyes peeled for more in the next edition of Pānui...

HFNZ People...

Keep your eyes peeled for...

 
PEP

We are running a Parents Empowering Parents (PEP) workshop in Wellington on June 16th to 18th 2017. Parents of children with bleeding disorders will be gathering at Aotea Lodge in Porirua for a weekend of education and support. These workshops are really valuable, and a great way to foster the support of other parents in the same boat as you. Invitations have been sent out, but if you want more info please contact Karen at head office.

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National Inhibitor Workshop

This very important residential workshop is scheduled for August 18th to 20th at the Quality Inn Parnell in Auckland. This workshop is a great learning opportunity for a group that can find dealing with their bleeding disorder harder than most. Keep a eye out for more information later in the year.

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Central AGM

Now scheduled for Sunday August 27th at Owlcatraz in Shannon, this is a great opportunity to get in and find out what makes your region tick. You'll be able to participate in electing the regional committee, as well as help make decisions about the year to come. 

Come join us from 11-12 for this very important part of HFNZ's governance process.

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Adult Weekend

There have been a couple of changes to this year's Adult Weekend. The date and venue we had planned clashed with the General Election, and with the Wearable Arts Awards, so we've had to adapt our plan.

Adult Weekend 2017 will now be held from September 29th to October 1st, in Auckland, and will incorporate the HFNZ AGM.

This weekend is a great chance for grown ups with bleeding disorders, and their partners, to get together, learn new things, and support one another. If past events are anything to go by, you can expect to have a great time this time too. The final venue is yet to be determined, so keep an eye out for more details.

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Don't forget to contact your Outreach Worker to find out details of regional events taking place for World Haemophilia Day and the HFNZ Buddy Awards

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For any of our 2017 events you can contact head office at any time to register your interest.

In Other News...

 
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