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Why HFNZ Needs You, PEP Talk, Adult Weekend, Pfizer packaging changes, and all the Latest News from HFNZ
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The latest from the Haemophilia Foundation of New Zealand - July 2017

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2016/17 National Council

HFNZ Needs You!


It's coming up to AGM season. Not only are these events excellent ways of finding out what's been going on around the place, they're also an opportunity for you to step up to become an office holder in the HFNZ organisation.

At each Regional and Group AGM members will vote on who will fill the roles of Chair, Secretary, Treasurer, and Delegate to National Council. These are all important roles, with well-defined responsibilities, that are essential to making sure HFNZ members in your area get the support and services they deserve. Working alongside the local Outreach Worker, each Regional and Group committee makes sure things run smoothly, and that every opportunity is taken to get members together.

At the National AGM, on October 1, anyone that's interested can put their name forward to assume one of four crucial elected positions on the HFNZ national Council. At the AGM HFNZ members will vote for a national HFNZ president, two Vice- Presidents, and a Treasurer. These roles are essential to the governance of HFNZ, and directly contribute to the reason we are such a strong and well-regarded organisation. While there are incumbents in three of the roles, there is one vacant Vice-President position, and all roles are open for nominations.

Renewal at National Council level is important to the effective governance of our Foundation, and all the HFNZ Groups and Regions are very interested in getting new people in to help run things.

So, are you ready to make a difference in your community?

To get a nomination form, or find out more, contact Karen at head office: karen@haemophilia.org.nz 
 

PEP Talk: Ideas for building positive families

 

COMMUNICATION TIPS…


By Josiane McGregor

Whilst scaring your child is not ideal, healthy communication, rather than yelling, is.
 
Good communication is an important parenting skill.  Whether a toddler or teen, it is the key to building self-esteem as well as mutual respect.
 
When considering our communication behaviour as a parent, some basic principles to consider are:
  • Let your children know you are interested and involved
  • Use your child’s name
  • Don’t interrupt
  • Turn off distractions when your child wants to talk
  • Get down to their level
  • If you’re angry, walk away and cool down so you are more objective
  • Offer guidance but allow for discussion, especially with bigger children. Don’t solve it for them
  • Offer choices and explain barriers
  • Ask open-ended questions
  • Don’t ask why, ask what happened
  • Stay in touch with your child, make time for one-to-one talks
 
Don’t forget that children are, by nature, easily distracted, and not always responsive to their environment. It is our responsibility as a parent to emphasise positive patterns of communication.
Teach your child by example. Remain completely and totally focused on them and the conversation at hand. Turn off the television; allow calls to go to the voicemail, or go in a room where there are no distractions. Show your child how to communicate effectively, even when the questions are hard.

Make yourself an active listener – show you are listening by smiling, nodding, making small comments like “yes” and “uh huh”.
 
Let them voice their opinion, or side of the story, and ask questions to ensure you understand their viewpoint.
 
Be consistent in the manner in which you communicate with your child. Kids will be kids and they will sometimes be distracted and non-communicative. The best way to ensure healthy communication patterns is to model positive communication skills.


 

Get Ready for the 2017 Adult Weekend...


The HFNZ Adult Weekend is an opportunity for adult HFNZ members aged 25+, and their partners, to get together, share their experiences, and do some learning. This year's workshop is taking place at the Ibis and Novotel Hotels in Ellerslie. We have some great sessions planned, and plenty of opportunities to reconnect. The workshop runs from September 29th to October 1st.

At the end of the weekend, on October 1st, we'll be holding our AGM. This is a great opportunity for you to participate in the decision making and governance of the Foundation. We'll also take some time during the weekend to celebrate the contribution of two of our long-serving staff members. Colleen McKay and Leanne Pearce between them put in over 30 years as staff at HFNZ, and we want to send them off with a bang!

Invitations for this valuable event go out this week, and registrations close on August 25th, so keep an eye out, and return your registration ASAP!

To find out more, contact your Outreach Worker, or email karen@haemophilia.org.nz

Are you interested in the ANZ Conference?


The 18th Australian & New Zealand Conference on Haemophilia & Rare Bleeding Disorders is coming up in Melbourne on October 12th - 14th. The theme for the conference is 'Looking Forward to Change'.

This is a great opportunity to get together with people with bleeding disorders, carers, health professionals, policy makers, and industry to learn, discuss, and plan for the future. The programme covers everything from new treatments for haemophilia, to pain management, to sport and healthy activity. There's something for everyone.

If you're interested in attending the conference, HFNZ can help by paying your registration fee. Find out more here: https://www.haemophilia.org.au/conferences/conference-2017

Pfizer packaging changes


The team at Pfizer have advised that they are in the process of rolling out new packaging for their Xyntha and Benefix treatment products. In the interests of environmental friendliness Pfizer are reducing the size of the boxing, and doing away with the plastic insert. Instead there will be cardboard dividers keeping the contents secure. 

The roll-out will proceed over the rest of the year, and by the end of the year all Xyntha and Benefix should only arrive in the new packaging.

Here's what some of the new packaging looks like...


Bloodline is on its way!


Keep your eye on your inbox and your letterbox for the July 2017 issue of Bloodline. It's being delivered this week.

The July issue features a look at the contribution Grant Hook has made to the Foundation, information on employment issues, an update on the protocols around administering treatment at home, and more about what's been going on at HFNZ over the last few months.

Also, this month everyone on our Bloodline lists will get to try it online. But don't worry, if you usually get a hard-copy you'll still get that too. In the future, however, we'd like to reduce the number of hard-copies we send out. Not only is there an environmental impact to printing the magazine, there's also a significant financial impact on the Foundation. These days it costs as much to mail out a copy of Bloodline as it does to print it!

So, if you like the online version, and don't mind not getting the hardcopy version anymore, please let us know. You can contact us at info@haemophilia.org.nz to give us any feedback.

Keep your eyes peeled for...


Midland Youth Events 

The Midland crew have a couple of great events for young people aged 10 to 20 coming up.

On August 13 there will be bowling at Hamilton Sky City Complex 10 Pin Bowling. Meeting at 10 for a 10:30 start. Lunch will be provided.

On the same day in Rotorua a group will be testing themselves at Escape Masters. Again, 10 for a 10:30 start, and lunch will be organised.

Invitations are going out now. Contact Linda for more info.

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Midland Steamfest & AGM

On August 20 the Midland Region are running a very special event that'll take you back to days gone by. Jumping on the vintage-era steam train in Otorohanga, you'll ride the rails to Te Kuiti, where the train will be spun around on the turntable before whisking you back to Otorohanga. On the return journey the Midland Region will be running their AGM. This is a great chance to experience the wonders of the steam age, and to participate in the governance of the Foundation.

Invitations are going out now. Contact Linda for more info.

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Central AGM

Now scheduled for Sunday August 27th at Owlcatraz in Shannon, this is a great opportunity to get in and find out what makes your region tick. You'll be able to participate in electing the regional committee, as well as help make decisions about the year to come. 

Come join us from 11-12 for this very important part of HFNZ's governance process, so be there or be square.

For more info contact the committee at hfnzcentral@gmail.com

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Northern AGM

The Northern Region are hosting an outing to the Silverdale Adventure Park, where there'll be lots of fun, a pizza lunch, and their AGM. 

At the AGM they'll be electing there committee for 2017/18. This is a really important part of the governance of the Foundation, so be there or be square.

If you're interested in joining the committee, the nomination form is attached to the invite. Please be sure to get that in by August 24.

For more info contact Northern Secretary, Neil Smith.

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Adult Weekend & HFNZ AGM

As mentioned above, we're really looking forward to this year's Adult Weekend, held from September 29th to October 1st, at the Novotel/Ibis, in Ellerslie, Auckland.

This event will also incorporate the HFNZ AGM, and, as part of the weekend, we'll  be taking the opportunity to recognise the contributions of two longstanding former staff members: Colleen McKay and Leanne Pearce.

This weekend is a great chance for grown ups with bleeding disorders, and their partners, to get together, learn new things, and support one another. If past events are anything to go by, you can expect to have a great time this time too.

Invitations are winging there way to you as we speak, so keep an eye out, and contact Karen for more details.

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For any of our 2017 events you can contact head office at any time to register your interest.

In Other News...

 
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