in this edition
 
From the Chairperson's desk
IPOPI News:
IPIC 2013 - Take part in this milestone event! >
IPIC 2013 Physician Travel Grant Winners >
The Power of a Gift >
IPOPI participates in 4th PLUS Consensus Meeting >
IPOPI attends Bioplasma Conference >
PID Political Awareness Campaign in Brazil >
Newborn Screening in Europe >
IPOPI welcomes Uganda as new associate NMO >
Around the world:
International Plasma Awareness Week >
Patient Solidarity Day in Africa - Join the cause! >
New patient group launched in the UK >
Marcia Boyle Named Innovator of the Year >
Romania - The Dance of the Immune System >
Fighting for the rights of PID patients in Russia >
APAPARI Congress, Bangkok >
7° Regional Meeting with Physicians and Patients in Tucuman Report Argentina >
Plasma awareness days in Germany >
From the Chairperson's desk...
 
Dear Friends,

IPOPI's first international congress (IPIC) looking at PID clinical care developments is now just two months away and we have been busy working through the holiday season to ensure this milestone event will be as successful as possible. You can read the latest news about the congress here. The last months have also marked the start of IPOPI's Bob LeBien Asian outreach campaign. We are currently actively working towards the first-ever Thai and Malaysian PID patient meetings which will be held next month in Bangkok and Kuala Lumpur. IPOPI recently participated in the Asian Bioplasma conference to highlight the importance of access to early diagnosis and care for PID patients and will also take part in a PID workshop in Hong-Kong later in the year. We are very grateful to Bob LeBien who initiated this South-East Asia campaign.

IPIC 2013 - Take part in this milestone event!
 
Less than two months away from the first International Primary Immunodeficiencies Congress (IPIC), IPOPI is making the final arrangements for this exciting event to be held in Estoril (Greater Lisbon) on the 7th and 8th of November.

The two day scientific event will focus on clinical care and diagnosis of Primary Immunodeficiency as well as developments in the field. IPIC aims to provide a multinational scientific platform to discuss a wide range of issues relating to the clinical management of Primary Immunodeficiencies.

IPIC 2013 Physician Travel Grant Winners
 
IPOPI and IPIC's Organising Committee (OC) launched a Travel Grants programme for young physicians wishing to attend IPIC to present their latest PID research. The candidates applied in July and were asked to send a motivation letter and priority was given to the candidates who had also submitted an abstract.

The Power of a Gift
 
Last year during the IPOPI Biennial Meeting in collaboration with ESID and INGID, IPOPI celebrated its 20th anniversary. At the occasion of this milestone event in IPOPI's history, Bob LeBien, IPOPI's founding Honorary President was awarded with the first IPOPI Bob LeBien award which was

IPOPI participates in 4th PLUS Consensus Meeting
 
As a member of PLUS Executive Committee, IPOPI participated in the 4th annual PLUS Consensus Meeting which was held on 5-6 September 2013, in Estoril, Portugal for the very first time.

IPOPI attends Bioplasma Conference
 
As part of IPOPI's Bob LeBien Asian Outreach campaign, Johan Prévot attended the second Bioplasma World Asia 2013 conference held in Indonesia on 2-3 September 2013. In his presentation on "Ensuring future supply of immunoglobulin therapies for PID patients", Johan Prévot highlighted IPOPI's mission and objectives and the importance to improve diagnosis rates and access to treatment for PID patients in South East Asia.

PID Political Awareness Campaign in Brazil
 
The PID patient groups that took part in IPOPI's Awareness Workshop Campaign, IPOPI's NMO ABRI and ANPIC, have just embarked in a joint effort to improve access to care and diagnosis in Brazil.

Newborn Screening in Europe
 
As part of IPOPI's EU campaign on SCID Newborn Screening, IPOPI has followed with great interest the developments regarding a potential EU initiative on newborn screening which would be an essential step towards increased awareness for the need of screening babies with rare diseases, particularly those for which a clear correlation between early screening and survival rates has been well established, such as for SCID.

IPOPI welcomes Uganda as new associate NMO
 
Uganda is IPOPI's third African NMO, joining Morocco and South Africa, helping to increase PID awareness the African continent. Patient and physician representatives from Uganda recently attended the IPOPI regional patients meeting in collaboration with the ASID meeting.

International Plasma Awareness Week
 
The first ever International Plasma Awareness Week (IPAW) will be celebrated October 13-20. A joint initiative of the Plasma Protein Therapeutics Association (PPTA) and its member companies, IPAW is designed to

Patient Solidarity Day in Africa - Join the cause!
 
IPOPI supports Patient Solidarity Day in Africa to be marked on the 30th of October 2013 through various actions in countries across Africa. The campaign aims to involve local health sector politicians to endorse the cause.

New patient group launched in the UK
 
Primary Immunodeficiency UK (PID UK) has launched in Britain. The organisation was established in July to support the 5,000 families affected by primary immunodeficiencies nationally. An accompanying website has been set up to inform families and healthcare professionals

Marcia Boyle Named Innovator of the Year
 
IPOPI board member and IDF President, Marcia Boyle, was chosen as one of the winners of the 2013 Innovator of the Year Award of The Daily Record, a Maryland newspaper for business and legal news. This award recognizes the men and women who have created new products, services or programs that have improved their fields.

Romania - The Dance of the Immune System
 
On 10th June2013 ARPID, our Romanian NMO participated in a street event in Timisoara called 'The Dance of the Immune System. This event was a joint venture of Hospital Louis Turcanu, ARPID and the Jeffrey Modell Foundation. Many children with Primary Immunodeficiencies, several others with other chronic diseases and 200 young students danced at the Opera Square in Timisoara.

Fighting for the rights of PID patients in Russia
 
For too many years, most PID patients in Russia have been denied their right to appropriate healthcare. Our group has been able to start tackling this problem through legal action.

APAPARI Congress, Bangkok
 
IPOPI is pleased to announce that the next Congress of the Asia Pacific Association of Pediatric Allergy, Respirology and Immunology (APAPARI 2013) will be held in Bangkok, Thailand on October 2-4. The meeting marks the 15th

7° Regional Meeting with Physicians and Patients in Tucuman Report Argentina
 
The 7th Argentinian Regional PID Meeting was held on the 26 of June in "Niño Jesús" Pediatric Hospital in Tucumán. It was attended by physicians, patients and families and composed by several smaller events all aiming to increasing awareness and knowledge on PID in Argentinian North-eastern region.

Plasma awareness days in Germany
 
Several "plasma days" took place in plasma centers all over Germany (Nürnberg, Rostock, Magdeburg, Chemnitz, Bayreuth, Fürth) in June and July 2013 with the participation of German health sector politicians.

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