From the Chairperson's desk

The summer has been a very busy time for the entire IPOPI team. And now with only a few weeks left before the 2nd International Primary Immunodeficiency Congress (IPIC2015) which will be held in Budapest, Hungary, on 5-6 November 2015, we are even busier. 

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IPIC2015 is very popular!

The 2nd International Primary Immunodeficiencies Congress (IPIC2015) is becoming increasingly popular ! Don’t miss out on your chance to participate and register today.
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Rare diseases patients photo exhibition

The Care for Rare Foundation inaugurated on the 7th of September a German-Turkish rare diseases patients photo exhibition that will travel through Turkey and Germany.
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IPOPI Statement on Blood donation and MSM

Blood donation and MSM (Men having sex with men) has been getting a lot of attention internationally.
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IPOPI joins Pre-formation Committee of Rare Diseases International

Johan Prevot IPOPI’s Executive Director has now joined the Pre-Formation Group, responsible for steering RDI forward until an elected Board of Directors is functional.
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IPOPI Latin American Regional Patient Meeting

IPOPI is looking forward to its upcoming Latin American Regional Patient Meeting during the LASID Congress, on 18 and 19 November 2015 in Buenos Aires.
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IPOPI PID talks: Share, Learn and Get Inspired!

IPOPI launched a Facebook Group called ‘IPOPI PID talks: Share, Learn and Get Inspired!‘.
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IPOPI participates in a consortium for the development of gene therapy for SCID

SCIDNET is a multi-stakeholder consortium that aims at delivering safe and effective gene therapy as a licensed medicine for children with Severe Combined Immunodeficiency (SCID)
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NMO focus

About IDFA

IDFA was formed in 2005 by IDF New Zealand and an immunologist, nurse and a few patients in Australia.
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Around the world
UK - PID UK new Emergency Card
Romania - Summer Camp
Germany - Weekends for teenagers
USA - White House Honours IDF | New IDF Publications for Clinicians
India - IAPO collaboration and CME event
Argentina - Dialogue with specialists

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