From the Chairperson's desk

Spring is in the air! And with it comes a new year filled with inspiration and many new projects!2015 started at full speed for IPOPI first with the excellent feedback received after the publication just before Christmas of the “PID Principles of Care” led by IPOPI and then with the organisation of an excellent event held in collaboration with the Care-for-Rare Foundation in Bangkok, Thailand.
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IPIC2015 – register now!

The early bird registration deadline for IPIC2015 has been extended to 17 July 2015, so make sure you take advantage of the great rates we have for you!
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IPOPI Regional Patients Meeting in Algiers, Algeria

The IV ASID (African Society for Immunodeficiencies) congress took place in Algeria on 29– 31 May 2015. 
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ESID PID patient registry

The European Society for Immunodeficiencies (ESID) Registry working party (WP) steering committee held their 7th meeting in Freiburg, Germany.
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IPOPI has three new members!

Slovakia, Senegal and Puerto Rico are now represented in the fast-growing network IPOPI’s National Member Organisations (NMOs).
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IPOPI attends SCID newborn screening European Expert Meeting

IPOPI actively participated in the European Expert Meeting on Severe Combined Immunodefiencies (SCID) newborn screening on 5-6 June 2015 in Vienna (Austria).  
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IPOPI participates in Rare Diseases International Launch Event

IPOPI together with around 60 other patient group representatives participated in the official Launch Meeting of Rare Disease International.
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WPIW 2015 – Test! Diagnose! Treat!

The fifth edition of the World Primary Immunodeficiencies Week (WPIW) was held on 22 – 29 April 2015.
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First Indonesian PID Patients-Doctors Meeting

The first IPOPI Indonesian PID Patients-Doctors National Meeting took place at the Grand Sahid Jaya Hotel.
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IPOPI leaflets translated into Polish and Estonian

The latest series of IPOPI patient information leaflets have recently been released in Polish!
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Johan Prevot joins Board of Health First Europe

IPOPI participated in the recently held Annual General Meeting (AGM) of Health First Europe (HFE) in Brussels.
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IPFA/PEI 22nd International Workshop on Surveillance and Screening of Blood Borne Pathogens

The 22nd annual IPFA/PEI International Workshop was held in Prague on 20 and 21 May 2015.
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IPOPI attends Kedrion’s celebration at Melville facility

IPOPI was invited along with other stakeholders, local guests and dignitaries to attend a dedication ceremony of Kedrion’s facility in Melville.
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NMO focus

First steps to improve lives of PID patients

Rare Immune Disease (RID) from Ukraine is one of the newest IPOPI members. 
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Around the world
Portugal – WPIW in the news
France – IRIS involved in WPIW 2015
PID UK celebrates WPIW with new patient information leaflets
AEDIP organises medical, educational and family activities for WPIW
Sweden – Exhibitions, lectures and fundraising, WPIW 2015
Canada – ‘My life is better!’ WPIW campaign
India – WPIW observed with Kids day
Belgium – BOPPI and WPIW 2015
Argentina – Medical education on WPIW
Romania – WPIW with balloon and PID Patients gathering
Colombia – Spreading medical awareness of PIDs
Germany – “You help me live”
USA – IDF Publishes Children’s Storybook

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