in this edition
 
From the Chairperson's desk
IPOPI News:
First International Primary Immunodeficiencies Congress (IPIC) >
IPIC 2015 >
IPOPI National Patients Meeting, Thailand >
First Malaysian PID Patients Workshop >
IPOPI Awareness Campaign Workshop Romania >
IPOPI attends WHO meeting >
3rd Latin American Regional Patients meeting >
Fifth Meeting of the Portuguese Doctors Group for Primary Immunodeficiencies (GPIP) >
Around the world:
100th J Project Anniversary Meeting Announcement >
1st Iberoamerican Congress for Rare Diseases >
APIQ Educational Day, Québec, Canada >
Second PID family day in Netherlands >
IRIS, change of management, continuity in action >
PIDs in 'Health Minute' Radio Show >
New videos about PIDs >
Meeting of dsai's regional groups >
Patients voice in the evaluation of medicines >
From the Chairperson's desk...
 
Dear Friends,

As 2013 is coming to a close, the global PID community can be proud of its achievements. Great initiatives have taken place this year in all regions of the world to enhance access to early diagnosis and care for PID patients and raise awareness of Primary Immunodeficiencies. This was only possible because of global stakeholder collaboration.

First International Primary Immunodeficiencies Congress (IPIC)
 
An impressive number of 400 participants attended the 1st International Primary Immunodeficiencies Congress (IPIC) held in Estoril (Lisbon), Portugal on 7 and 8 November 2013.

Watch the video

See our gallery

IPIC 2015
 
Budapest, Hungary
The International Patient Organisation for Primary Immunodeficiencies (IPOPI) is pleased to announce that the Second International Primary Immunodeficiencies Congress (IPIC) will be held

IPOPI National Patients Meeting, Thailand
 
On Sunday 29 September 2013, the first Thai National PID Patients Meeting was co-organised by IPOPI and the Thai Allergy, Asthma and Immunology Association of Thailand (AAIAT) at the Novotel Ploenchit

First Malaysian PID Patients Workshop
 
The First National Malaysian PID Patients Workshop was co-organised by the International Patient Organisation for Primary Immunodeficiencies (IPOPI) and the Malaysian Society of Allergy and Immunology (MSAI) at the Intercontinental Hotel in Kuala Lumpur on Sunday 27 October 2013,

IPOPI Awareness Campaign Workshop Romania
 
The beautiful city of Sibiu in Romania was recently host to a successful IPOPI Awareness Campaign National Workshop organised with the help of IPOPI's NMO ARPID (the Romanian Association of Patients with PIDs).

IPOPI attends WHO meeting
 
Last October, Martine Pergent, Vice Chair of IPOPI, attended the 64th WHO Expert Committee on biological standardization at WHO headquarters, Geneva.

3rd Latin American Regional Patient Meeting
 
The beautiful city of Santiago in Chile was recently host to the 3rd IPOPI Regional LATAM Patients Meeting held back to back with the LASID CONGRESS, with the participation of 10 countries

Fifth Meeting of the Portuguese Doctors Group for Primary Immunodeficiencies
 
The GPIP (Grupo Português de Imunodeficiências Primárias) is a non-profit association created in 2000 by medical doctors and other professionals with special interest in primary immunodeficiencies (PIDs).

100th J Project Anniversary Meeting Announcement
 
IPOPI looks forward to participating in the 100th J project anniversary meeting which will be held in Antalya, Turkey on March 12-15, 2014.

1st Iberoamerican Congress for Rare Diseases
 
AADIP (Argentinian PID Patient Association) is proud to announce that FADEPOF (Argentinian Federation for Rare Diseases of which AAPIDP is a founding member) was invited to participate in

APIQ Educational Day, Québec, Canada
 
The organizers of the 9th Education Day held by the Québec PID Patients Association (Association des Patients Immunodéficients du Québec - APIQ) could not have imagined having as many patients, families and health professionals attend their event organized to raise awareness around PID and hereditary angioedema.

Second PID family day in Netherlands
 
Stichting voor AfweerStoornissen

On November 2 the Dutch patient organisation held their second family day of this year. The event took place in Amsterdam.

IRIS, change of management, continuity in action
 
IRIS, the French Patient PID organization, has appointed both a new Executive Director and a new chairperson just before the summer. Ms Virginie Grosjean is now the Executive Director and Ms Estelle Pointaux is the new chairperson.

PIDs in 'Health Minute' Radio Show
 
ARPID (Romanian PID patient group) in partnership with local radio Europa FM broadcasted information about PIDs.

New videos about PIDs
 
ImmunoProtect, our Polish NMO, has created several educational videos about PIDs which can already be found online. One of which has now been subtitled in English and can be found below

Meeting of dsai's regional groups
 
The annual meeting of dsai's regional groups took place in Schnaitsee, Germany on November 8-10. The heads of the regional groups met with the dsai-team and dsai's advertising partner BALL:COM.

Patients voice in the evaluation of medicines
 
Jose Drabwell attended the joint meeting of the Patients' and Consumers' Working Party (PCWP) and Healthcare Professionals' Working Party (HCPWP) held at the European Medicines Agency on 26th September 2013.

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