Our community is full of love and February is the perfect month to share it! We try to spread more periwinkle love every day and are sending a big virtual hug to the whole Canadian PH community.
Paroian Family PHA Canada PH Research Scholarship
We are happy to announce that we have awarded the first Paroian Family PHA Canada Research Scholarship to Sylvia Rinaldi, a registered dietitian and PhD student in the Department of Health and Rehabilitation Sciences at the University of Western Ontario. Please see the Research Corner section below for a description of Sylvia’s proposed research.
Since the summer of 2014, PHA Canada has been gathering funds for PH research and, thanks to the tremendous support of our community, we have raised enough funds to award another full research scholarship. We will soon be accepting applications and are hoping to announce the second scholarship recipient in the spring. For more information on the scholarship and to stay informed about upcoming application deadlines, please visit our website
The allocation of PH research scholarships is made possible thanks to the Paroian Family’s generous donations and our members’ continued fundraising efforts. Because research is synonymous with hope, our goal is to continue supporting young Canadian PH researchers. There are many ways in which our community members can get involved. If you would like to fundraise for or make a donation towards our research scholarship fund, please contact Jamie Myrah at email@example.com
Campaign to Treat Rare Disease in Ontario
On February 25th
, MPP Michael Harris (Kitchener-Conestoga) will debate a Private Member’s Motion on creating a Select Committee for Rare Disease Treatment Funding at the Ontario Legislature. Since the beginning of the year, he has been touring the province to meet people affected by different rare diseases, collect their stories, and hear their concerns about access to treatment.
PH treatment accessibility is an important issue for patients in Ontario and throughout the country. We hope that MPP Harris’s initiative brings attention to the need for ALL PH patients to access ALL Health Canada-approved treatments. If you’re an Ontario resident, we encourage you to get involved. Please visit treatraredisease.ca
to find out how you can make your voice heard and to register to attend the motion reading at Queen’s Park on February 25, 2016.
14th Pulmonary Hypertension Symposium Hosted by the BC Pulmonary Hypertension Society
The BC Pulmonary Hypertension Society is hosting its 14th
Pulmonary Hypertension Symposium February 26th
at the Pacific Gateway Hotel, Richmond, BC. The symposium brings together patients, caregivers, medical professionals, and other PHriends of the PH community. For more information on the event and to find out how to register, please visit the event page
or download the event flyer
Silvia Rinaldi, Paroian Family PHA Canada PH Research Scholarship Recipient
Description of Research Project
Pulmonary hypertension (PH) is a serious lung disorder which results from the narrowing of the pulmonary arteries which carry blood from the heart to the lungs. The goal of the study is to determine the nutrition profile of PH patients with various disease subtypes and disease severity. The first objective is to determine the percentage of patients who have higher or lower than normal calorie needs. The second objective is to determine if there are specific nutrients of concern in this population. The third objective is to measure body composition and nutritionally relevant functional markers such as hand grip strength ... To continue reading, please click here.
2016 PH Awareness Campaign
It might seem like November has just come and gone, but we’re already gearing up for our upcoming PH Awareness Month campaign! We are very happy to be collaborating with Cineworks Independent Filmmakers Society
, a Vancouver film cooperative, and filmmaker Tyler Gamsby from Creek Water Media
, to produce a series of PH Awareness videos. PHA Canada is participating in Cineworks’s Play It Forward program, which supports the development of campaign videos by pairing non-profit organizations with independent filmmakers in the Vancouver area. The videos will highlight key challenges faced by the PH community, promote early diagnosis, and educate about PH and its main symptoms.
“Can Opener Chili”
Contributed by: Kate McGoey-Smith, DipNrsg, MSW,RSW, FM, Volunteer Instructor with Fork Smart
Do you have a can opener? Well this prep only takes a few minutes and the results are delicious and nutritious without using any salt or oil!!
- 1 796 ml can of no salt added diced tomatoes—drained
- 1 540 ml can of no salt added black beans—drained and rinsed
- 1 540 ml can of no salt added dark red kidney beans—drained and rinsed
- 1 341 ml can of no salt added peaches and cream whole kernel corn—drained
- 4 tbsp. low salt tomato paste
Steam together for 3 mins in microwave:
- 1 diced green pepper
- 1 diced red pepper
- 1/2 diced red onion
Add all the above ingredients into crock pot and to ‘gourmet’ it up add:
1 1/2 tbsp. of chili powder; 1 1/2 tsp of smoked paprika; 1 tbsp. cumin; 1/2 cup of nutritional
yeast; and 2 tbsp. lime juice (optional: a couple dashes of hot sauce—check sodium and use according to own regime and taste preference).
(for 1 cup serving): 300 calories; Fat 1 g (Saturated /Trans Fats - 0 g); Cholesterol 0 mg; Sodium 12.5 mg; Protein 10 mg; and Fiber 11 g.
Check out “The Fork Smart Podcast”— weekly editions on itunes or forksmart.org
—a great place
to hear helpful, evidence-based nutrition and ways to eat healthier!!