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PULMONARY HYPERTENSION ASSOCIATION OF CANADA ASSOCIATION D’HYPERTENSION PULMONAIRE DU CANADA
PHA Canada eNewsletter: Vol.6 #5 May 2016 
Periwinkle Power Demonstration!
May 5th marked the 5th Annual World PH Day and members of the PH community engaged in awareness-raising activities worldwide! Here at home, we were excited to see so many Canadian members and their supporters proudly wearing purple in support of the cause and in celebration of the strength and resilience of those who are affected by PH! Using the photos shared by members and on social media, we’ve compiled a periwinkle collage extravaganza to celebrate Canada’s contribution to World PH Day! View it here.  

Paint Canada Purple for World PH Day
Thanks to the efforts of our members, monuments across Canada sparkled in purple on the evening of May 5th in celebration of World PH Day. This year, the following landmarks were illuminated: BC Place and Telus Garden (Vancouver, BC); Niagara Falls (Niagara, ON); City Hall (Plessisville, QC); Manoir du Lac (St-Ferdinand, QC); and Fire Hall (Grand-Fall Windsor, NF). The City of Bradford West-Gwillimbury also issued an official declaration for World PH Day. Special thanks to Lynne Allen, Fondation HTAPQ, Loretta Chu, and Tarya Laviolette, without whom these illuminations would not have happened!

PH Awareness Video
World PH Day marked the release of our new PH awareness video and we are thrilled by the enthusiastic response it has received! To date, the video has been viewed over 7,250 times and has also received positive media attention. Thank you to everyone who has promoted this video; we wouldn’t have been able to make it go viral without you! View the video here and don’t forget to share it with your friends! We are excited for this project’s next steps, which include translating the video into French and creating two 30-second Public Service Announcements for November PH Awareness Month.
Summer Community Events
Summer is on its way and our Ontario members have a lot planned to start off the season on a high note! If you are an Ontario resident or will be in the area in the coming weeks, we invite you to participate in one of the following fund and awareness-raising events. They’re a great opportunity to meet other PHighters and caregivers, get involved, and have PHun while making an impact! Smiles guaranteed…

June 11: Volleyball Tournament in Memory of Brenden Brinkworth
­O'Neill's Pub, Long Sault, ON

Contact Shawna Brinkworth for more information or to register for the event.
 
June 25: Third Annual PHA Canada Run/Walk for Research
Ajax Waterfront Trail, Ajax, ON

Contact Renae Mohammed for more information or to register for the event.
 
July 15: GolPH for PH
Lionhead Golf and Country Club, Brampton, ON

Contact Pat Paulin for more information. Register for the event here: phacanada.ca/golphforph

The Great Canadian Giving Challenge
PHA Canada is participating in the Great Canadian Giving Challenge, a month-long donation drive and contest organized by Canada Helps. During the month of June, every dollar donated to PHA Canada through Canada Helps will give us a chance to win an additional $10,000­ donation! We encourage all our supporters to help increase our chances of winning by making a donation - big or small­ - to our Giving Challenge page. What would you like to see PHA Canada do with $10,000? Let us know on Facebook or email us at info@phacanada.ca.

Paroian Family PHA Canada Research Scholarship
We are thrilled to announce that the second Paroian Family PHA Canada Research Scholarship has been awarded to Virginie F. Tanguay, a medical and experimental medicine student at Université Laval (Qubec City), who is affiliated with the Centre de recherche de l’Institut universitaire de cardiologie et de pneumologie de Québec.
 
To read a summary of Virginie F. Tanguay’s Research Project, Metabolic Syndrome and Pulmonary Hypertension, please click here.
 
About Virginie F. Tanguay
Virginie F. Tanguay began her doctorate in medicine in 2012 at Université Laval, Québec, QC. Her internship with the IUCPQ research group in pulmonary hypertension and vascular biology solidified her interest in pursuing research in this area and led her to begin a master’s degree in experimental medicine in 2015. Virginie believes that her master’s degree will enable her to better invest in her patients in the future: “I am convinced that this course of study, in parallel to the pursuit of my doctorate in medicine, will equip me with tools to better face future clinical and research challenges and will make me a more well-rounded clinician.”  Virginie will continue to pursue her objective of bettering the quality of life of patients when she undertakes PH research as part of her postdoctoral studies next year.
Summer Projects
We are excited to welcome two students on our team over the summer! PHA Canada’s offices will be busy in the coming months with extra hands on deck to help us put projects into motion. University of Saskatchewan Masters of Public Health student Faria Khan will complete a practicum at PHA Canada over the summer. She will focus on implementing PHA Canada’s early diagnosis (EDX) initiatives and will help us put our EDX plan into action. Thanks to funding received through the Canada Summer Jobs program, we will also be hiring a student to fill the summer position of Communications Assistant and Francophone Outreach Coordinator. They will work on developing our French content and facilitating increased engagement with the francophone PH community across the country.Emotional Resource: Handbook for PH Patients
We have made new sections of the Emotional Resource: Handbook for PH Patients available on our website. Written by PH Counselor Alyson Quinn, this handbook provides tools and ideas to learn about emotional wellness and self-healing. It has been separated in sections looking at particular emotions that PH patients may experience. Available sections include:
  • Introduction
  • Section 1: Fear and PH
  • Section 2: Anger and PH
  • Section 3: Anxiety and PH
  • Section 4: Guilt, Shame, and PH

 To access this resource, please click here.




Breakthrough could help sufferers of fatal lung diseasePioneering research conducted by the University of Sheffield is paving the way for new treatments which could benefit patients suffering from the fatal lung disease pulmonary arterial hypertension (PAH).
Rare human disease found in dogA rare, severe form of pulmonary hypertension, which up until now, has only been classified as a human lung disease, has also been discovered in dogs according to a Michigan State University study.
Lyengar yoga: Safe enough for pulmonary hypertension patients to reap big benefitA small study found that a yoga regimen of 12 weekly two-hour sessions significantly improved anxiety, depression and quality-of-life scores in adults with pulmonary hypertension.
CTV Barrie World PH Day Newscast: CTV Barrie News at 6 featuring World PH Day spot.
Entrevue sur l'hypertension pulmonaireInterview (in French) with PHA Canada Communications Associate Mariane Bourcheix-Laporte for World PH Day.
La Fondation HTAPQ se peint en mauve pour la causeArticle (in French) about World PH Day events organized by the Fondation HTAPQ in Plessisville, QC.
ERRATUM
Last month’s newsletter omitted to mention that the Downtown Whitby article Mom thriving after double lung transplant also features Carolyn Mathur and the Brooklin Quiz Night events that she organizes. Our apologies.Jalapeno and Salsa Corn Muffins
Contributed by: Kate McGoey-Smith, DipNrsg, MSW, RSW, FM, Volunteer Instructor with Fork Smart 

Muffins (Recipe makes 12 muffins)
Step 1
In a medium–hot frying pan combine:

  • 1 cup of chopped onions
  • 1 jalapeno pepper¾seeded and finely chopped
  • 3/4 cup of frozen or fresh corn
  • 2 cups of chopped baby kale
  • Thoroughly cook and then set aside.

Step 2
In a large bowl, whisk together:

  • 1 cup corn meal
  • 1 cup white whole wheat flour (Robin Hood) or oat flour
  • 1 tsp. baking soda

Step 3
Add to mixed dry ingredients:

  • 1 cup fresh salsa
  • ½ cup unsweetened almond milk
  • Cooked veggies

Step 4
Bake at 400°F for 25-28 minutes, enjoy with fresh salsa. A great breakfast item or snack between meals!
Nutritional Information: ~ 85.7 mg salt per muffin

Fresh Salsa
In a food processor or high speed blender combine:

  •  1 796 ml can of no salt diced tomatoes
  • ½ cup of chopped onion
  • 2/4 cup of chopped fresh cilantro
  • 1-4 oz. chopped green chilies (use fresh chilies to further reduce sodium)
  • 1 ½ tbsp. lime juice
  • ¼ tsp. salt (optional)
  • 2-3 dashes of Tabasco sauce

 
Process until just blended. Use in a variety of dishes.
Nutritional Information: ~1.85 mg of sodium per ounce
 
Check out “The Fork Smart Podcast”— weekly editions on itunes or forksmart.org—a great place to hear helpful, evidence-based nutrition and ways to eat healthier!
 

The Pulse 

  
Community Events: click to read more!


June 11: Volleyball Tournament in Memory of Brenden Brinkworth, Long Sault, ON.
Join the Brinkworth family's volleyball tournament fundraiser.


June 25:
PHA Canada Run/Walk for Research, Ajax, ON. Participate in the Third annual PHA Canada Run/Walk for Research!


July 15: GolPH for PH, Brampton, ON.
Join the GolPH for PH tournament, raising funds for PHA Canada.
 
Hosting a PH event that you’d like us to publicize? Submit your event for our events calendar and we'll include it in The Pulse!
 

Community Photo of the Month



PH medical professionals from the Southwestern Ontario PH Clinic proudly wearing purple on World PH Day!
 
 
CALL TO ACTION!
Take Action PAH Advocacy Campaign


The Take Action PAH advocacy campaign is ongoing. We have joined forces with the Scleroderma Society of Canada (SSC) to advocate for access to treatment for all PAH patients in Canada—no matter their financial situation, province of residence, or private insurance coverage. Together, our organizations have created a joint microsite that features tools to help members of our community express to provincial governments the importance of access to optimal treatment for PAH. Please visit www.takeactionPAH.ca to learn more about our current advocacy campaign and how you can get involved. 
 

Summer's on
its way!
Happy sunshine!



 
 
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