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PULMONARY HYPERTENSION ASSOCIATION OF CANADA ASSOCIATION D’HYPERTENSION PULMONAIRE DU CANADA

PHA Canada eNewsletter: Vol 4 #6 June 2014
Announcement: You can now contribute to PH Research through PHA Canada!
We are thrilled to announce that going forward, PHA Canada will be contributing funds towards research in pulmonary hypertension. We understand that every patient and caregiver desires to contribute to research that aims to find a cure for PH. This will always be a cause that is close to our members’ hearts, and because of that, PHA Canada wants to help. If you are fundraising for PHA Canada, you now have the option of designating some of those funds towards research efforts. To learn more about contributing and why PHA Canada has moved in this direction, please visit our website.


Welcome, Russell!
PHA Canada is excited to have a dedicated campaign developer working on our Early Diagnosis project. Russell Bonaguro is a Masters’ student from Simon Fraser University. This summer, he will develop the campaign that will help the medical community become aware of the importance of correctly diagnosing PH at an early stage. By creating connections with physician groups, targeting conferences and meetings where awareness can be raised, and developing early diagnosis information tools, Russell hopes to promote the possibility that ‘Sometimes it's PH’ during a doctor’s visit. We’re excited to see what this campaign may achieve.


Meet and Greet for Canadians attending the PHA 2014 Conference! 
Will you be attending PHA’s Conference from June 20-22 in Indianapolis? We sure will! PHA Canada will be holding a meet and greet for all of our Canadian members and we’d love to see you there. This will take place on Friday June 20th from 11:30am-12:30pm in meeting room 305. For more information or to RSVP, connect with Angie at aknott@phacanada.ca.

Call for nominations: PHA Canada Treasurer
PHA Canada is currently seeking a dedicated individual to take on the role of Treasurer. Individuals who have a personal connection to pulmonary hypertension are most encouraged to apply. If you know someone who may be a good fit for this position, please forward this newsletter to them. To learn more about what the role of Treasurer entails, please view the complete role description.

Contribute to Connections magazine
We know that you've just received our Spring issue of Connections, and hope that you’ve enjoyed some of the beautiful member stories that were featured. We would love to share your story too. The submissions deadline for our Fall 2014 issue is June 30th. Please send your stories, artwork, photographs or recipes to Bronwyn at bmcbride@phacanada.ca. Remember: your story may have the power to change someone’s life. Please share it with our community!


Sodium Counter tool! 
For many patients, a low-sodium diet may contribute to reduced swelling and edema and reduced fluid retention. We’ve located a fantastic interactive resource which may help patients to learn about the sodium content of different foods. Check out this easy-to-use sodium counter! Visit https://www.healthyfamiliesbc.ca/sodium-sense


Low fat Greek pizza sauce
Pizza with this sauce is a quick meal that takes less than 30 minutes of prep! Check out wholicious.net to get “fork smart”.

Ingredients and steps (base for approx 8 pizzas):
-Eggplant – 1 large
-Garlic – 2 cloves peeled
- Lemon Juice – fresh – 2-4 tBp
- Tahini – 1 tBp
- Chipotle Chile powder – ¼ tSp

Split eggplant from stem to base. Place flesh down on a parchment lined baking sheet, and bake at 425 F for 30 mins. After it is cooled enough to handle, scrape the flesh out of the skin and into the food processor. Add remaining ingredients and blend together until smooth. This is your pizza sauce!
To use, spread this mixture on pitas or pre-made pizza bases*, and top with your choice of fresh or grilled vegetables. Bake pizzas on baking sheet for about 7 mins (until edges are crispy) at 400F. Enjoy!

*Be sure to verify the sodium content of your pitas or pizza bases

Poorer Patients Present with More Advanced PH
Pulmonary hypertension patients from lower socioeconomic groups present for initial evaluation at a more advanced stage of PH.
Pickering family raises awareness of rare lung disease
A Pickering family is trying to raise awareness of pulmonary hypertension, a rare and potentially fatal lung disease.
Higher BMI associated with lower mortality risk in patients with severe PH
In patients with congestive heart failure, obesity and a larger waist size have paradoxically been associated with a better prognosis.
 
For more PH news: www.phacanada.ca/news
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The Pulse 
 

Share your story 
We love your stories and events! PHA Canada exists for our members: our goal is to share resources and connect our community. Submit your stories for Connections & the Pulse at: connections@phacanada.ca
Community Events: click to read more!
 
Jun 08: 1st Annual PHun Picnic
Emily Murphy Park, Site #1, 11904 Emily Murphy Park Road, Edmonton, Alberta
12- 4PM

Jun 09: Patient support meeting
JGH, Room E-209, Jewish General Hospital
1:30- 3:30PM
 
Jun 14: An introduction to advocacy and media relations
Novotel North York
12 - 3PM
 
Hosting a PH event that you’d like us to publicize? Submit your event for our events calendar and we'll include it in The Pulse!
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