PHA Canada’s Monthly Electronic Newsletter
Vol 4 #5 May 2013

2012 National Conference - Key dates and deadlines!

You may have already visited our 2013 National Conference website. We anticipate this year’s conference to be the highest attended in PHA Canada history! We want to support each of you in attending the conference, because it is truly your conference. Mark these key dates on your calendar to ensure your successful registration!

Early Bird deadline: June 1st. Register Now!
General deadline: August 23rd.

Outstanding Community Member Awards
Nomination submission deadline: June 30th.
Nominate a Candidate online.
Conference Scholarships
Scholarship Application Deadline:  July 15th.
Apply for scholarship online.
In every issue of the Pulse between now and September, we will feature one “teaser” about what’s to come at our National Conference. We can't wait to see you in September!
*Note: Apart from PHA Canada’s reserved block, the conference hotel is completely booked during the weekend of the conference. The reserved rooms fill quickly, so please book as early as possible. Once the block is full, arrangements will need to be made at neighbouring hotels.*

What did YOU do for World PH Day?

May 5th was World Pulmonary Hypertension Day. We at PHA Canada want to know: what did YOU do to recognize World PH Day? We want to feature photos and stories of what your local PH group events in the next edition of The Pulse. We'll also select ONE of your World PH Day events to receive a full feature in September’s issue of Connections magazine! To share, send your photos and stories to: 

News and Events
April 19th: Death of Dr. Robyn Barst, PH Pioneer
We at PHA Canada regret to hear of the death of an irreplaceable member and mentor in the PH community: Dr. Robyn Barst. Dr. Barst was one of the first doctors behind PH research in the 1980s, and since then had dedicated her life towards the health and well-being of patients. Dr. Barst also acted as a mentor to other physicians, consulted with corporate companies developing PH treatments, and served as a member and Chair of PHA (USA)’s Scientific Leadership Council and as a member of PHA (USA)'s Board of Trustees. Most recently, Dr. Barst was involved in the founding of the Robyn Barst Pediatric PH Research Fund. Dr. Barst's family has requested that donations in her memory be made to Robyn’s Fund. Visit to contribute.
Source:  PHA Daily Beat

Cornwall Stride for Breath Fun Run/Walk! 
On May 11th, Shawna Brinkworth and the Cornwall PH community will host the first annual Stride for Breath 5k Run/Walk event. This fun 5k race is open to anyone. For more information and to register, visit their fantastic event page.

2nd Annual PH Kids Golf Classic
Plans are well under way for the 2nd Annual PH Kids Golf Classic: an opportunity to enjoy an afternoon at the prestigious Mills Run Golf Club while raising funds for programs to support kids living with PH and their families. While the event will be held on August 24th, 2013, registration is now open! The organizers are also looking for event sponsors and volunteers for before and day-of the event. To learn more and to register or volunteer, visit the PH Kids Golf Classic website.

Inside PHA Canada

Call for Board Nominations
Have you ever considered becoming more actively involved with PHA Canada? We are currently seeking nominations for the Board of Directors of PHA Canada for the 2013-2014 term.  There are many ways that you can contribute: PHA Canada seeks a wide variety of candidates who bring varied skills to the Board.  This includes patients, caregivers, medical professionals or those with particular professional skills in areas of Accounting, Marketing, Fundraising and others.
If you or someone you know desires to become more actively involved with the PH community in Canada, we strongly urge you to put your name forth for candidacy in our upcoming Board election. This will take place at our Annual General Meeting on Sunday, September 22nd in Ottawa, Ontario in conjunction with the 3rd National Pulmonary Hypertension Conference. Please contact us at 1-877-774-2226 or to learn more.

Here we grow again: we've moved!
In April, the PHA Canada office moved locations. While in the same building, the new office features more space to hold meetings and to welcome volunteers. We would like to extend an open invitation to visitors in Vancouver to drop by our new office. In addition, please make note of PHA Canada office’s new suite address: suite 208. You may view our updated complete address at the bottom of this email.

Resource Tip of the Month - Events for PHA Canada 
Have you ever considered making PH awareness the focus of a birthday or anniversary party? What makes social get-togethers unique is that they are gatherings of people who care for one another. Your special events are extremely meaningful occasions, and are made even more so when they represent a cause that has personally affected your life or the life of a loved one. We at PHA Canada would love to help you dedicate one of your special occasions towards the cause of PH. Write to us at to learn more.

Low Sodium Recipe of the Month - Spanish Rice
World PH Day in May originated from the Asociación Nacional de Hipertensión Pulmonar: The Spanish  PH Association. In honour of their initiative, May’s recipe is a heart-healthy Spanish rice!

Ingredients: (serves 3)

  • 2 tablespoons olive oil
  • 1 fresh tomato cut into bite-sized pieces
  • 1/2 cup chopped green pepper
  • 1/2 cup chopped onion
  • 18 oz. can of tomato sauce (with no added salt)
  • 2 cups cooked brown rice
  • 1 teaspoon Mrs. Dash original seasoning
  • 1 tablespoon grated parmesan cheese

Method: Heat oil over medium heat in a large frying pan. Add peppers, onion and tomato. Stir fry until peppers soften. Add tomato sauce, rice and Mrs. Dash. Simmer for 5-10 minutes. Serve with parmesan cheese.  
Nutritional info: PER 1 cup SERVING:  197 calories, 6g total fat, 1mg cholesterol, 43mg sodium, 32g carbohydrate, 3g dietary fiber, 0g sugar, 4g protein

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Share your story 
We love your stories and community events! PHA Canada exists for our members: our goal is to share resources and connect our community. Submit your stories for upcoming editions of Connections & the Pulse at:

Upcoming Community Events: click on each event to read more!

May 5: 6 Minute Walk and Family Fun Day
Greely Legion, 8021 Mitch Owens, Greely, ON, 12 - 6PM

May 7: PH Support Group Meeting - Southern Alberta Chapter
Louise Riley Library, 6:45 - 8:30PM

May 11: Cornwall Stride for Breath 1st Annual 5K Run/Fun Walk
Gazebo behind RCAF building, 9AM- 12PM

May 11: London PH Support Group Meeting
London Public Library, Westmount Branch, 1:30 - 3:30PM

June 1: 
Toronto PH Support Group Meeting
Condo Party Room,18 Sommerset Way, Toronto, ON, 1:30- 4:00 PM

June 4: 
PH Support Group Meeting - Southern Alberta Chapter
Louise Riley Library, 6:45- 8:30 PM

June 8: 
London PH Support Group Meeting
London Public Library, Westmount Branch, 1:30- 3:30 PM

Hosting a PH event that you’d like us to publicize? Submit your event for our events calendar and we'll include it in upcoming issues of The Pulse!

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