Help Us Raise Awareness By Sharing your PH Dream!
PHA Canada is currently working on an awareness project and we need your help! We are putting together a short video that raises awareness of PH by showing the dreams that those affected by PH (patients, families, friends and even medical professionals) have with regards to this disease. Whether you are a PH patient, caregiver, family member, friend or medical professional working in the field of PH, we ask you to submit a photo telling us your PH dream.
Your photo should be high resolution (200 dpi or more) and should include a message on a white board that completes the sentence "I dream of a day when...". This sentence should state what your dream with regards to PH is - for example I dream of a day when... "I can chase after my kids" or "I don't need oxygen". Be as creative as you like with your dreams. We will be compiling all of the photos received in to a short awareness video set to the "Let Me Breathe" song and including facts about PH and what it means to live with this rare disease. The deadline for photo submissions is Monday, May 28th
. Photos can be sent via email to firstname.lastname@example.org
Pennies for PH Challenge: Who will collect the most?
Many Canadians have already gotten on board with the "Pennies for PH" campaign since our last issue of the Pulse was sent out! Support groups are coming together to think of creative ways that they can encourage people to donate their spare change to support the work of PHA Canada!
With this issue of the Pulse we are issuing Pennies for PH Challenge to encourage a little healthy, friendly competition.
The Toronto Chapter has already raised $90 in pennies and is continuing to go strong - let's see which province can win this challenge. The winning person or group will end up with some fun PHA Canada goodies. Contest runs until the penny is no longer with us.
8.5x11 posters and 4x6 stickers (to stick to your penny jars) are now available - see the image on the right hand side - for those wishing to take part in this fundraising opportunity. Posters and stickers can be ordered by contacting our office.
In order to motivate you to get your penny collecting started we would like to share a poem, which PH parent, Katherine Huisman from Manitoba wrote in honor of her son. Thank you Katherine for sharing this very inspirational piece of writing with our readers! Katherine has given permission for anyone collecting pennies to use the poem to help spread the word...
Pennies for PAH
by Katherine Huisman
My middle son is very ill
Each day he takes many a pill
This disease of his makes me pout
An illness not many know about
Although he’s young and quite durable
For now the affliction is not curable
Right now his heart and lungs are lasting
Research and knowledge are amassing
We know there’ll be a cure one day
For now we just trust and pray
Till then I’ll FaceBook, text, and mention
To raise awareness of Pulmonary Hypertension
Please join me, one, two and many
And donate the soon useless penny
So others will know we need a cure
For the 2000 Canadians who daily endure
With no breath, fatigue, blue lips, and fainting
This is not a life worth painting
If you are interested in getting involved in the "Pennies for PH" Campaign and would like to order material please contact us at: can receive materials by contacting us at email@example.com
Scholarships Awarded for PHA Orlando Conference
PHA Canada is pleased to announce that we have awarded a total of $12,700 in scholarships to 7 applicants in order to make it possible for them and their families to attend the upcoming 10th International PH Conference and Scientific Sessions, hosted by PHA USA, which will be held in Orlando, Florida from June 22-24th. A total of 13 people will be attending this conference thanks to PHA Canada scholarships.
The International PH Conference is a wonderful opportunity to meet other PH patients and their families from around the world and to learn first hand about ongoing research, treatments and many other topics in the field of PH. Special programming is available for children and teens and there are sessions that are tailored to patients, caregivers, family members and medical professionals. Time still remains to register for this truly incredible event. We strongly encourage all to attend this wonderful conference.
For more information, to view the conference schedule or to register, visit www.phassociation.org/conference.
There is Still Time to Register for PH Kids Golf Classic
The PH Kids Golf Classic is fast approaching but space still remains for those wishing to take part. The event is being held at the Mill Run Golf Course in Uxbridge, Ontario on Saturday, May 12th
. Funds raised through
the PH Kids Golf Classic will go to support the work of PHA Canada through projects to support children with PH and their families through educational opportunities. A portion of the funds raised will go towards funding scholarships allowing families of children affected by PH to attend the 2012 International PH Conference in Orlando, Florida. The PH Kids Golf Classic is committed to assisting as many PH Kids as possible to attend this life-changing event.
This wonderful event is being organized by PH Parents Bonnie and Keith Blenkinsop and their committee. The day will consist of 18 holes of golf, prizes, lunch and a grand buffet dinner. All participants will have their names entered in to a draw for a flat screen TV and additional ballots will be earned for pledges collected. There are many ways to get involved by golfing, sponsoring a portion of the event, attending the dinner and more. For more information or to register or sponsor this event, please visit the PH Kids Golf Classic page