PHA Canada eNewsletter: Vol4 #5 May 2014
Special World PH Day edition!
This early edition of the Pulse e-newsletter focuses on the 3rd Annual World PH Day on May 5th and the exciting events that our organization and community has planned!
CN Tower lights up for World PH Day!
On May 5, Toronto’s CN Tower will light up in purple and white for World Pulmonary Hypertension Awareness Day! A standard light show will run for 8 minutes at the top of every hour. As if this weren't enough, Toronto deputy Mayor Norm Kelly has mandated that City Hall will be lit in purple and white as well. This astounding visual display for PH awareness was achieved only through the incredible lobbying efforts of Loretta Chu
at the Toronto Chapter. If you're in the area on May 5th
, please snap a photo of the CN Tower and send to email@example.com
The Lend a Hand campaign
Our largest initiative for the 3rd Annual World PH Day is the Lend a Hand campaign. In this campaign, PHA Canada provides printed paper handprints and campaign materials to community members, who collect signatures on the handprints and then mail them back. Our goal was to collect 3000 signatures this year, but our community has ordered over 11,000 handprints! We are blown away by the dedication of our community this year, and are SO excited to have the final handprint count. Please send photos & stories of your Lend a Hand events to firstname.lastname@example.org to share with our community on Facebook! Reminder: the deadline for sending back handprints back to PHA Canada is May 31st!
The Burden of Illness survey Media Launch
Because our survey was the first large-scale formal review of the Canadian PH population, we want the results of the Burden of Illness survey to make a big media impact. We’ll be publishing the survey results through press releases, traditional media and online on World PH Day! Keep an eye out for our patient spokespeople in the media during the week of May 5th. We will be posting updates on our Facebook page as we learn of media activity!
The CTEPH Awareness social media campaign
To increase awareness of CTEPH, a unique type of PH, we’re launching a targeted social media campaign. The campaign will focus on Twitter and Facebook, and will aim to reach the general public and individuals who are at risk for CTEPH. Our CTEPH campaign also features fantastic personal story videos from some of our community members who have experienced the challenges of CTEPH! The website for the CTEPH campaign will be launched on May 5th: check PHA Canada’s website and Facebook for the web link.
Share your story
We love your stories and events! PHA Canada exists for our members: our goal is to share resources and connect our community. Submit your stories for Connections & the Pulse at: email@example.com
Community Events: click to read more!