PHA Canada eNewsletter: Vol4 #7 July 2014

The Canadian anti-spam legislation

On July 1st, new Canadian anti-spam legislation came into effect. The new laws surrounding spam mean that if PHA Canada doesn’t have your explicit consent, we cannot contact you by email. Our aim is to support our community through our e-newsletters and emailers regarding special events. Please help us to keep communicating with you: give your consent to receiving our emails by clicking the button below.

If you do not click, we will be unable to contact you electronically. To opt back in to our e-newsletters, please re-subscribe on our website at any time.

Call for Early Diagnosis PHOTOS!

Though November Awareness Month is many months away, we’re already planning for a unique early diagnosis campaign which will run throughout the month. We’re collecting photos of our members telling their diagnosis stories on a sheet of paper. Please participate in this campaign by sending YOUR photo with your misdiagnoses and number of months till proper diagnosis. Little Riley’s photo serves as a perfect example. Your diagnosis story will contribute to public awareness of how important early diagnosis is. Please send your photo to Bronwyn at Thank you for your contribution!

Are you a traveller?
PHA Canada wants to hear from our members who are PH patients with lots of travel experience. Where have you been able to travel? Have you been able to get travel insurance? Through which companies? Because travelling is a challenge for many PH patients, we’d like to share resources to help make it easier. Please email us with your travel insurance experiences at

PHA Conference in Indianapolis & your Conference session ideas!
2 weeks ago, PHA Canada staff attended the PHA Conference in Indianapolis. We were thrilled to meet up with many of our Canadian phriends there! Attending the many fantastic sessions and hearing the inspiring speakers encouraged us to consider our own Conference, which will be held in May, 2015. We’re beginning to create the program for this Conference, but we can’t do it without your input. If you have an idea about a Conference session you’d like to attend or speaker you’d like to hear, please email us at and we’ll add it to our list!

Anonymous suggestion box
Did you know that we added an anonymous suggestion box to our website? If you've ever had questions, comments or ideas that you felt too shy to share, now is the time! Leave an anonymous suggestion through our website form today at

Mushroom burgers by Kate McGoey-Smith
It’s barbecue time – this is a delicious and nutritious burger! Bake it and warm up on the barbecue or slip it in the toaster – tastes great the next day! Check out to get “fork smart”.

 Ingredients and steps:

-2 cups cooked brown rice
-1 large white onion, thinly sliced
-¼ cup low sodium veggie broth
-1 tbs garlic cloves, minced
-2 tbs lemon juice
-2 tbs ground pepper
-1 tsp no salt tomato paste
-24 oz mushrooms
-1 box lite silken tofu, grated
-2 cups rolled oats

Place onion in pot with 2 tbs water and the veggie broth. Cook on med-high until caramelized. Add garlic, lemon juice, pepper and tomato paste. Add mushrooms and simmer for about 40 mins. Remove pot from stove and add tofu, oats and brown rice. Remove 1/3 of the mixture and blend it in the food processor until it forms a paste. Add this back into the rest of the mixture and mix until combined. Form patties and bake on a parchment lined baking sheet for 15 mins at 350 in the oven. Enjoy!

Severe pulmonary arterial hypertension secondary to lupus in the emergency department: Proactive intense care associated with a better short-term survival
The aim of the current prospective study is to initiate a proactive intense care strategy on severe systemic lupus erythematosus.
Hidden Origins Of Pulmonary Hypertension Revealed by Network Modeling
In a groundbreaking study, researchers from Brigham and Women’s Hospital (BWH) have identified a related family of molecules believed to be a major root cause of pulmonary hypertension.
Gender–dependent Influence of Endogenous Estrogen in Pulmonary Hypertension.
Abstract Rationale: The incidence of pulmonary arterial hypertension (PAH) is greater in women suggesting estrogens may play a role in the disease pathogenesis. 
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The Pulse 

Share your story 
We love your stories and events! PHA Canada exists for our members: our goal is to share resources and connect our community. Submit your stories for Connections & the Pulse at:
Community Events: click to read more!
Jul 12: PH Support Group - London Ontario
Westmount Branch of the London Public Library, 1:30 - 3:30pm
Grace Wickenheiser will be telling about her experiences at the International PHA Conference in Indianapolis June 19 - 22, 2014. After this short presentation, there will be time for an open discussion on life with PH.  

Jul 27: PHA Canada Run for Research
Ajax Lakefront - The very end of Shoal Point Road, 9am – 1pm
This 5 kilometre run/walk fundraiser will take place on Sunday July 27, 2014 with registration beginning at 9am and the run starting at 9:30am.

Hosting a PH event that you’d like us to publicize? Submit your event for our events calendar and we'll include it in The Pulse!

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