PHA Canada Alberta Forum
Attention Alberta residents, online registration for the PHA Canada Alberta Forum is now open! Registration is free, but attendees must register to receive lunch at the event.
Date: October 1st
Time: 10 a.m. to 4 p.m.
Location: Radisson Hotel, Red Deer
Visit www.phacanada.ca/albertaforum to learn more and register.
PHA Canada believes in bringing the PH community together. We are committed to creating opportunities for our members to learn more about PH and to make valuable connections with one another. The Alberta Forum is part of our commitment to making sure that such events are made available to as many people–in as much of the county–as possible. The convenient location of Red Deer has been chosen to facilitate access from both Edmonton and Calgary. Additionally, limited financial assistance will be available to help qualified individuals from Alberta attend. For more information about receiving assistance, please contact our Executive Director, Jamie Myrah, at firstname.lastname@example.org
or 1-877-774-2226 x 101.
The Forum’s program is currently being put together by a great provincial steering committee consisting of Lynn-Marie Cox, Marcin Gozdzik, Gail Nicholson, Cheryl Salvador, Stephanie Ricci, and Heather Zloty. Attendees can look forward to learning more about the importance of strong social support systems, how to cook low sodium meals, and tips and tricks from experienced patients and caregivers for living well with PH. There will also be dedicated speakers on pediatric issues, as well as opportunities to reunite with old friends while making new connections. Watch the event website for upcoming details on speakers and the Forum agenda!
GolPH for PH (July 15th, Brampton, ON)
For the second year in a row, the Paulin Family organized a golf tournament in support of PHA Canada’s programs and services. Green may usually be a golfer’s favourite colour, but thanks to the efforts of the Paulin Family, periwinkle was top of mind for the 70 event participants at the Lionhead Golf and Country Club in Brampton. With over $18,000 raised, we can say that this year’s tournament was definitely a hole in one! We are amazed at the success of this event and grateful for Pat, Joan, and Brooke Paulin for their passion and their commitment to helping us achieve a better life for all Canadians affected by PH.
PHA Canada thanks everyone who made this year’s GolPH for PH possible, from the golfers, donors, and volunteers to the very generous event sponsors: Actelion Pharmaceuticals Canada, Bayer Inc., Unither Biotech Inc., Starbucks, Mimecast, Erco Worldwide, and Weber BBQ.
Canada Cares National Caregiver Awards
Caregivers and medical professionals are essential to PH patients’ wellbeing by providing support in countless ways. We invite you to acknowledge the contributions of PH caregivers and medical professionals by nominating your support person, PH doctor, or PH nurse for a Canada Cares National Caregiver Award. Your caregiver could win a $10,000 One Wish Award! Nominations are accepted until September 30th
, 2016. To learn more and submit a nomination, click here
Vote for your Favourite PH Awareness Flag
Competition is now open! Cast your vote to determine which flag design will become PHA Canada’s official PH Awareness flag. The winning design will be produced in time for November PH Awareness Month, for use by members at awareness and fundraising events or to hoist at their local City Hall.
Voting will be open until Sunday, September 18th
. There’s no limit on how many times you can vote! Click here to vote for your favourite design
. The winning design will be announced on our website and Facebook page on Monday, September 19th
If you’re planning an event for November Awareness Month and want to add a touch of periwinkle power with an official PHA Canada PH Awareness Flag, please contact our Communications Associate, Mariane Bourcheix-Laporte, at email@example.com
. Act fast to claim your flag, as only a limited number will be available.
We can’t wait to see our colours hoisted across the country in November!
Emotional Resource: Handbook for PH Patients
We have made new sections of the Emotional Resource: Handbook for PH Patients
available on our website. Written by PH Counselor Alyson Quinn, this handbook provides tools and ideas to learn about emotional wellness and self-healing. It has been separated in sections looking at particular emotions that PH patients may experience.
New sections include:
Section 5: Loneliness and PH
Section 6: Sadness and PH
Section 7: Self-Pity, Entitlement,
Section 8: Compassion for Self and Others and PH
Section 9: Patience and PH
Section 10: Invalidation and PH
Section 11: Self-Care and PH
Section 12: Courage and PH
To access this resource, please click here.
PH School Package
Back to school time brings worries both for little PHighters and their parents. Our PH School Package can help alleviate some of the anxiety that a new school year brings by helping you to inform your school about your child's needs and condition. We’ve compiled easy-to-use checklists, template letters and drug info sheets: find them at phacanada.ca/pediatrics
PAH-Associated Conditions: Systemic Sclerosis and HIV
Contributed by Mohamad Taha, PH Researcher
In this issue of the Research Corner
, we will address some questions regarding medical conditions that can be associated with pulmonary arterial hypertension (PAH), with a focus on systemic sclerosis and HIV associated PAH.
Can other diseases lead to development of PAH?
Sadly, yes. According to the most recent classification, PAH can appear associated to several disorders:
- Connective tissue diseases - diseases affecting connective tissue, mainly joints and skin such as scleroderma and lupus .
- HIV infection - infectious virus that leads to immunodeficiency
- Portal hypertension - increased pressure in the portal venous system that comes from the stomach, intestine, spleen and pancreas(i.e. abdominal blood supply from the intestine to the liver), also known as portopulmonary hypertension (POPH)
- Congenital heart diseases - problems with the heart anatomy/structure present at birth
- Schistosomiasis infection - a disease caused by a parasitic worm common in Africa, Asia, and South America
To continue reading, please click here
Nutritional information: Per serving (recipe makes 6) 176 kcal; 3.9g fat; 31.6g carbs; 5.4g protein; 0g cholesterol; 13mg sodium.