PHA Canada’s monthly electronic newsletter
Vol 2. No. 10 October 2012

In this issue:


With November just around the corner, preparations for this year's November Awareness Month campaign continue to unfold.  As we revealed in our September issue of the Pulse, we are very pleased this year to launch an exciting new program and signature fundraising event called the “6 Minute Walk for Breath”.

We are very excited to have booked four large Awareness Month launch events throughout Canada:

  • Vancouver, British Columbia - November 1st at Vancouver Public Library (central branch) 350 West Georgia Street. Event starts at 11:30 am.
  • Edmonton, Alberta - November 4th with location to be announced,
  • Ottawa, Ontario - November 3rd at the Ottawa Heart Institute and
  • Toronto, Ontario - Saturday, November 24th with location to be announced.

In addition to these events hosted by PHA Canada, the Montreal support group will be holding their own walk event on Sunday, November 4th at the YMCA and PHA Canada is pleased to offer them our support.  Funds raised at this event will support the Jewish General Hospital.

The BC PH Society will also be hosting a 6-minute walk for breath on November 17, 2012 at the Terminal City Club in Vancouver, with a lower mainland support group meeting to follow.

If one of these events is happening near you, we encourage you to come out and join us!  Or, you may decide to host your own event. Contact us at to request your own walk kit that contains everything you need to prepare for your own walk event. Kits will be available in mid-October. We would like to challenge all members of PHA Canada to come up with a creative way to hold a walk in your community. Walks can be held in your workplace, your child’s school, as a community event, with your support group or with any other group to which you belong.



PHA Canada continues to grow: the Board and Staff of PHA Canada are pleased to welcome a new staff member to our team. Corinne Crichlow has accepPhoto: Corinne Crichlowted the position of Communications Associate and began working for PHA Canada on October 4th. Corinne has a background in translation, law and sociology, and has worked for many years within the Canadian Public Service. Corinne has extensive experience managing public relations, media relations and government relations initiatives.

Corinne will be working with us three days a week and her major focus will be to manage our communications function which includes developing public relations and media strategies, managing our PHA  newsletters, our website as well as other PHA communications tools.

Join us in welcoming Corinne to the team!

If you'd like to get in touch with Corinne, please contact her via telephone at 604-682-1036 xt. 8259 or via e-mail at


Help PHA Canada make an impact this Awareness Month and share your pulmonary hypertension story through a personal page. Raise funds for PHA Canada programs while educating your friends and family about PH with just a few clicks from the comfort of your own home!

Your story matters and we've created personal pages for our members to help PHA Canada raise awareness and funds online. Creating your own personal page
 is an easy way to reach a number of potential donors without ever having to leave the house. Setting up your page is quick and easy to do. It is also a way to raise additional awareness about Pulmonary Hypertension as it allows you the opportunity to share as much as you would like about your own personal journey.  We encourage you to include your name, photos, your personal story and any other information you like in order to personalize your page and give your readers a better understanding of what you face each day.

Family members and caregivers also have the opportunity to set up their own personal pages "In Honour" of a loved one.  This is a great way to get involved and offer support to someone close to you who has been diagnosed with PH. "In Memory" pages are also available to honour those who have passed.

Visit our website to learn how you can set up your own personal page and set a fundraising goal for the month of November.  This is a great way to involve your friends and family and you can also ask them to share your page with others.

For a great example of how to set up your page, visit the personal page of Toronto Chapter Co-Leader, Loretta Chu.  Loretta has done a wonderful job of sharing her own personal story in a compelling way and has shared it with her family and friends with donations already starting to come in!  The user-friendly program allows you to create personalized invitations to send to members on your contact list quickly and easily. 

REMEMBER: Actelion Pharmaceuticals has agreed to match all donations that are collected throughout the month of November up to $10,000!  This means you have the potential to turn every dollar you raise in the month of November in to $2! What better time to get involved!

If you'd like to learn more about setting up your personal page, or need any technical assistance, please send an e-mail to our office at or call 1-877-7PHACAN (1-877-776-2224).

The members of the PHA Canada Toronto Chapter are busy preparing for the 4th edition of their very popular fundraiser: "Let Me Breathe" - A Vegas Fundraiser for Pulmonary Hypertension, which will take place at Brebeuf College School at 211 Steeles Avenue, East in Toronto on Saturday, November 10th from 7:00 PM to 12:00 AM. With over 200 guests expected, the night will feature casino game favourites, live entertainment, live auction, door prizes, raffles and much more! This year they have secured over $3000 in prizes! This event is a wonderful evening of fun and entertainment for a great cause. Over the past three years, the Toronto Chapter has raised over $35,000 [need to confirm] to support PHA Canada programs through this ever popular event. Tickets can be purchased at the door and the cost is $25 per person. You must be 19 years or older to attend. For more information contact Toronto Chapter Co-Leader, Loretta Chu at or visit their Facebook page:Let Me Breathe 2012

PHA Canada has been working in conjunction with the BC Pulmonary Hypertension Society (BCPHS) on the creation of a Lower Mainland Support Group. The first meeting of the group was held in mid-September. While the initial meeting was a small gathering, it was very productive. The next meeting of the group will be held on November 17th at the Terminal City Club immediately following a planned 6-minute Walk for Breath fundraiser being organized by the BCPHS.

If you are interested in participating in the support group, or to learn more about the November 17th event, please contact our office via telephone at 604-682-1036, or via e-mail at


Based on the invaluable feedback from our members, who have told us that they are interested in learning more about the workings of PHA Canada we bring you a new feature: Inside PHA Canada.

This is a feature which will be included in each issue of the Pulse and in Connections.

If you have a question about some aspect of how PHA Canada works please send it to us at:


The 2012 AGM was held on September 8th in Toronto at the Sheraton Airport Hotel. The day started with a meeting of the outgoing Board of Directors and was followed by a meeting of the Corporate Committee. 

There were approximately 30 PHA Canada members in attendance at the AGM. President Frank Poon gave an update on the past year's activities and Treasurer Maureen Tymkow presented the past year's financials. The membership voted on a new Board of Directors and a resolution was passed to increase the number of Directors from 11 to 12. We are pleased to welcome Charanpal Brar, Roberta Massender and Harry Rozakis to the PHA Canada Board of Directors.

We would like to thank the following Directors who chose not to resubmit their candidacy for their years of service; Jennifer Gendron (Jennifer will be staying on as a PHA Canada staff member) and Sandy Metcalfe. Thank you both for your tireless efforts. 

After the AGM, the new Board met and elected the following officers:
Frank Poon will remain as President;
Charanpal Brar becomes Treasurer; and
Lynn-Marie Cox becomes Secretary.

If you would like to learn more about the Board Members, please visit the website for their photos and bios.


After receiving a number of great submissions, the Conference Committee has completed the difficult task of selecting the winner of our conference theme contest.  We are pleased to announce the theme for the 2013 Ottawa Conference will be "Keeping the PHlame of Hope Alive". 

Congratulations to Marilyn Stubberfield who came up with the winning submission!  Marilyn will be receiving a complimentary registration for the 2013 conference.  Thank you to all those who sent in their submissions for our contest.

Watch for more conference details in upcoming issues of the Pulse or visit the 2013 Conference web page!

Low-sodium recipe of the month:
Turkey Stuffing with Very Low Sodium

As you gather the family around the Thanksgiving table, enjoy this low sodium version of a traditional favorite!

Low-Sodium Stuffing
  • Prep/Total Time: 1hr 15 min
  • Yield: 12 Servings
  • 1 1/2 lbs italian milano sourdough bread, toasted and cubed
  • 1/2 cup unsalted butter
  • 2 cups onions, chopped
  • 2 cups celery, chopped
  • 2 cups mushrooms, chopped
  • 2 medium apples, medium to large apples, chopped
  • 1 cup dry-roasted pecans, chopped
  • 1/4 teaspoon ground sage
  • 1/2 teaspoon ground thyme
  • 1 teaspoon ground pepper
  • 2 teaspoons garlic powder with parsley (Lawry's California Blend)
  • 1 cup apple juice
  • 1/2 cup dried apricot, chopped (optional)


  1. Bake Italian Milano Sourdough Bread in bread machine. Slice ten 3/4- to 1-inch slices from loaf. Toast each side on an ungreased baking sheet in your oven under the broiler until just golden brown. Cool and cut into small 1/2-inch cubes. You'll get about 16 cubes from each slice of bread.
  2. Melt butter in large saute pan or 6-quart pan.
  3. Saute onion, celery, mushrooms, apples, and pecans together.
  4. When vegetables and apples are cooked through, add bread crumbs and spices.
  5. Coat with buttered mixture and add apple juice to moisten. Add optional dried apricots.
  6. When ready to bake, put mixture into lightly oil-sprayed baking dish (9 x 13) and bake at 325 degrees Fahrenheit for 20-30 minutes. If it's been refrigerated, heating time will take longer.
  7. Serve hot.
Nutritional Analysis:

Serving Size: 1 (244 g) Servings Per Recipe: 12

Amount Per Serving       % Daily Value
Calories 734.9
Calories from Fat 531             72%
Total Fat 59.0 g                      90%
Saturated Fat 9.4 g                47%
Cholesterol 20.3 mg                6%
Sodium 362.8 mg                  15%
Total Carbohydrate 47.7 g    15%
Dietary Fiber 9.3 g                37%
Sugars 9.1 g                         36%
Protein 12.2 g                       24%


The U.S. Food and Drug Administration (FDA) has issued a decision regarding sildenafil (Revatio) for pediatric usagen. More information can be found in FDA’s Medwatch and Pfizer’s statements. Based on an interpretation of the same study used in the FDA's decision, the European Medicines Agency has approved the use of sildenafil (Revatio) in children. PHA Canada’s Medical Advisory Committee in conjunction with pediatric PH specialists across the country will be releasing a st..... [more]

For more PH news visit the newsfeed on our website: or subscribe to the PH News RSS feed

The Pulse
Vol. 2 No. 10 Oct 2012
Connect with PHA Canada:


Share your story
PH Resources: your help needed
Community Events Calendar

We are looking for articles to include in our Fall issue of Connections as well as in The Pulse monthly e-newsletter. Do you have a story, a recipe, tips on living with PH or something else you would like to share? Send it to us at

We are compiling a list of resources available to patients across the country, if you’ve taken advantage of any resources available in your province, or city (through government programs, other foundations etc.) please share the information with us so we can help others in your region. Email your resource info to:


(click the event to go to information for each event)

Oct 13
Condo Party Room
1:30 PM - 4:00 PM

Oct 23
#309 - 1507 Centre A Street N.E
7:00 PM - 9:00 PM

Nov 03
Brebeuf College School
11:00 AM - 1:00 PM

Nov 10
Brebeuf College School
7:00 PM - 12:00 AM

Nov 20
Eau Claire Market Community Room
7:00 PM - 9:00 PM

Hosting a PH-related event that you’d like us to help you publicize? Submit your event for our events calendar and we will include it in upcoming issues of The Pulse (and Connections, depending on timing)

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