Pre-registration for Conference has now closed. Further registrations may be accepted depending on available space. If you have not yet registered but are interested in attending, please email us at firstname.lastname@example.org.
We are extremely excited about the new sessions and offerings at this year’s Conference, which are possible only with the support of our sponsors. We’d like to acknowledge and thank our sponsors:
Silver level – Actelion Pharmaceuticals Canada, Unither Biotech
Bronze – Bayer Inc, GlaxoSmithKline Inc, Pfizer Canada, Shoppers Drug Mart Specialty Health/Pharmaprix
General – British Columbia PH Society, McKesson Canada
The continued support of our sponsors is what allows us to deliver a better Conference. We can’t wait for you to be there to enjoy it!
NEW this year: Family photo sessions & the premiere of ‘Out of Breath’
Having a family member struggle with PH is even harder when the patient is a young child or a parent to children. To recognize and support our courageous families who are living and thriving with PH, we’ll be offering a unique “Family photo session”. Here, families will be able to have a professional photo taken to celebrate their togetherness!
We’re also proud to announce that our Conference will present the premiere screening of ‘Out of Breath’ – a short feature film on pulmonary hypertension co-produced by PHA Canada and the Victoria School for the Arts in Edmonton, Alberta!
News and events
A unique way to give –
did you know that you may donate an unwanted car to charity? The Pelley family recently found themselves with an extra car after mother Pat passed away due to PH. They shared this story:
Pat Pelley was a mom, wife and nanny, and above all else, a true nurturer. She had a heart of gold and unrivaled generosity that never wavered even during her battle with PH. Pat would have been delighted that her car was responsible for the new partnership between PHA Canada and Donate a Car Canada. She would hope others would likewise donate. She will be sorely missed by all who knew her, and so proud of what she started.
Through Donate A Car Canada
, the Pelleys were able to donate the vehicle and issue the proceeds from the car to PHA Canada. We’re glad that such options exist and that unwanted cars can be transformed into charitable gifts.
Thank you to St. John Fisher JR. Elementary School
In July, we were honoured to receive a $257 donation from St. John Fisher Elementary in Quebec. The school had conducted a "Pennies for PH" drive. One special young man named Zueben had collected over $25 in pennies, all of which he donated to this drive. Fundraisers like these have so much heart, especially when they are led by students. An enormous thank you goes out to each and every member of the St. John Fisher school community.
Coming soon: Connections Magazine!
You will love the personal stories and photos in September’s issue of Connections magazine, which features some of Canada’s youngest PH community members. It will be mailed to all members: if you are unsure of your membership status, email email@example.com. Copies of the magazine will also be available at Conference.
Inside PHA Canada: Awareness Month preparation!
Last year, support groups across Canada held 6 Minute Walk for Breath events to recognize November as PH Awareness Month. If you would like to organize a 6 Minute Walk event in YOUR community, we will have kits available at Conference! We have also recently developed an in-depth fundraising guide that will help you to plan and execute your own unique fundraiser or awareness activity.
Long-time PHA Canada supporter and sponsor Actelion will once again be matching all of the funds raised during Awareness Month, up to a maximum of $10,000. We know that with the help of our united community, we can reach and exceed that goal.
For more information on Awareness Month, visit our website!
We also wish to acknowledge and thank our Awareness Month sponsors. They are: Actelion Pharmaceuticals Canada, GlaxoSmithKline Inc, Pfizer Canada, and Unither Biotech
Inside PHA Canada: Scholarship Fund Contributions
This year, at total of almost $33,000 was awarded in Conference scholarships. This amount was dispersed to nearly 50 PH patients and families who would have not otherwise been able to attend Conference. This assistance would not be possible without contributions to the Scholarship fund. We would like to recognize and give a heartfelt thank you to those who contributed to the fund this year. They are: Bayer Inc who created the Bayer Inc Patient Scholarship Fund, and Lynn-Marie Cox who contributed to the general fund with proceeds from a fundraiser she held for her birthday. On behalf PHA Canada, and our scholarship recipients, thank you for your contributions.
Resource Tip of the Month - new materials!
When holding any sort of fundraising or awareness event, it’s important to have materials on hand that support your cause. As PH is such a rare disease, it is particularly challenging to explain. This is where PHA Canada’s informational materials come in. We have recently produced a new brochure, informational flyer, magnets and keychains. We’re also working on pocket-sized wallet cards, which will be available at Conference. These materials are all made to help inform your community about the challenges of your disease. To order materials reach out to us at firstname.lastname@example.org
Low Sodium Recipe - Brown Bean Soup