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PULMONARY HYPERTENSION ASSOCIATION OF CANADA ASSOCIATION D’HYPERTENSION PULMONAIRE DU CANADA
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PHA Canada’s Monthly Electronic Newsletter
Vol 3. No. 2 February 2013
 


HAPPY SAINT VALENTINE'S DAY
Written by: Corinne Crichlow 
 
Happy Valentine’s Day from PHA Canada to the PH Community! Valentine’s Day is one of the most popular holidays for love. Pope Galasius declared February 14th as Saint Valentine’s Day in 496. The origins of this holiday date back as far as 270 AD during the Roman Era when a certain Bishop Valentine was executed for performing secret weddings during wartimes. It is said that he sent his final love note to the jailer’s daughter while in prison, signing it From your Valentine.

The history of Valentine’s Day is rooted in the expression of love and fertility. Over time, Valentine’s Day has grown to be a secular holiday celebrated by friends, families, and partners. This year, PHA Canada is suggesting that you consider a few different ways to celebrate Valentine’s Day with your loved ones.

Instead of buying a Valentine’s Day Card why not make a small donation via PHA Canada’s Personal Pages.

Instead of buying chocolates, why not take a look at PHA Canada’s boutique for gifts that support PH. You can check out the boutique here.

Instead of locking away your old pennies, send them in to PHA Canada for our Pennies for PH program.

We sincerely wish for each one of you to make time for yourselves, your friends, your partners and family members and enjoy the spirit of love and happiness that we each have the potential to experience each day in small ways.

Source: http://www.bbc.co.uk/religion/religions/christianity/saints/valentine.shtml


KEEPING THE PHLAME OF HOPE ALIVE
Written by: Corinne Crichlow
Keeping the PHlame of Hope Alive is the theme for PHA Canada’s 3rd National PH Conference. Every two years, PHA Canada hosts a conference to gather patients, friends, family, and supporters in one city to discuss issues facing the PH community and to share experiences. The Canadian PH community reunites and looks at ways to move forward with PH. Conference participants engage with topics ranging from the basics of PH, to updates on the latest developments in PH diagnosis and treatment. This year, conference sessions will also focus on the day-to-day challenges of living with PH and will include discussions about coping with this rare chronic disease as well as opportunities to get involved in the fight against PH. 

Keeping the PHlame of Hope Alive is significant because we believe that the passion, dedication and spirit of the PH community in the fight against PH helps tend the figurative PHlame of hope. It so happens that Ottawa, the conference host city is home to the Centennial Flame. A flame that was lit by Lester B. Pearson on January 1, 1967 in commemoration of Canada’s 100 years of confederation.  The Centennial Flame is not eternal; however it celebrates confederation, which could be considered the coming together of peoples and institutions to create a unified voice.

The figurative PHlame being tended by the Canadian PH community is an energy that is as real as any physical manifestation thereof. The PHlame is embodied in the work of volunteers, the care provided by PH medical professionals, the words shared by our PHenomenal Youth, the funds raised and donated by dedicated contributors, the art created to inspire the PH community and the activities organized to celebrate PH patient achievements. Each act is by itself is like the flame of a candle, and when these acts come together we are witness to a great shining PHlame of hope that burns within the PH community.

PHA Canada’s 3rd National PH Conference will be an opportunity to learn and to share with the greater PH community. Help PHA Canada tend the PHlame and join us this September in Ottawa, Ontario for Keeping the PHlame of Hope Alive.

Registration will be opening in March 15, 2013. For more information please visit the conference website at www.phacanada.ca/2013Conference or send us an e-mail at 2013Conference@phacanada.ca. PHA Canada will be offering scholarships to attend the conference. Scholarship information will be available on the conference website.

Detailed Agenda and speaker information will be available shortly online at www.phacanada.ca/2013ConferenceAgenda Please check back frequently for conference updates.

Source: Centennial Flame Parliament Hill



SPRING CONNECTIONS 

We’ll be publishing our next issue of Connections in the Spring and we’d like to hear from you. If you have a story you’d like to share, an exciting project or some fun PH tips, please send us a message at connections@phacanada.ca.

Deadline for submissions is extended to February 28, 2013.
Connections – The Official Magazine of the PH Community




RESOURCE TIP OF THE MONTH: SHARING STORIES

PHA Canada is an organization created for the PH Community and one of our goals is to develop vibrant networks and create relevant publications to serve you. We hear about stories in the community through word of mouth and when we do, our team will put together an article or send out a message into the social media atmosphere.

We understand that having PH isn’t always easy to handle and that it helps to share stories to move through things and to just let others know that they are not alone.

If you have a story, or you have an idea for an article that you’d like to share with PHA Canada we have some great news for you. It’s easy to do. Send us an e-mail at thepulse@phacanada.ca or give us a call at 1-877-7-PHA-CAN.

You can also contact us via Facebook, follow our Tweets (@phacanada), or check out our YouTube channel.

We’re here to spread the word and we’ll help you get the message out. 

WHAT'S HAPPENING ACROSS CANADA

SPECIAL THANKS

PHA Canada extends a special thanks to Sean Mullin who raised  $1,200 at a community fundraiser held in Finch, Ontario by the Finch Lions Club in conjunction with the Finch Winter Carnival.
Watch for the feature article in our next issue of Connections.

Thanks to Sean and his community for their hard work and generous donation!

JE RÊVE - VIDEO RELEASE
PHA Canada is pleased to announce the release of the video ‘Je rêve’. This video was made possible by submissions from our colleagues in Montreal. Special thanks to Judith Ross who helped us coordinate the creation of the video which includes music from Martin Deschamps!

Watch for the video on our website this Friday, February 15, 2013.


REMINDER: BCPHS AND PHA CANADA CO-HOST THE WESTERN REGIONAL PULMONARY HYPERTENSION SYMPOSIUM

The BC Pulmonary Hypertension Society (BCPHS) in conjunction with PHA Canada will host the Western Regional Symposium for Pulmonary Hypertension from February 22nd to 24th at the Terminal City Club at 837 West Hastings Street in Vancouver.

The theme of this year's Symposium is "PHighting Back: Supporting Mind, Body and Soul". Members of the PH community living in Western Canada are invited to register for the event. Registration is now open, click here to learn more about the Symposium and to register.

Learn how to support mind, body and soul at this 1.5-day symposium. An opportunity to meet and connect with other patients, caregivers and families while learning about the latest in the field of PH. Building upon the success of the BC PH Society's (BCPHS) Symposium held for the past 10 years, this year BCPHS has partnered with PHA Canada to offer a larger event that is open to all residents of Western Canada.

The Symposium will begin on Friday night with a meet and greet and will feature a full day of sessions on Saturday, including a keynote dinner, and will end with breakfast on Sunday.  The Symposium, will feature a full day of sessions, targeted at supporting attendees minds: educating them about their disease and giving them an insight into the latest research; their soul: focusing on psychosocial/emotional support and the psychological aspects of living with a chronic illness; and body: a session on how the practice of yoga can help patients become more physically active despite the limitations of their disease.

During the Symposium, BCPHS will also hold its AGM.The PHA Canada Board of Directors will also be meeting at the event.
 
To learn more about the event or to register follow this link. If you have any questions about the event, please contact Angie Knott at aknott@phacanada.ca.


INSIDE PHA CANADA

WHAT IS PHA CANADA'S SEED GRANT PROGRAM? 
Written by: Jennifer Gendron

Did you know  that PHA Canada has a Seed Grant Program available to support patient groups and individuals with projects and programs?  We want you to know that PHA Canada is here to support your endeavors and initiatives.  Whether you have a formal support group or you are an individual interested in organizing your own PH awareness or fundraising project, PHA Canada has a program in place that can assist you with reaching your goal. 

The Seed Grant application process is quick and easy and funds are available for things such as: start-up for a support group meeting or seed funds for organizing a fundraising or awareness event in our community.  If you have an idea you want to bring to fruition, we want to hear from you. 

Contact us at support@phacanada.ca or fill out our online form here.

Remember, there is no project to big or too small – any ideas you may have are worth exploring and we want to support you in any way we can to ensure that you have the tools you need to take on your project.  In addition to seed funding, PHA Canada has a variety of information materials that are available for your needs.


If you have a question about some aspect of how PHA Canada works please send it to us at: thepulse@phacanada.ca

 



Low-sodium recipe of the month: Frosty Almond Date Shake

It's official, many of us are starting to watch our food carefully and here's a sweet beverage that's tasty and healthy - it has a little sprinkle of protein to boot!

Frosty Almond Date ShakeRecipe by Mayo Clinic StaffServing: 4

Dietitian's tip: This thick, creamy shake is a breeze to make. Just be certain that the almond milk is truly ice cold and that the banana is frozen. Peel and halve the banana before freezing.


 

Ingredients

    • 1/3 cup chopped pitted dates
    • 2 tablespoons warm water
    • 2 cups vanilla almond milk, chilled
    • 1/2 cup fat-free vanilla soy or dairy yogurt
    • 1 very ripe banana, frozen
    • 4 ice cubes
    • 1/8 teaspoon ground nutmeg, plus extra for garnish

Directions

Put the dates in a small bowl and sprinkle with the warm water. Let soak for 5 minutes to soften, then drain.

In a blender, combine the dates, almond milk, yogurt, banana, ice cubes and the 1/8 teaspoon nutmeg. Blend until smooth and frothy, about 30 seconds.

Pour into tall, chilled glasses and garnish each with a dusting of nutmeg.

Nutritional analysis per serving

Serving size: About 1 cup
Calories 142 Sodium 96 mg
Total fat 2 g Total carbohydrate 28 g
Saturated fat 1 g Dietary fiber 2 g
Trans fat 0 g Sugars 4 g
Monounsaturated fat < 1 g Protein 3 g
Cholesterol 0 mg    




Latest PH news




Great news for those that found out late: the 2013 Western PH Symposium scholarship application deadline has been extended until Feb. 8! Apply online at {CCM:BASE_URL}/2013westernscholarshipapplication. We hope to see you all at the Symposium! [more]
Registration is now open for the 2013 Western Regional PH Conference. Learn how to support mind, body and soul at this 2.5-day symposium. An opportunity to meet and connect with PH patients, caregivers and families while learning about the latest in the field of PH. Building upon the success of th..... [more]
Source: CBC In December 2012, the CBC covered a Children's Wish Event - Flight in Search of Santa. Isabelle Platnar was one of the happy children in search of the jolly fellow. During the event, the CBC interviewed Sarah Platnar, Isabelle's mother and member of PHA Canada's Pediatric Committee. ..... [more]
Source: durhamregion.com Ajax resident raises awareness about pulmonary hypertension. AJAX -- Amanda English, pictured with two of her young children, Charlotte and Peter, was recently diagnosed with pulmonary hypertension which restricts breathing and can cause heart failure. Ms. English m..... [more]
Source: WPXI PITTSBURGH — They are four friends with one big mission—to cycle across the country to raise awareness and money for a debilitating lung condition. They call themselves Team PHenomenal Hope, and they said they are inspired by the people living with pulmonary hyperte..... [more]
SOURCE: Seaforth Huron Expositor By Susan Hundertmark, Seaforth Huron Expositor Tuesday, November 27, 2012 10:04:06 EST AM Just shy of nine months when he died, Tristan Roman Mero, of Seaforth, is the inspiration of a fundraising campaign by two of his aunts for pulmo..... [more]
 
For more PH news visit the newsfeed on our website: www.phacanada.ca/news or subscribe to the PH News RSS feed


Join the PH conversation in 2013:
Website: www.phacanada.ca
The Pulse: Please subscribe at www.phacanada.ca/thepulse
YouTube: www.youtube.com/phacanada
Facebook: Please us  on Facebook: www.facebook.com/phacanada
Twitter: www.twitter.com/PHACanada
Instagram: PHACanada
LinkedIn: www.linkedin.com/company/pulmonary-hypertension-association-of-canada

 


 

The Pulse
Vol. 3 No. 2 FEB 2013
Connect with PHA Canada

VIEW PAST ISSUES: www.phacanada.ca/ThePulse

PHA CANADA NEWS & UPDATES:
Share your story
PH Resources: your help needed
Community Events Calendar

SHARE YOUR STORY
We are looking for articles to include in our Spring issue of Connections as well as in The Pulse monthly e-newsletter. Do you have a story, a recipe, tips on living with PH or something else you would like to share? Send it to us at connections@phacanada.ca

PH RESOURCES:
YOUR HELP NEEDED
We are compiling a list of resources available to patients across the country, if you’ve taken advantage of any resources available in your province, or city (through government programs, other foundations etc.) please share the information with us so we can help others in your region. Email your resource info to: livingPH@phacanada.ca


UPCOMING COMMUNITY EVENTS

(click the event to go to information for each event)

 
Feb 22
Terminal City Club, Vancouver
5:00 PM - 10:00 AM
Building upon the success of the BCPHS Symposium held for the past 10 years, this year BCPHS has .....

Mar 02
Condo Party Room
1:30 PM - 4:00 PM
The PH support group provides a place where patients, family members and caregivers can share their.....

Mar 05
Louise Riley Library
6:45 PM - 8:30 PM
The Pulmonary Hypertension Support Group of the Southern Alberta Chapter meets the first Tuesday of .....

Hosting a PH-related event that you’d like us to help you publicize? Submit your event for our events calendar and we will include it in upcoming issues of The Pulse (and Connections, depending on timing)







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