PHA Canada’s monthly electronic newsletter
Vol 2. No. 1 January 2012

In this issue:

Happy New Year From PHA Canada

The Board of Directors and Staff of PHA Canada would like to wish you a Happy New Year and all the best in 2012!  As we enter a new year, we look forward to the many projects that lay ahead and look forward to your support in 2012.  We hope you will consider joining us in the fight against PH in any way that you can in the coming year.  Whether it is by sharing your story, volunteering in some way or fundraising to further our projects, there is some way for everyone to get involved. 

You will find ideas on how you can get involved in this newsletter as well as our upcoming issue of Connections which will hit your mailbox later this month.  Please join us in our fight!   

Raise Funds with Your Own Personal Page 

PHA Canada is very pleased to offer you a great new fundraising tool that will allow you to join in the fight and raise funds for important projects right from the comfort of your home or office! Visit our website at: and follow the simple step by step instructions that allow you to create your very own fundraising centre and to share your PH story. There are three different options for you or your family and friends who wish to raise funds through this system. You can set up your own personal page, set up a "Tribute" page to a loved one who has lost their battle with PH or, create an "In Honour" page for someone you wish to recognize. 

This system allows you to customize your own page with your personal story, photos and a personal fundraising goal.  You will receive e-notices when donations are made to your page and all of the tools you need to communicate with your sponsors have been provided.   For more information contact us at  

Get Involved: Volunteer in the New Year! 

PHA Canada is always looking for volunteers to help with a variety of projects in a number of different areas of focus.  If you have ever considered offering some of your time to further this important cause, 2012 is just the time to do it!  We can use help in a number of areas including: advocacy & awareness, patient support,  and fundraising.  If you or someone you know has a special skill that you are willing to share, we would love to hear from you!  Please contact us at or visit our website at  for more information. 


Coverage Continues From our Awareness Month Efforts 

Media coverage continues to come in as a result of our November Awarneness Month Campaign.  An article was recently run by Sun Media and appeared in several Sun publications accross Canada.  You can read the article which features an interview with Dr. John Granton and PH patient, Carol Doyle at 

A full recap of the awareness month events as well as a list of coverage will appear in the Winter issue of Connections coming soon!

Thank you to all those who worked hard to make our Awareness Month activities such a great success and to the many groups and individuals who participated across Canada with their own events and activities.

Upcoming Events & Conferences

5th International Conference: Neonatal and Childhood Pulmonary Vascular Disease

March 9-10, 2012  Hotel Nikko • San Francisco, California

Over the past decade, great strides have been made in our understanding of the pathobiology of pulmonary vascular disease, and from these findings new therapeutic options have emerged. It is increasingly clear that pulmonary vascular pathology is integral to a number of childhood disorders. The San Francisco symposium will bring together international experts to explore current understanding of the basic pathobiology as well as new and future therapies for neonatal, pediatric, and adult pulmonary vascular diseases. 

This informative conference will include presentations from four families, three from Canada, who will share their stories of living with pediatric pulmonary hypertension. Families and medical professionals are invited to attend.  For more information or to register, please visit 

The Power of One: From A Kitchen Table to Around the World

June 22-24, 2012 Renaissance Orlando at Sea World, Orlando, Florida

PHA USA conferences offer opportunities for every attendee: Scientific Sessions for medical professionals seeking to enhance their knowledge of the disease, Patient/Family Led and Medically Led Sessions for patients and their families, and Meet-Ups for the community. The 10th International PH Conference will feature 15 Patient/Family Led Sessions, 40 Medically Led Sessions, and 15 Support Group meetings focused on a variety of topics.  If you have never had the opportunity to attend one of these conferences, you will not want to miss this amazing opportunity!  For more information on conference sessions, scholarships and more, please visit

If I 

 Low Sodium Recipe of the Month - Turkey Soup

With cold winter days upon us, nothing warms us better than a hearty bowl of soup!  If you have some leftover turkey in the freezer, this is a perfect recipe!

  • 8 Servings
  • Prep: 30 min. Cook: 4 hours
240 270


  • 1 leftover turkey carcass (from a 14-pound turkey)
  • 3 quarts water
  • 2 cans (14-1/2 ounces each) reduced-sodium chicken broth
  • 1/2 cup uncooked long-grain rice
  • 1 medium onion, finely chopped
  • 4 celery ribs, finely chopped
  • 2 medium carrots, grated
  • 1 bay leaf
  • Dash poultry seasoning
  • Salt, optional
  • Pepper
  • Onion powder
  • Garlic powder


  • Place turkey carcass, water and broth in a large soup kettle. Bring to a boil. Reduce heat; cover and simmer for 4-5 hours.
  • Remove carcass from stock. Remove any meat and dice. Return to stock along with rice, onion, celery, carrots, bay leaf and poultry seasoning. Add remaining seasonings to taste. Cover and simmer over medium-low heat until the rice is cooked. Discard bay leaf. Yield: 8 servings (3 quarts).

Originally published as Turkey Soup in Country Extra January 1993, p51 

For more PH news visit the newsfeed on our website: or subscribe to the PH News RSS feed

The Pulse
Vol. 2 No. 1
           January 2012

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