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PULMONARY HYPERTENSION ASSOCIATION OF CANADA ASSOCIATION D’HYPERTENSION PULMONAIRE DU CANADA



Welcome to the inaugural issue of “The Pulse”
PHA Canada’s new monthly electronic newsletter.

The Pulse is PHA Canada’s newest way to keep you “on the pulse” of all things related to PH. The Pulse will be released monthly and will keep you up to date on all of the latest activities at PHA Canada, upcoming events and happenings in the PH community and will give you the latest headlines in the world of pulmonary hypertension from Canada and around the world.
 
We hope that you enjoy reading this first issue and look forward to your new electronic issue each month. Don’t forget to add the “from” email address (thepulse@phacanada.ca) to your “approved contacts” list to make sure that you don’t miss a single issue.
 
We want this newsletter to provide you with the information you need each month: we are always looking for suggestions for things you’d like to see featured in the newsletter. If you want to share your story, have some tips on living with PH, PH related poems, drawings, photos etc. we welcome those as well.  Send your suggestions or items for publishing to: thepulse@phacanada.ca.


Our staff and Conference Committee have been busy planning away to make sure that this year’s PH Conference is the best one yet. We’re almost done finalizing the agenda (full agenda will be posted on the Conference web page shortly) and are very excited about some of the new sessions being offered this year: these include topics such as PH and Oxygen and PH and Yoga (which will feature a yoga instructor specialized in working with PH patients, showing off some yoga moves and getting participants involved) and many others. We’re also thrilled to announce that motivational speaker Mark Black will be this year’s keynote speaker at our Saturday night dinner. Mark is a Heart and Double-Lung Transplant Recipient – turned – 4-Time Marathon Runner, Best-Selling Author Life-Coach and Motivational Speaker. He had PH secondary to a heart defect.



Don’t forget to register for Conference today as spots are filling up quickly – there are over 100 registrants already! Visit www.phacanada.ca/2011Conference to learn more and to register.


This month’s PH resources tip: Use our discussion board to find others living in your area

Have you taken a good look around the PHA Canada website lately? One feature you may not yet know about is the PHA Canada message board. This is a great place to connect with other patients, family and caregivers.

Here’s a tip on using the board: if you are looking to find others living with PH in your area, why not start a message board thread?

In order to access the discussion board you will have to create a user name and password on our website, once you’re logged in you will be in the discussion board section. Scroll to the bottom of the discussion threads and click on “start discussion” to start your own post. A box called “start discussion” will pop up. A good subject line if you are searching for people locally in your area would be “Looking to meet PHers in XX (your city, town, region etc) area”.  

If you would like to see a tutorial with step by step instructions and photos on how to log-in/create an account and post to the message boards, click here.
 


We’re already thinking about Awareness Month!

Although November’s PH Awareness Month is still 4 months away, we’re already busy planning our activities. This year we’re gearing up for a huge awareness month campaign. Called the “Rule of PHive”, the campaign will highlight the key symptoms of pulmonary hypertension:
  • Breathlessness/lightheadedness;
  • blueish lips, hands and skin;
  • fatigue;
  • chest pain while exercising; and
  • swollen ankles, legs and abdomen. 
A blue hand will be the campaign’s symbol (one finger for each symptom).

We’ll be encouraging a little healthy competition between four Canadian cities to see who can raise the most awareness about PH. We’re encouraging everyone to get involved in the campaign and to hold their own awareness events along with the national campaign. We’ll be releasing more details in the months to come but thought we’d get you a little curious and thinking about what you can do to raise awareness during Awareness Month.
 


Low-sodium recipe of the month

Each month we will feature a recipe that is suitable for those following low-sodium diets in this section.
 
This month’s recipe comes from Canadian Living and is great for summer time grilling: it’s a quick and easy way to add flavour to and spice up your chicken or fish before throwing it on the grill.
 
Orange Spice Marinade
By Canadian Living Test Kitchens
 
For 4 to 6 servings, add about 1-1/2 lb (750 g) boneless skinless chicken breasts or salmon fillets to marinade: cover and refrigerate salmon for 30 minutes, chicken for at least 4 or up to 24 hours.
 
Ingredients:
1/3 cup (75 mL) extra-virgin olive oil
1/4 cup (50 mL) chopped fresh coriander
2 tsp (10 mL) grated orange rind
3 tbsp (45 mL) orange juice
1 tbsp (15 mL) minced gingerroot
1 tbsp (15 mL) liquid honey
1 tsp (5 mL) ground cumin
1/2 tsp (2 mL) dried oregano
1/4 tsp (1 mL) turmeric
1/4 tsp (1 mL) pepper
1 Pinch cinnamon
 
Preparation:
In small bowl, whisk oil, coriander, orange rind and juice, ginger, honey, cumin, oregano, turmeric, pepper and cinnamon.
 
Nutritional info (marinade only):
Per 1tsp (about 15 ml)
Calories: 62, protein: 0, total fat: 6g, saturated fat: 1g, carbohydrates: 2g, fibre: 0, cholesterol: 0mg, sodium: 1mg, iron: 1% RDI (recommended daily intake), vitamin C 3% RDI
 


 


Latest PH news

 

A promising new PH discovery at University of Alberta - Researchers at the University of Alberta have discovered a new protein that could have some promising outcomes for PH patients. Video from Global News Edmonton.
 
Washington University surgeons successfully use artificial lung in toddler - Two-year-old Owen Stark came to St. Louis Children’s Hospital in the summer of 2010 near death from heart failure and dangerously high blood pressure in his lungs.Washington University physicians and surgeons at St. Louis Children’s Hospital knew they had to act fast to save his life. They collaborated to make several strategic and innovative decisions that led to the first successful use of an artificial lung in a toddler. More
 
For more PH news visit the newsfeed on our website: www.phacanada.ca/news or subscribe to the PH News RSS feed




 

The Pulse
Vol. 1 No. 1 Jul 2011


Connect with PHA Canada:



PHA CANADA NEWS & UPDATES:
Membership contest
2011 Conference Registration info
Community Events Calendar

Membership contest: Tell us why you belong to PHA Canada and win prizes!
We want you to tell us why being a member of PHA Canada is important to you. Tell us why you're a PHA Canada member, why is membership important and why others should become members. Post your responses on our facebook page (www.facebook.com/phacanada) or send to aknott@phacanada.ca. Be as creative as you want: send us a video, a poem, a short essay, a photo - anything you can think of. We'll be giving away some prizes for the five most creative entries. Top prize is free Conference registration for you and a guest!


CONFERENCE 2011: Don’t forget to register for Conference today as spots are filling up quickly – there are over 100 registrants already! Visit www.phacanada.ca/2011Conference to learn more and to register.


Upcoming community events:
(click the event to go to information for each event)
Wed July 6 – Montreal Support Group Meeting (bilingual)

July 23 – Toronto Chapter Summer Potluck and Pool party

August 3 – Montreal Support Group Meeting (bilingual)

September 16 – 18 – 2011 National PH Conference, Toronto ON

Hosting a PH-related event that you’d like us to help you publicize? Submit your event for our events calendar and we will include it in upcoming issues of The Pulse (and Connections, depending on timing)





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