PHA Canada E-Newsletter: Vol 4 #6 June 2013

Connections Submissions deadline: July 15th!
Personal stories from our members transform Connections from an informative document into a meaningful collaborative resource, by and for our united PH community. In order to publish your contributions in  September’s edition of Connections, we must receive them by July 15th. The sooner we receive your article, the more likely we can guarantee its inclusion in Connections! We can’t wait to read your recent stories. Please send them to Bronwyn at

Around the World for World PH Day

While we held events in our own backyards to recognize World PH Day on  May 5th, PH supporters across the globe carried out their own innovative fundraisers and awareness campaigns.
The Japanese PH Association held a ski tournament called “Get Breathless for PH.” This video stars 4 year old Milka: skier and PH patient. View the video!
PHA Austria created a brand new song which was released for World PH Day. Watch the high-resolution music video!

PHA Canada member Elaine Goodhue and the Greely community held a fantastic Family PHun day and 6 Minute Walk for Breath. Their event raised over $6300 for PH awareness. We couldn’t be more excited and thankful for the work of the Greely PH community. An extended feature on their event will appear in the September issue of Connections.

News and Events
6th international conference - Childhood Pulmonary Vascular Disease Held in San Francisco, California from June 21st -22nd, this conference will explore the current understanding of the basic pathobiology as well as new therapies for neonatal and pediatric pulmonary diseases. For more information, visit the event page.

NEW Volunteer Opportunities!

The PHA Canada Ambassador and Support Line Volunteer roles are for individuals who desire to make a strong commitment to PHA Canada over an extended time period. Learn more about becoming an Ambassador or Support Line volunteer.

Lynn Marie’s ‘Pampered for PH’
In April, Lynn Marie Cox held a Pampered Chef event to celebrate her birthday and simultaneously raise PH awareness. We’re thrilled that Lynn Marie’s party raised over $400. Thank you Lynn Marie for your dedication!

2013 National Conference Updates

Hotel booking reminder: We want to remind any patients on IV medication to make a special request when making Conference hotel reservations. These guests should request the Mode room, or specify that they require a room with a bathtub when making their reservations.
3rd National PH Conference session preview: Have you ever wondered how PH treatments are approved? Join us at the 3rd National PH Conference in Ottawa this September for a session entitled “From Concept to Market: The Progression of PH Therapies” , which will feature PH specialists exploring this process. You don’t want to miss this! Learn more about Conference and register today.

Inside PHA Canada: Board Nominations
As you know, we are currently seeking nominations for the Board of Directors of PHA Canada for the 2013-2014 term.  If you or someone you know desires to become more actively involved with the PH community in Canada, visit our new Board Nominations page to learn more.

Resource Tip of the Month - PHenomenal Lives
If you are a young person living with PH, you can find resources and opportunities to connect with others through the Phenomenal Youth Blog. This blog features personal stories on the daily trials and tribulations of PH-affected youth. If you want to get involved, you may also post your own PH journey in the Phenomenal Lives section

Low Sodium Recipe of the Month - Mango Avocado Salsa
This salsa recipe is from Tracey Reynolds in Kelowna, BC. She says “I love this flavorful salsa and usually amp up the lime and cilantro. It's great with low sodium tortilla chips, stuffed in a pita, on fish or chicken breasts, or as a side salad.”

1 Avocado (approx. 1 cup), cubed
1 Mango (approx. 1 cup), cubed
1/4 cup red onions, chopped
3 Tbs Cilantro, finely chopped
1/2 cup grape tomatoes, halved
2 Tbs lime juice
Pinch pepper (optional)
1 tsp Jalapenos, chopped (optional)
Mix ingredients together and enjoy! Refrigerate for up to 3 days.

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We love your stories and community events! PHA Canada exists for our members: our goal is to share resources and connect our community. Submit your stories for upcoming editions of Connections & the Pulse at:

Upcoming Community Events: click to read more!

June 1: Toronto PH Support Group Meeting
Condo Party Room,18 Sommerset Way, Toronto, ON, 1:30- 4:00 PM

June 4: 
PH Support Group Meeting - Southern Alberta Chapter
Louise Riley Library, 6:45- 8:30 PM

June 8: 
London PH Support Group Meeting
London Public Library, Westmount Branch, 1:30- 3:30 PM
Q-ing for Life BBQ Competition
New Hamburg Fairgrounds, 251 Jacob St, New Hamburg 12-7PM
4th Annual Picnic in the Park - Edmonton
Emily Murphy Park, Site #1, 11904 Emily Murphy Park Road, Edmonton, 12-4PM

June 21:
 6th international conference on Childhood Pulmonary Vascular Disease
Hilton Financial District, San Francisco, California

July 13: London PH Support Group Meeting
London Public Library, Westmount Branch, 1:30- 3:30 PM

Hosting a PH event that you’d like us to publicize? Submit your event for our events calendar and we'll include it in upcoming issues of The Pulse!

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