PHA Canada eNewsletter: Vol.5 #1 Jan 2015

Conference Countdown: Registration and MORE scholarships!

Registration for our 2015 PH Conference is now open! For information on registration, hotel bookings and site-seeing in Montreal, please visit our updated Conference website and FAQ page. You may register for Conference online or using our Conference brochure and registration form which has been mailed to all PHA Canada members.
We are also excited to report that we have additional scholarship funds available for those who wish to attend Conference, but have financial concerns. Last month, we awarded over $20,000 in scholarships to deserving PH patients and caregivers. At this time, there is a small amount of funding still remaining. Newly diagnosed patients and those who have never attended a Conference have priority for scholarship funding. We encourage you to apply for a scholarship today. We are so excited to bring PHers together: let’s make this year’s Conference the biggest ever!

Annual Report Sneak Peek
PHA Canada’s 2014 Annual Report will be arriving in your mailboxes this month. The Annual Report contains information on everything that our community has achieved over the past year, and presents our organization’s financial statements to reflect our values of accountability and transparency. In addition, this Annual Report highlights four special stories from individuals whose lives have been touched by becoming involved with PHA Canada. We hope you enjoy our Annual Report!

Introducing our Ambassadors: Caroline

This month's Ambassador is Caroline Liu from Toronto.
“I was diagnosed in January 2014, and searched online to read through all the information I could get, in English and Mandarin. It was scary at first to know that PH was an incurable disease and if left untreated, my life expectancy would be just two years. I learned about PHA Canada through my internet searching. Once I saw there was a patient support group in Toronto, I decided to join right away, as I was desperate to know more about the disease and how other patients were dealing with it. I learned a lot more about life with PH from the patients and caregivers in the Toronto support group. The most inspiring part for me about connecting with others is now being able to provide my knowledge of PH to new patients so that they feel relieved knowing it’s possible to continue live with such a disease.”

Researchers Discover Protein That Can Prevent Pulmonary Hypertension-Related Heart Failure
RegeneRx Biopharmaceuticals, Inc. announced a recent study demonstrating that Thymosin beta 4 (TB4) can reduce or even prevent heart failure in PH patients.

Raising awareness of Pulmonary Hypertension
The 3rd annual 6 Minute Walk for Breath took place at the Bradford West Gwillimbury Leisure Centre, Nov. 20!

There is hope for those with PH
When Joan Nemeth could not climb stairs or vacuum her living room without getting out of breath, she knew something was seriously wrong.

Paint Canada Purple on May 5th, World PH Day
World PH Day is on May 5
th, 2015. Based on an incredible initiative by Loretta Chu in 2014, our primary campaign in 2015 will be ‘Paint Canada Purple’! For this campaign, we are requesting PH advocates across Canada to request that their local monuments be illuminated in periwinkle for World PH Day on May 5th. Though May is several months away, now is the perfect time to begin considering which monuments in your area could be lit up! Check out our template letter for explaining the Paint Canada Purple campaign to your local civic authorities and read more about the campaign on our website. We are imagining all of Canada lit up in purple for World PH Day, and the incredible potential for increased PH awareness. Please join us in Painting Canada Purple!

Lentil Chili from Whole Foods
After indulging in less healthy foods over the holidays, we’re looking forward to some lighter dishes that are still hearty and filling. We hope you enjoy this lentil chili recipe from Whole Foods!

  • 1 yellow onion, chopped
  • 1 red bell pepper, chopped
  • 8 cups salt-free vegetable broth
  • 5 cloves garlic, finely chopped
  • 4 teaspoons salt-free chili powder
  • 1 (16-ounce) package brown lentils (about 2 1/4 cups lentils)
  • 2 (15-ounce) cans no-salt-added diced tomatoes
  • 1/4 cup chopped fresh cilantro

Heat a large pot over medium-high heat. When hot, add onion and bell pepper; cook, stirring frequently, until vegetables brown and begin to stick to the bottom of the pot, about 6 minutes. Stir in 3 tablespoons of the broth and continue to cook, stirring, until onion is soft and lightly browned. Stir in garlic and chili powder and cook 1 minute, stirring constantly. Add lentils, tomatoes and remaining broth. Bring to a boil, reduce heat to medium-low and simmer, partially covered, 30 minutes or until lentils are almost tender. Uncover and cook 10 minutes longer. Stir in cilantro and serve.
Nutritional Info:
Per Serving:130 calories (5 from fat), 0g total fat, 0g saturated fat, 0mg cholesterol, 35mg sodium, 23g carbohydrate (7g dietary fiber, 7g sugar), 6g protein

The Pulse 


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