PHA Canada’s Monthly Electronic Newsletter
Vol 2. No. 11 November 2012

In this issue:


PHA Canada is pleased to launch Awareness Month 2012 and we will be kicking things off on November 1st with a 6-Minute Walk for Breath in Vancouver, British Columbia. We'll be hosting additional events across Canada so please check out our website for more information about Awareness Month, fundraising and upcoming events at

November 1, 2012
11:30 to 1:30 pm (PDT)

Vancouver, BC - Vancouver Public Library, 350 West Georgia
November 3, 2012
1:00 to 2:00 pm (EDT)

Ottawa, ON - University of Ottawa Heart Institute, H2 (2nd Floor) 40 Ruskin Street
November 4, 2012
2:00 to 3:30 pm (MDT)

Edmonton, AB - Castle Downs Family YMCA, 11510 153 Ave
November 25, 2012
1:30 to 3:00 pm (EDT)

Mattamy Athletics Centre, 50 Carleton Street, Toronto, ON

PHA Canada has organized a number of large 6-Minute Walk for Breath Campaigns across Canada. We have created kits that we want to share with you so that you too can launch your very own 6-Minute Walk for Breath in your community. Event kits include all the information and material you will need to host your own event; materials include promotional posters, pledge sheets, PH fact sheets, t-shirts for volunteers, and more.

If you host an event, you will receive one of our funky 6-Minute Walk for Breath t-shirts. All those who raise $250 or more in pledges, will receive a t-shirt too!

If you have not yet ordered your kit, please send us an e-mail at  We are also happy to answer any questions you may have about organizing your own event.

We have also created a great pic that you can share with your friends on Facebook. With your help and a few clicks to share the pic we can keep building our online community and reaching out to PHers near and far.

Please visit our Facebook page to like and share our pic and use it as your cover photo during
Awareness Month.



In our last issue we called out to members of our community for volunteers to assist us in developing our 6-Minute Walk for Breath material. Special thanks to Lynn-Marie Cox and Jamie Kretzschmar; Lyda Lesenko, RN; Dr. John Swiston and Carolyn Pugliese, RN for answering our call.

We would also like to thank all of our members for their continued input and support. We are here to serve the PH community and Canadians at large by creating awareness about PH and sharing information about the disease and the input we receive from our membership is invaluable.

If you are looking for ways to get involved during Pulmonary Hypertension Awareness Month, please contact us at:


Matching Gifts from Actelion
This year, PHA Canada has received a generous matching gift sponsorship from Actelion Pharmaceuticals Ltd. Throughout the month of November, Actelion will match each dollar raised, up to a maximum of $10,000.

Actelion Pharmaceuticals Ltd is a biopharmaceutical company headquartered in Allschwil/Basel, Switzerland, focusing on the discovery, development and commercialization of innovative treatments to serve high unmet medical needs.

Creating your own Matching Gift Campaign
You can launch your own matching gift campaigns by seeking sponsors within your communities and by participating in Awareness Month events or by creating your Personal Page. For more information about creating your Personal Page, please see the reminder below.

Many workplaces also match employee donations. For more information about gift matching and to find out if your workplace matches funds, please visit the Gift Matching section on our website.


There are a number of ways that you can get involved this year to make this our best Awareness Month ever!  Hosting a 6 Minute Walk for Breath is just one of the many things that you can do to help bring attention and awareness to our cause.  Some other ideas for raising awareness include:
  • Sharing your story with your local newspaper – November is a great time to reach out to your local newspaper or television station to offer to share your story.  Never underestimate the power of sharing your story to educate others on what it means to live with PH. If you would like some help, PHA Canada offers media mentors: those who have previously shared their story with the media to help you get going. Get in touch with us to get started
  • Setting up a Personal Page – Creating your own personal page is an easy way to reach a number of potential donors right from the comfort of home!  Visit our website to learn how you can set up your own personal page and set a fundraising goal for the month of November.  This is a great way to involve your friends and family and you can also ask them to share your page with others.
  • Holding a “Milestone Celebration” – Looking for a unique idea to celebrate a milestone for a person who has everything?  Why not turn it in to an opportunity to raise funds and awareness of PH?  Host a birthday or anniversary party and ask that friends and family donate to PHA Canada rather than bringing gifts.  We can supply you with information to hand out to attendees as well as donation cards to be used for your event. Get in touch with our office today to find out more or to order your cards.

This year, the Montreal PH Support Group will be hosting a Pulmonary Hypertension 6-Minute Walk for Breath in Montreal. The event will be held on November 4, 2012 at the Downtown Y Centre at 1440 Stanley. Participants are gearing up to raise awareness and funds for PH. The Montreal PH Support Group is encouraging members of the community to get involved and donate to the cause during Awareness Month. If you are unable to walk, you can show your support by simply sponsoring the event (donations of $20 or more are tax deductible).

Proceeds are going to the Center for Pulmonary Vascular Disease at the Jewish General Hospital.


The BC Pulmonary Hypertension Society (BCPHS) is hosting a 6-Minute Walk for Breath on Saturday, November 17, 2012 from 1:00 to 5:00 p.m. at the Terminal City Club at  837 West Hastings Street in Vancouver. Patients, family members, caregivers and friends are invited to participate in the walk and lunch will be provided.

Join the BCPHS for this short walk and help educate the public about the challenges faced by those living with PH while raising funds to support the programs and services offered by PHA Canada.


What is PHA Canada's Operations and Finance Committee?

Our Operations and Finance Committee is a bit like your computer hardware. You need your hardware to keep your computer running. It handles magical processes that we will never see but we know we need these processes in order to keep using the technology.

The Operations and Finance Committee, fondly referred to as our Ops Committee, handles the behind-the-scenes business for our organization. For example, the Ops Committee is responsible for monitoring our budget and ensuring we keep things on track. This helps us ensure consistent delivery of awareness programming, events and information to our members. The Ops Committee manages approvals for small sums of money while funding for larger projects requires the approval of the PHA Canada Board.

The Ops Committee works hand in hand with our senior staff in order to make sure that everything is running smoothly and that PHA Canada continues to grow and develop according to our mission and goals.

The Ops Committee core members meet on an ad hoc basis and minutes from the meetings are kept confidential. Members include:

  • Frank Poon, PHA Canada’s Board President;
  • Charanpal Brar, Treasurer;
  • Darwin Hanofski, Assistant Treasurer ;
  • Maureen Tymkow, Board Member

PHA Canada’s Board Members may each participate in the Ops Committee if they are called to do so. A board member may be called to share information about a particular project or provide insight on an issue.

If you have a question about some aspect of how PHA Canada works please send it to us at:

Low-sodium recipe of the month: Almond-Crusted Pork Loin Recipe

Winter is just around the corner and many of you may be turning toward comfort meals that are rich in protein and low in sodium. This meal is tasty and worth the prep time. Enjoy!

Almond-Crusted Pork Loin Recipe

Almond-Crusted Pork Loin Recipe
Almond-Crusted Pork Loin Recipe
photo by Taste of Home

This pork loin topped with an almond crust turns into a flavor explosion when paired with homemade fresh salsa.Almond Board of CaliforniaAlmond-Crusted Pork Loin Recipe
  • Prep: 35 min. Bake: 1 hour + standing
  • Yield: 4 Servings
  • Vegetable oil spray
  • 6 ounces slivered California almonds (1-1/4 cups chopped)
  • 2 medium garlic cloves, crushed
  • Salt and freshly ground pepper to taste
  • 2 egg whites
  • 1 1/2-pounds boneless pork loin
  • SALSA:
  • 2 medium tomatoes, diced (about 2 cups)
  • 1/2 cup diced red onion
  • 1 jalapeno pepper, seeded and chopped
  • 1 teaspoon ground cumin
  • 2 tablespoons lime juice
  • 1/4 cup chopped fresh cilantro
  • Salt and freshly ground pepper to taste (optional)


  • Preheat oven to 375°F. Line a roasting pan with foil and place a meat rack on the foil. Spray with vegetable oil spray. Coarsely grind almonds in a food processor. Mix almonds, garlic and salt and pepper to taste in a bowl. Set aside.
  • Whip egg whites to form soft peaks. Remove visible fat from the pork. Roll the pork in the egg whites and then in the almond mixture. Roll once more in the egg whites and in the almond mixture again. Place pork on the rack and press any remaining almonds onto the pork.
  • Roast 1 hour, or until a meat thermometer reads 160°F. Remove from oven and let rest for 15 minutes.
  • Mix the salsa ingredients together. Taste for seasoning. Add salt and pepper if needed. Serve with pork. Yield: 4 servings (2 cups salsa).

Per serving: 499 calories, 30 g fat (5.9 g saturated fat), 85 mg cholesterol, 140 mg sodium, 14 g carbohydrate, 6 g fiber, 46 g protein.

Originally published as Almond-Crusted Pork Loin in Taste of Home December/January 2010, p30

Latest PH news

Source: The Chart - CNN Editor's note: In the Human Factor, we profile survivors who have overcome the odds. Confronting a life obstacle – injury, illness or other hardship – they tapped their inner strength and found resilience they didn't know they possessed.  Two years ago, we profiled singer Charity Tillemann-Dick, whose lungs were failing due to pulmonary hypertension..... [more]
Source: Boston Children's Hospital Published: Wednesday, Oct. 31, 2012 - 7:09 am BOSTON, Oct. 31, 2012 -- Research suggests that exosomes alone could protect infants' lungs from dangerous inflammation BOSTON, Oct. 31, 2012 /PRNewswire-USNewswire/ -- Researchers at Boston Children's Hospital have found that microscopic particles containing proteins and nucleic acids called exosome..... [more]

Source: UC San Diego Health System Pulmonary Thromboendarterectomy program honored as “Center of Excellence” The physicians, surgeons and team members who pioneered the lifesaving pulmonary thromboendarterectomy (PTE) procedure at University of California, San Diego Health System are being honored for excellence at the annual CHEST conference, hosted by the American College of Ch..... [more]
Source: Science Codex Posted On: October 24, 2012 - 6:00pm TORONTO, Oct. 24, 2012--It turns out the muscle cells on the outside of blood vessels have been wrongly accused for instigating lung disease. New research shows that while these muscle cells are responsible for constricting or dilating the blood vessels, they are not responsible for sensing the amount of oxygen that gets to the lungs..... [more]
Source: MedCity News October 24, 2012 1:39 am by Copley, Caroline |   ZURICH (Reuters) - Actelion's experimental lung drug macitentan prolonged overall survival by more than a third according to detailed study data, which the company hopes will convince investors it has a viable follow-up product to secure its commercial future. Europe's largest standalone biotech compan..... [more]
Source: DSN - Drugstore News Agency scheduled to decide whether to approve oral treprostinil this Saturday October 23, 2012 | By Alaric DeArment NEW YORK — The Food and Drug Administration is expected to decide at the end of this week whether to approve a new oral drug for pulmonary arterial hypertension made by United Therapeutics. The FDA is scheduled to reach its decision this Sat..... [more]

For more PH news visit the newsfeed on our website: or subscribe to the PH News RSS feed
The Pulse
Vol. 2 No. 10 Nov 2012
Connect with PHA Canada:


Share your story
PH Resources: your help needed
Community Events Calendar

We are looking for articles to include in our Winter issue of Connections as well as in The Pulse monthly e-newsletter. Do you have a story, a recipe, tips on living with PH or something else you would like to share? Send it to us at

We are compiling a list of resources available to patients across the country, if you’ve taken advantage of any resources available in your province, or city (through government programs, other foundations etc.) please share the information with us so we can help others in your region. Email your resource info to:


(click the event to go to information for each event)

Vancouver Public Library
12:00 PM - 1:00 PM
The Pulmonary Hypert.....

Nov 03
Brebeuf College School
11:00 AM - 1:00 PM
The PH support group.....

Nov 03
Ottawa, ON, University Heart Institute
1:00 PM - 2:00 PM
November is Pulmon.....

Edmonton, AB, Castledowns Family YMCA
2:00 PM - 3:00 PM
November is Pulmonary Hypertension Awareness Month in North America. Pulmonary hypertension (PH) is an incurable lung disease. Treatment may include.....

Nov 04
Downtown Y Centre
12:00 PM - 6:00 PM
Please join us in this year's Pulmonary Hypertension 6-Minute Walk for Breath. Funds raised will benefit the Center for Pulmonary Vascular Disease at.....

Nov 17
Terminal City Club
1:00 PM - 5:00 PM
Join us this November to help raise vital awareness of Pulmonary Hypertension.

Nov 25
Toronto, ON
1:30 PM - 3:00 PM
November is Pulmonary Hypertension Awareness Month in North America. Pulmonary hypertension (PH) is an incurable lung disease. Treatment may include.....

Hosting a PH-related event that you’d like us to help you publicize? Submit your event for our events calendar and we will include it in upcoming issues of The Pulse (and Connections, depending on timing)

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