PHA Canada eNewsletter: Vol4 #10 Sept 2014
November Awareness Month – one month away!
The month of November provides an incredible opportunity for us to share the impact of PH in our lives. We have a lot planned for this November: together, let’s make it the best yet!

What we’re doing:
Social media campaigns -  
PHA Canada will be active on Facebook and Twitter throughout November, raising awareness through personal stories about how PH affects Canadians. Make sure to watch our pages!      
Awareness Tables - PHA Canada and our Ambassadors will be holding awareness tables in cities across Canada! To learn more or join one of our tables, contact

What our Community is doing:
Edmonton NABC gala - The "Breathe the Night Away" Gala on Nov. 8th will raise awareness and provide education about PH. Proceeds from the event support PHA Canada programs and the Stollery Children's Hospital Foundation. Learn more or attend the gala!

Talitha’s Hope 4 a Cure Fundraiser - This is the second annual fundraiser in honour of PH patient Talitha, held in Fort McMurray, Alberta. Email for more information.

Toronto Trivia, Fun, Pub & Grub Night -The PHA Canada Toronto chapter is hosting a trivia night! Attendees will compete with other teams by testing their knowledge on current events, pop culture, history and more. All funds raised will go to public awareness, advocacy, education and patient support!  Learn more.

What YOU can do:
Personal Fundraising Pages - This year, PHA Canada is encouraging every person affected by PH to launch or re-launch their own personal fundraising page. Your own online fundraising platform also raises awareness of PH through your personal story. Learn more.

Proclamations - You can have your town or city declare November as PH Awareness Month! Our goal is to achieve these proclamations all over Canada. Just in the past couple of weeks, our community members have achieved over 20 proclamations, including the cities of Burnaby, Vancouver and Nanaimo. For more information on proclamations, 
visit our website. 
Ambassador Training in Montreal!
On September 26th, PHA Canada launched our brand new Ambassador Program. This program is designed to support some of PHA Canada’s most engaged volunteers in becoming true ambassadors for the cause of PH. Our very first cohort of 10 Ambassadors met in Montreal, QC for a special workshop on their role, which included advocacy and media training. We have ambassadors who are PH patients, parents, caregivers and even a grandparent! Our Ambassadors for the 2014-2016 term are:
  • Teri Kingston, caregiver
  • Tarya Laviolette, patient
  • Stephanie Ricci, parent
  • Danush Rudolph, parent
  • Caroline Liu, patient
  • Kerry Pierce, parent
  • Sandy Vachon, patient
  • Nicole Dempsey, patient
  • Gail Nicholson, nurse
  • Don Moores, grandparent
  • Ruth Dolan, Board Liaison to Ambassadors

We are thrilled about the enormous potential of our Ambassador program. If you would appreciate the support of an Ambassador at your next fundraiser or awareness event, please connect with Susan at 

Last call to send in misdiagnosis photos!
PHA Canada is conducting an Early Diagnosis photo campaign for the month of November. If you think your story emphasizes the need for earlier diagnosis, we need your photo! Please send us a photo of yourself with your name, time till diagnosis, and misdiagnoses. Email your photo or any questions to Bronwyn at

Fall Board Meeting 
On September 26th-27th, PHA Canada’s Board of Directors gathered in Montreal to plan out the 2015 budget and finalize the strategic plan, which will govern PHA Canada’s operations over the coming years.
The Board has worked hard to finalize the strategic plan that will guide PHA Canada’s development over the next 5 years. We are extremely excited as PHA Canada has set ambitious goals to bring more awareness to PH, to decrease time to diagnosis and to provide more support than ever before to the PH community as we work to change the future of PH in Canada. Click to read our brand new strategic plan! 

Connections Magazine
When PHA Canada launched Connections magazine in 2010, our vision was for it to become a resource which would unite our community. We are so pleased that Connections magazine is now made up almost entirely of contributions from our incredible members! The Fall 2014 issue of Connections magazine is the largest ever printed, with personal stories from patients and caregivers across Canada. If you would like to receive Connections magazine in your mailbox, please write to about becoming a member of PHA Canada.

New Targets For PAH Treatments Identified By ResearchersA new study published in the American Journal of Respiratory and Critical Care Medicine reports the discovery of two novel therapeutic targets to treat PAH.

Sarcoidosis-associated PH Highlighted by StudyEstimates from a paper published in Seminars in Respiratory and Critical Care Medicine state that approximately 6-20% of sarcoidosis patients will develop PH.

Bayer’s Adempas For CTEPH, PAH Confirmed Safe & Effective in Long-Term Studies
Findings collected during more than two years confirming the safety and efficacy of Bayer’s Adempas® (riociguat) in treating either inoperable or persistent/recurrent CTEPH and PAH were recently presented at the European Respiratory Society (ERS) Congress.

Low sodium spices
PH patients are encouraged to follow a low-sodium diet for better health. David’s Condiments is a new line of low-sodium and sodium-free spices, rubs and other goodies. David’s products are available in speciality shops like Whole Foods: try them out today!

Thanksgiving Stuffed Squash
We at PHA Canada are excited to celebrate Thanksgiving with some tasty low-sodium dishes like this stuffed squash! We are thankful for our wonderful members. May you have a happy and healthy Thanksgiving!

-4 ounces Dried Mushrooms
-2 c Low-Sodium Vegetable stock
-6 Acorn Squash (halved lengthwise)
-5 tablespoons Butter (divided)
-1/2 cup Maple Syrup
-Olive Oil
-1 large Red Onions (diced)
-2 Carrots (peeled and diced)
-1 Celery Root (peeled and diced)
-3 sprigs Thyme (leaves pulled)
-1 cup Whole Wheat Bread Croutons
Ed. note: Check the label on croutons for sodium content - bread is one place where sodium loves to hide! Or, use a low-sodium bread and make your own croutons by cutting into squares and baking at a low temperature for 5-10 minutes).
-2 Tart Apples (peeled and diced)
-1/2 cup Walnuts (toasted and chopped
-1/4 cup Dried Cranberries

Preheat oven to 350F. Place mushrooms and vegetable stock in a sauce pot and bring to a simmer. Steep mushrooms until liquid has reduced by half. Remove from heat, strain out mushrooms and chop roughly. Reserve the stock.
Cut a small part of the acorn squash off so it sits flat on a parchment lined baking sheet, with the bowl facing up. Heat 3 tablespoons butter and maple syrup together in a small pot just until butter melts. Stir together and brush over the cut squash.
Heat a large sauté pan over medium with a few tablespoons of butter. Sauté onions for 2 minutes, add carrots and celery root and cook until softened, about 3 minutes. Season with thyme leaves.
Pour vegetable mixture in a large bowl and toss with the remaining ingredients. Add mushrooms and stock, stirring to ensure liquid is absorbed by the bread. 
Divide the mixture among the acorn squash, mounding but not over-flowing. Cover with foil. Bake for 45 minutes, remove foil, and continue to cook for 15 minutes or until squash is fork tender. Serve warm.

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The Pulse 

Has your life been impacted by PHA Canada? 
PHA Canada is currently creating our 2014 Annual Report. We hope to feature a few community members whose lives have been positively impacted through our community and organization. Knowing how PHA Canada affects our members will also allow us to improve our future programming! Please reach out to us to share your experience at

Community Events: click to read more!

Oct 26: Carolyn’s Quiz Night Fundraiser for PH
Brooklin Pub, 7 - 9:30 PM
Please join us for Carolyn’s inaugural Quiz Night on Sunday, October 26, 2014 19:00–21:30!

Nov 05: Dine for the Cause
Biagio's Italian Kitchen, 6 - 10:00 PM
We will be serving a ‘Hints of Purple’ feature menu with $10.00 of every ticket sold will be donated to the Pulmonary Hypertension Association of Canada.

Nov 08: Breathe the night away - gala for pulmonary hypertension
The German Canadian Cultural Centre, 5:30 - 10:00 PM
Join us for an evening of elegance and fun in support of the Pulmonary Hypertension Community as we celebrate Awareness Month! 

Nov 08: Trivia, Fun, Pub & Grub Night!
Pic-A-Deli Restaurant, 5-9PM
The Toronto Chapter proudly presents the Trivia, Fun, Pub & Grub Night! Saturday, November 8, 2014 5:00PM – 9:00PM.

Hosting a PH event that you’d like us to publicize? Submit your event for our events calendar and we'll include it in The Pulse!

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