West Lorne 6-Minute Walk for Breath -
Peyton Pierce is an older sister to PH patient Everleigh. Peyton held a 6 Minute Walk to raise PH awareness at her high school and raised closed to $2000! We are in awe of the dedication that our young members have towards this cause. Thank you Peyton!
Dine for a Cause in Ottawa
- This unique “Hints of Purple” dinner organized by the Ottawa Chapter was held at Biagio’s kitchen. It featured a “hints of purple” menu and was attended by 72 guests, raising $720 for PHA Canada.
“Let me Breathe” Vegas night fundraiser
- The 5th
edition of this incredible annual fundraiser sold 162 tickets and also collected donations through an event Personal Page. They raised a staggering $8,308.72!
1st Annual PH Benefit Luncheon -
This new event in Edmonton included a 3 course meal, a silent auction, a film premiere AND a 6 Minute Walk, and was heavily covered by local news stations. The event raised over $20,000 with proceeds being split between PHA Canada and the PH Clinic at the Stollery Children’s Hospital.
Bradford 6 Minute Walk for Breath –
This Walk for Breath was held in Bradford on November 28th
. PHA Canada members were joined by the Ontario Lung Association as well as local media outlets!
Fundraising and Awareness at Ottawa City Hall
– On November 19th
, our Ottawa members went out to city hall. They met Councillor Diane Holmes and accepted a proclamation from Ottawa Mayor Jim Watson: November is now officially PH Awareness Month in Ottawa.
And all of those events weren’t the end of it! During the month of November, member Emily Dolan received a Good Neighbours award. She was acknowledged locally, provincially and federally for raising awareness for the PH community. We also wished one of our youngest PHighters, Everleigh, a happy 3rd
birthday. To never miss an important event, make sure to Like our Facebook page
News and Events
Opsumit (Macitentan) approved by Health Canada to treat PAH
On November 12th
, Health Canada approved the oral endothelin receptor antagonist OPSUMIT (macitentan) for the long term treatment of pulmonary arterial hypertension (PAH). This brings the total of approved PH treatment medications in Canada to 9, 3 of which have been approved this year alone! To read more about Opsumit (macitentan) and other research news items, visit our Newsfeed
Call for Low Sodium Recipes!
A few patients based in Calgary, BC, are creating a cookbook! This cookbook will be full of nutritional recipes that are low in sodium, and still tasty. The deadline for recipe submissions will be June 1st
2014, and the book will go on sale for November Awareness month. All proceeds will benefit PHA Canada. This project is also looking for sponsors to help keep the cost of the cookbook low. If you have any sponsorship connections or would like to submit your recipes, please send them across at firstname.lastname@example.org
What does this mean? With the transition process complete, PHA Canada is now operating under new Articles and the new bylaws, which were approved by the membership at the AGM in September. You can read more about what changes have been adopted with these new documents in the 2013 Annual Report, which will be mailed to all members the first week of December. If you are not a member and would like to receive a copy, please contact Shirley at email@example.com.