PHA Canada eNewsletter: Vol 4 #12 Dec 2013

As the holiday season draws near, we’d like to share the final issue of the Pulse for 2013. 

 Awareness Month Update  
In November, we were overwhelmed with community member fundraisers and awareness events. It’s been hard to keep up with the 6 Minute Walks, benefit dinners and lunches and online awareness activity! We wanted to recognize some of these amazing initiatives.

SFU 6 Minute Walk for Breath Things are beginning to move in Vancouver, all thanks to Tarya Laviolette. Tarya organized the first ever 6 Minute Walk held at the health sciences building at Simon Fraser University. Hundreds of PH info sheets handed out to students: perhaps this will spark an interest in pulmonary hypertension for a budding young researcher?

West Lorne 6-Minute Walk for Breath - Peyton Pierce is an older sister to PH patient Everleigh. Peyton held a 6 Minute Walk to raise PH awareness at her high school and raised closed to $2000! We are in awe of the dedication that our young members have towards this cause. Thank you Peyton!
Dine for a Cause in Ottawa - This unique “Hints of Purple” dinner organized by the Ottawa Chapter was held at Biagio’s kitchen. It featured a “hints of purple” menu and was attended by 72 guests, raising $720 for PHA Canada.
“Let me Breathe” Vegas night fundraiser - The 5th edition of this incredible annual fundraiser sold 162 tickets and also collected donations through an event Personal Page. They raised a staggering $8,308.72!
1st Annual PH Benefit Luncheon - This new event in Edmonton included a 3 course meal, a silent auction, a film premiere AND a 6 Minute Walk, and was heavily covered by local news stations. The event raised over $20,000 with proceeds being split between PHA Canada and the PH Clinic at the Stollery Children’s Hospital.
Bradford 6 Minute Walk for Breath – This Walk for Breath was held in Bradford on November 28th. PHA Canada members were joined by the Ontario Lung Association as well as local media outlets!
Fundraising and Awareness at Ottawa City Hall – On November 19th, our Ottawa members went out to city hall. They met Councillor Diane Holmes and accepted a proclamation from Ottawa Mayor Jim Watson: November is now officially PH Awareness Month in Ottawa.

And all of those events weren’t the end of it! During the month of November, member Emily Dolan received a Good Neighbours award. She was acknowledged locally, provincially and federally for raising awareness for the PH community. We also wished one of our youngest PHighters, Everleigh, a happy 3rd birthday. To never miss an important event, make sure to Like our Facebook page!

News and Events
Opsumit (Macitentan) approved by Health Canada to treat PAH
On November 12th, Health Canada approved the oral endothelin receptor antagonist OPSUMIT (macitentan) for the long term treatment of pulmonary arterial hypertension (PAH). This brings the total of approved PH treatment medications in Canada to 9, 3 of which have been approved this year alone! To read more about Opsumit (macitentan) and other research news items, visit our Newsfeed.
Call for Low Sodium Recipes!
A few patients based in Calgary, BC, are creating a cookbook! This cookbook will be full of nutritional recipes that are low in sodium, and still tasty. The deadline for recipe submissions will be June 1st 2014, and the book will go on sale for November Awareness month. All proceeds will benefit PHA Canada. This project is also looking for sponsors to help keep the cost of the cookbook low. If you have any sponsorship connections or would like to submit your recipes, please send them across at

Inside PHA Canada
Articles of Continuance received - We are pleased to announce that the final step in our transition to being governed by the NFP act is now complete. PHA Canada received our Certificate of Continuance under the NFP act, effective on November 13, 2013. We have also received approval of our charitable objectives from Canadian Revenue Agency.

What does this mean? With the transition process complete, PHA Canada is now operating under new Articles and the new bylaws, which were approved by the membership at the AGM in September. You can read more about what changes have been adopted with these new documents in the 2013 Annual Report, which will be mailed to all members the first week of December. If you are not a member and would like to receive a copy, please contact Shirley at

Resource tip of the month – Get Social
Did you know that PHA Canada is very active on social networks? Many of you know our facebook and twitter pages. Our Facebook page alone has nearly DOUBLED in Likes over the 2013 year, and features daily exciting updates about events across Canada. Our page is a fantastic way to connect with other community members, receive updates and news from PHA Canada, and find a little bit of hope and inspiration.  Like our Facebook page and Follow us on Twitter today!

Low Sodium Recipe of the month – Red Lentil Chili
This is a delicious high nutrient and low calorie meal. Digesting meals that contain added fat/cooking oils slows the flow of blood cells and can lead to the buildup of plaque along the lining of blood vessels/arteries – this plaque can cause a narrowing of the blood vessels and arteries and slows down oxygenated blood circulating in the body. Avoiding fat by cooking with water or no added salt veggie broth is another way to help your body. Submitted adapted by Kate McGoey-Smith.


-Dates - 9 (remove pits)
- Diced Tomatoes -28 oz can
- Tomato paste – 5.5oz can
- Onion – 1 large chopped
- Red peppers – 2 finely chopped
- Scallions – for topping
Red lentils – 2  19oz. Cans rinsed
- Yams – ½ per person 
- Garlic – 8 cloves finely minced
- Parsley – 1 ½ tBp
- Oregano – 1 ½ tBp
- Chili powder – 1 ½ tBp (salt free)
- Smoked paprika – 2 tSp
- Chipotle powder – ½ tSp
- Crushed red pepper flakes – ¼ tSp (to taste)
- Apple Cider Vinegar – 4 tBp
- Water – 1 c. 

Steps:  Blend dates with water until smooth. Place all ingredients in slow cooker on “Low” for 8 hours. Serve over ½ baked yam with a sprinkling of scallions on top!

PH News
To many, PH patients don't 'look' sick, but they are
You wouldn't guess that some pulmonary hypertension (PH) patients suffer from a life-threatening disease just by looking at them.
Actelion receives Health Canada approval of Opsumit (macitentan)
Actelion receives Health Canada approval of Opsumit (macitentan) for the long-term treatment of pulmonary arterial hypertension .
Award Winning Singer and PH Patient, Chloe Temtchine, Sings, "Be Brave" While Using Oxygen Tank at event hosted by Craig Melvin
The 1st Annual Pulmonary Hypertension Association (PHA) New York City O2 breathe Gala took place on Thursday, November 7th at the Lighthouse at Pier 61 in New York City.
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The Pulse

Share your story 
We love your stories and events! PHA Canada exists for our members: our goal is to share resources and connect our community. Submit your stories for Connections & the Pulse at:

Community Events: click to read more!

Dec 9: Groupe de Support
Hôpital général juif , Salle E-209
Dec 14: London PH Support Group Meeting, London Public Library, Westmount Branch

Jan 30: Iyengar Yoga for living with PH -12-week yoga session in Parkdale, starting on January 30th. Classes will include breathing techniques to promote relaxation, and restorative yoga postures to support organ function and restore energy balance.
Hosting a PH event that you’d like us to publicize? Submit your event for our events calendar and we'll include it in The Pulse!

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