As U.S. officials have learned about the lingering symptoms from COVID-19 cases over the past two years, both federal and state governments have promised continued support and resources to Long COVID patients.
But more than two years after the first Long COVID patients drew attention to their condition, the federal government’s response to this crisis has been frustratingly slow, experts say. Government-funded research has moved slowly, patients face gaps in medical care and disability support programs may be difficult to access, among other challenges.
While the exact number of Americans with Long COVID is unclear, even the lowest estimates indicate a large number are suffering with symptoms, some potentially for years to come. According to the CDC and Census’s Household Pulse Survey, 14% of U.S. adults have experienced Long COVID symptoms at some point during the pandemic.
Is the Biden administration taking Long COVID as seriously as it should be? How has the government provided support to patients, or how has it disappointed them?
If you are a patient, advocate, caregiver, researcher or someone else connected to the Long COVID community, we want to hear your thoughts on these questions. Your responses will shape our reporting as we pursue a comprehensive project on the administration’s response to this issue.
Text excerpted from writing by Betsy Ladyzhets. Image via Shutterstock.