Thanks for reading Prism: the newsletter from the National Autism Resource and Information Center. The National Autism Information and Resource Center

June Prism


By Karen Wolf-Branigin
Director, Autism NOW Center

July 4, 2013 is Independence Day in America. We commemorate our nation’s freedom as a new country with fireworks, parades, and barbeques. Back in 1776, people living in the 13 colonies and their leaders voiced multiple and different visions of what an independent country meant to them. As self-advocates and family-advocates what does independence mean to you?
Autism Now Resources
The Autism Now Center has a number of resources related to independence. What better way to commemorate the Fourth of July than by celebrating our right to vote? The Autism NOW webinar Voting and Youth! will inspire you to exercise these very important rights. 
If you are unfamiliar with the independent living movement, we invite you to read about it on our “In the Community” webpage.
The Autism NOW Center’s June 2012 webinar, “Apps that Can Make a Difference and Why”  includes several recommendations on how to use technology to live a more independent life.
Autism Pride: What are we learning from others?
Here is a story about a young man named Michael, who through perseverance and support, is enjoying an independent life. Learn about the steps he took to accomplish his dreams.
Perhaps one of the most famous people to give advice about living with Autism is Dr. Temple Grandin. Her recollections on her own education contain a timeline describing her experiences including her completion of a Ph.D.
And for a more personal story, read what Kyle Moriarty has to say about how he gains independence through cooking.
What does the research tell us?
Researchers Hong, Yarosh, Kim, Abowd, and Arriaga investigated the degree to which a social networking system could reduce barriers to independence and over-reliance on caregivers by young adults on the spectrum. Their article, Investigating the Use of Circles in Social Networks to
Support Independence of Individuals with Autism answers that question for the people who participated in the study. 
What can we learn from you?
Please join the Autism Now Center by engaging in our social media channels (Twitter, FacebookYouTube) and submitting blogs for publication. We’d be delighted to include your stories, photographs and videos about your own independence.
Enjoy the Fourth of July in 2013 by celebrating your own independence or taking some steps to realize your dreams.

Identity Theft

By Amy Goodman
Co-Director, Autism NOW Center

Do you know or have you ever heard of someone who has had their identity taken away from them? I have and it is not a pretty sight. Examples of identity theft can include mysterious charges on your credit card statement; not being able to renew a driver’s license because you have tickets and violations that you did not even know existed; or receiving a letter from the Social Security Administration stating that your payments are going to stop because you have gained employment when in fact you have not been working.  This article is intended to inform you of what identity theft is, precautions you may take to prevent it and what to do if it happens to you. These recommendations can help you maintain your independence.

What is Identity Theft or Identity Fraud?
Identity theft or identity fraud refers to when someone wrongfully obtains and uses another person’s personal information such as their driver’s license, date of birth, social security number or credit card for economic gain in a deceitful or dishonest manner. Being a victim of identity theft may affect your credit score, social security benefits, chances of being approved for loans and credit cards, and the goods and services you receive.

What are common tactics that a perpetrator may use to steal a person’s identity?
  1. By watching their victim from a nearby location as they punch in their credit card number, telephone calling card number, or pin number. It is also common for perpetrators to listen in during your conversation with someone else. This form of spying is referred to as “shoulder surfing.”
  2. By using a tactic called “dumpster diving,” in which the thief goes through your dumpster or garbage can to obtain copies of your checks, credit card receipts, or bank statements.
  3. By contacting you through email or phone claiming that you have won a prize and they need your social security number to verify who you are.
What are some tips that may be helpful in preventing identity theft?
  1. Be wary of telephone solicitations. Never give out your credit card number, social security number, or any information to someone you don’t know. If they ask for any of the above information, hang up or ask them to send you the information in writing.
  2. Shred important documents that you plan on throwing away such as bank statements or anything with your social security number on it.
  3. If you are traveling, place a temporary hold on incoming mail or have someone that you trust pick it up for you.
  4. Check your financial information regularly. Check your bank and/or credit card statements to see if there are any unauthorized debits or charges that you did not make or authorize to be made. Contact your bank if you notice any mysterious charges.
  5. Check your social security history and work history, and make sure this information is correct. If someone uses your social security number and any earnings are made under your name, you may be at risk for losing your disability payments.
What steps should I take if I suspect that I am a victim of identity theft?
Depending on what type of identity theft problem you may be encountering, contact the following agencies immediately:
  1. Federal Trade Commission to report the situation
  2. Social Security Administration (SSA) to check on your disability payments
  3. Post Office Inspection Department if you suspect that the theft has tampered with your mail or mailing address
  4. Internal Revenue Service (IRS)
  5. Police or Sheriff’s Department to file an impersonation report
  6. Department of Motor Vehicles (DMV) to make sure your driver’s license is not compromised
  7. The credit bureau to check your credit score
  8. Your financial institution or bank
  9. An attorney, if needed
One may not even find out a thief has stolen their identity until it is too late; therefore, it is important to take precautionary steps. Be wary and ask questions. Don’t take everything at face value, be cautious, and know what your information is being used for. and understand how to report a scam as soon as you realize it before it is too late.

References and Resources

Did You Know?

In addition to hundreds of high quality vetted resources online, Autism NOW produces frequent webinar sessions addressing popular topics from understanding laws and policy to handling relationships to navigating the job market. Also, Center co-director Amy Goodman, an individual with autism, has filmed more than a dozen short You Tube videos as part of the Autism NOW Answer series, answering individual’s questions about issues such as understanding special needs trusts and the IEP process, among others. The schedule of upcoming webinars, archives of more than 100 previous webinars and each Autism NOW Answer series videos are available on demand at

Registration Now Open for The Arc's National Convention

We’re expecting 700 or more individuals with I/DD, family members, professionals in the field and staff from The Arc’s chapter network along with special guest, acclaimed author Buzz Bissinger. Sessions will focus on technology, advocacy and public policy, supporting families, employment and more. Plus there are two pre-conferences dedicated to self-advocacy and leadership. Check out the full schedule and register now at Take advantage of early bird discounted rates when you register before July 5.

Amy's Book Corner

Adults on the Autism Spectrum Leave the Nest: Achieving Supported Independence
By Nancy Perry

This book is a guide for parents on how to prepare children with ASD for adulthood. It describes in detail the kinds of services people with ASD need in order to live independently, away from the parental home. Google offers a free preview of this book.

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The Autism NOW Center is a national initiative of The Arc.
The Administration on Intellectual and Developmental Disabilities