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Parkinson Association of Alabama, Inc.       
 
Newsletter | August 2020
 
The PAA's 2020 Webinar Series Continues
 
Next Up ...

How Sound Financial Planning Can Guide Families Through the Complexity of a Long-Term Care Event
Thursday, September 24, 2020, 2:00 p.m. CT


Long-term care events can be complex to navigate and take a significant emotional and financial toll on families and their loved ones needing care.  Sound financial planning can help reduce stress and anxiety by equipping everyone involved with the knowledge and confidence to handle the challenges they encounter with such an event.  This webinar will present the elements of a sound financial plan, including longevity planning, and several common pitfalls to avoid.
 
Michael Ford is a financial advisor with Raymond James & Associates in Tuscaloosa, AL and has over 15 years of experience in the financial services industry. 
 
Any opinions are those of the author and not necessarily those of Raymond James.  Investing involves risk, and you may incur a profit or loss regardless of strategy selected.
 
Raymond James & Associates, Inc., member of New York Stock Exchange/SIPC
200 Marina Drive Tuscaloosa, AL 35406
T: 205.464.2000

You may register for this fee webinar at https://www.pdlink.org/2020-paa-webinar-registration-financial-planning-long-term-care/.

Recaps of our previous webinars are available at https://www.pdlink.org/.
 

Helpful Health Care Resources



PAA Care Navigator

Our Care Navigator, Cindy McMinn is responsible for providing a comprehensive approach to managing PD.  Working directly with the healthcare community, our Care Navigator coordinates programs and provides information for new diagnoses and those with PD and their caregivers.  Cindy may be reached at 833.473.5465, Option 1 or via email at pdnavigator@pdlink.org

Our statewide Parkinson's Disease Resource Center called PDLink serves to educate and support those with PD and their families.  Please visit our website at www.pdlink.org to obtain information on our resource center offerings.  



 


A virtual support group for wives and companions of a PD loved one will begin meeting via Zoom the second Tuesday of each month at 6 p.m. The first Zoom group will be on September 8, 2020. It is an open group for us to talk about things happening and to provide information, ideas, and support to each other.

To Join Zoom Meeting https://us02web.zoom.us/j/2058354074?pwd=TG9hTzM3aDJGbDBHd3FXNlMzMWl0Zz09
Meeting ID: 205 835 4074 Passcode: 2058354074
 
Should you have questions, feel free to email Vevelyn Peterson Wilson at  vevelyn.wilson@yahoo.com.





Testing.com
 
Testing.com is helping to bridge the educational gap on topics that can have a profound effect on many people’s lives. Their goal is to help individuals realize that they have both the power and responsibility to take control of their health and well being. Testing.com has created guides to lessen worries and make it easier to understand when to get tested for coronavirus. You can learn more about it here: 





Take A Stand For Caregivers
                              Initiative 2020


Free Virtual Education Classes
First and Third Wednesday of Each Month
10:00 a.m. -- 11:30 a.m.
An education series by the Middle Alabama Area Agency on Aging (M4A)

Register in advance at:  https://us02web.zoom.us/webinar/register/WN_VwGdZiVTTYWaa5ZgiBHgGg.

September 2
Medicare Coverage and Social Security
Topics:  Overview of Medicare, SS/SSI Disability vs. SS/SSI Retirement, Medicaid

September 16
Documents and Property Arrangements to Prepare for Death & Disability
Topics:  Financial and Health Care Advance Directives, Guardianships, Conservatorships, Wills, Living Trusts and Special Needs Trusts.


Additional information is available on the AAA's statewide brochure that is available at
https://m4a.org/?s=A4A.








 
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NEW in this Issue:


* Webinar Series

* Helpful Health Care
  Resources
  • PAA Care Navigator
  • PD Helpmates
  • Testing.com
  • M4A
* Research Study

* Tour de Fox

* AmazonSmile

* License Plate Survey


* Hobby Therapy for
  People with PD

GIVE to the PAA!

Please go to this link to give Memorials, Honorariums, or a general donation. We appreciate you!

 
Email us your mailing address and you will receive any information that we send out.
 
The University of Alabama
 
Men & Women With Parkinson's Disease Needed for Virtual Research Study
 
  • Ages 60 and Older
  • Interviews about food-related activities
Must have access to Zoom software
  • Survey about food and beverage consumption
INTERESTED?

Contact Christine Ferguson

ccferguson1@crimson.ua.edu

1-844-348-7057
 

 

Tour de Fox

2020 Team Rowland Ride

October 3, 2020 at Oak Mountain State Park


 
 
A socially distanced bike ride will take place at Oak Mountain State Park on October 3rd to benefit Parkinson's research and the Michael J. Fox Foundation. And Team Rowland would love for you to join them!
 
Team Rowland, which started as a small group of family and friends looking for a way to join the fight against PD, has participated in the Tour de Fox Atlanta in support of the Michael J. Fox Foundation for the past 3 years.  Last year they brought together 40 riders from all over the country to help eradicate PD.
 
This year, the Foundation has designated the Tour as a “Virtual Ride.”  Participants can ride any distance, anywhere.  A number of individuals have decided to go “virtual together” (socially distanced of course), but anyone can participate from anywhere.  And, 100% of the money raised goes directly to life-changing research that WILL find a cure.
 
Here’s how you can help:
  • Ride with Team Rowland
  • Pick your challenge -- Choose from rides of 5, 10, 15, or 30 miles
  • Not quite comfortable being around people yet?  That's ok!  You can ride from anywhere!  
  • Come cheer on Team Rowland
  • Show your support for Team Rowland's efforts to Eradicate Parkinson’s Disease
  • Or, donate and encourage your friends to donate as well
 
REGISTRATION FOR RIDERS IS NOW OPEN! 

Please go to the Team Rowland Page
 
Click on the “Join our Team” link to Register.
 
** Sorry, road courses only – The mountain biking trails will be closed that day for another event.

SUPPORT  THE  PAA

WITH  AMAZONSMILE
 
 
Do You Know?
 
The Parkinson Association of Alabama Inc. is registered with AmazonSmile.  Amazon donates 0.5% of the price eligible smile.amazon.com purchases to the PAA.  AmazonSmile is a simple and automatic way for you to support the Parkinson Association of Alabama every time you shop, at no cost to you.

 

PLEASE TAKE OUR SURVEY

PAA LICENSE PLATE

 

Personalized car tag for Parkinson's
 
The PAA submitted the application for a Parkinson's Disease license plate through the Alabama Department of Revenue's Motor Vehicle Division (MVD).  Once the application is approved, the PAA will have one year to obtain a pre-commitment of 250 tag purchases to move forward.

Are you aware that as much as $45 of your $50 tag fee will directly support the PAA?  We hope you will consider purchasing the PAA Specialty License Plate when it is available.

Please assist the PAA by completing our survey pertaining to the PAA's Vehicle License Plate project at 
https://www.surveymonkey.com/r/2PGCGXP.


We will keep you updated on this project through our monthly newsletters!

 

Hobby Therapy for People with Parkinson’s Disease

John Baumann, BBA, JD
 
Hobby Therapy for People with Parkinson’s Disease
 
I have had to live with Parkinson’s disease since at least 2002. I was 41 years old when diagnosed, a young man. I am 59 years old now, not as young, but not that old. Do the math, that’s more than 18 years. I don’t remember life without PD.
 
Parkinson’s is such a strange disease. There are times that I have no symptoms. I am so to speak “normal.” Side note: when this occurs, I get funny looks when I park my 2-seater convertible in a handicapped parking spot (I never know if my symptoms may return before I return to my car).
 
On the other extreme, recently, I have experienced the full range of symptoms. This includes not just physical issues (motor) like inability to move my arms and legs, but also emotional and mental issues like depression and anxiety-related issues. The frequency of this “return of symptoms” has increased over the years. The list of how PD has disrupted my life goes on and on and needs to be relegated to an article in and of itself to do it justice.
 
One of the many things that I have learned in dealing with, adjusting to, tolerating, living with this disease is that staying engaged is crucial to maintaining the best quality of life possible. How does one stay engaged? If you are still working, one way is to do whatever you need to do to continue to do your job including taking whatever intermittent leave you need to (can be requested in hour increments when fatigue associated with PD occurs). If you are no longer working, you may want to consider a hobby. Yes, I said it, a hobby.
 
What am I talking about? I have found that it is beneficial to just “keep moving.” This does not just include motor or physical movement (like exercise including boxing and yoga), but doing something mentally challenging (like crossword puzzles). It also includes doing something that you are, or have become, interested in. For me, of all things, it is growing sprouts. Yes, sprouts. Why sprouts? I think that I just like to say the word “sprouts.”
 
Why sprouts? It is easy to do. You can not be bad at it or wrong. And, most importantly, you get to eat the fruit of your labors. And they taste good. And they are good for you. What more could I ask for?
 
Whatever your hobby, whether it has to do with PD patient advocacy or just is for fun, keep moving. Stay engaged. Find your passion. Reclaim your positive perspective. Continue to live life to the fullest.


 
 
Bibby S. Bailey
Executive Director
Parkinson Association of Alabama
www.parkinsonalabama.org
833.473.5465

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Parkinson Association of Alabama, Inc. · P.O. Box 590146 · Birmingham, Alabama 35259 · USA

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