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Parkinson Association of Alabama, Inc.       
 
Newsletter | September 2020
 
The PAA's 2020 Webinar Series Continues
 
Next Up ...

 
Moving Forward:  Discovering Treatment Options
for
Advanced Parkinson’s Disease


Thursday, October 8, 2020
1:00 p.m. CT
Dr. Michael Soileau, Movement Disorder Neurologist


This informative webinar will address Duopa, which is prescribed for fluctuating motor symptoms in advanced Parkinson’s disease.  The webinar will provide an overview of Parkinson’s disease progression over time and will address why oral medications sometimes fail.  Duopa, which delivers carbidopa and levodopa continuously through a tube directly into the intestine, will be discussed, along with clinical trial results.  The daily routine of someone using Duopa will be addressed, along with resources and support services.  Finally, participants will have the opportunity to hear from an individual who has Parkinson’s disease who is using Duopa.  
 
Sleep and Parkinson's Disease


Thursday, October 22, 2020
2:00 p.m. CT
Dr. Amy Amara, MD, PhD


Sleep disturbances are common among persons with Parkinson's Disease. In this webinar, we will discuss the various sleep disorders that affect persons with PD. We will also review the different causes of sleep dysfunction in PD  and explore some potential treatments for improving sleep symptoms. Finally, we will go over some recent research related to sleep in PD. 



Recaps of our previous webinars are available at https://www.pdlink.org/.
 

Helpful Health Care Resources


PAA Care Navigator

Our Care Navigator is responsible for providing a comprehensive approach to managing PD.  Working directly with the healthcare community, our Care Navigator coordinates programs and provides information for new diagnoses and those with PD and their caregivers.  Our Care Navigator may be reached at 833.473.5465 or via email at pdnavigator@pdlink.org

Our statewide Parkinson's Disease Resource Center called PDLink serves to educate and support those with PD and their families.  Please visit our website at www.pdlink.org to obtain information on our resource center offerings.  


 Clinical Trials

The Michael J. Fox Foundation provides an online clinical study matching tool for Parkinson's Disease.  Additional information is available at the following url https://www.michaeljfox.org/trial-finder.

 
 PD HelpMates

A virtual support group for wives and companions of a PD loved one will begin meeting via Zoom the second Tuesday of each month at 6 p.m. This is an open group to talk about things happening and to provide information, ideas, and support to each other.

To Join Zoom Meeting https://us02web.zoom.us/j/2058354074?pwd=TG9hTzM3aDJGbDBHd3FXNlMzMWl0Zz09
Meeting ID: 205 835 4074 Passcode: 2058354074
 
Should you have questions, feel free to email Vevelyn Peterson Wilson at  vevelyn.wilson@yahoo.com.


Testing.com
 
Testing.com is helping to bridge the educational gap on topics that can have a profound effect on many people’s lives. Their goal is to help individuals realize that they have both the power and responsibility to take control of their health and well being. Testing.com has created guides to lessen worries and make it easier to understand when to get tested for coronavirus. You can learn more about it here: 


Take A Stand For Caregivers
                              Initiative 2020


Free Virtual Education Classes
First and Third Wednesday of Each Month
10:00 a.m. -- 11:30 a.m.
An education series by the Middle Alabama Area Agency on Aging (M4A)

October 7, 2020
Integrating Long-Term Care into Estate Planning
Topics:  Medicaid and transfer penalties, provisions of Medicaid law, long-term care insurance, converting countable resources into non-countable resources, gifts and the five-year-lookback, life estate deeds, Medicaid permissible transfers, and Special Needs Trusts.


October 21
Long-Term Care Advocacy/Resolutions for Residents


Additional information is available on the AAA's statewide brochure that is available at
https://m4a.org/?s=A4A.


 
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Resources Resources

NEW in this Issue:

* Webinar Series

* Helpful Health Care
  Resources
  • PAA Care Navigator
  • PD Helpmates
  • Testing.com
  • M4A
* Research Study

* Tour de Fox

* AmazonSmile

* License Plate Survey


* Giving Tuesday
GIVE to the PAA!

Please go to this link to give Memorials, Honorariums, or a general donation. We appreciate you!
Email us your mailing address and you will receive any information that we send out.
 
The University of Alabama
 
Men & Women With Parkinson's Disease Needed for Virtual Research Study
 
  • Ages 60 and Older
  • Interviews about food-related activities
Must have access to Zoom software
  • Survey about food and beverage consumption
INTERESTED?

Contact Christine Ferguson

ccferguson1@crimson.ua.edu

1-844-348-7057
 

 

Tour de Fox

2020 Team Rowland Ride

October 3, 2020 at Oak Mountain State Park


 
 
A socially distanced bike ride will take place at Oak Mountain State Park on October 3rd to benefit Parkinson's research and the Michael J. Fox Foundation. And Team Rowland would love for you to join them!
 
Team Rowland, which started as a small group of family and friends looking for a way to join the fight against PD, has participated in the Tour de Fox Atlanta in support of the Michael J. Fox Foundation for the past 3 years.  Last year they brought together 40 riders from all over the country to help eradicate PD.
 
This year, the Foundation has designated the Tour as a “Virtual Ride.”  Participants can ride any distance, anywhere.  A number of individuals have decided to go “virtual together” (socially distanced of course), but anyone can participate from anywhere.  And, 100% of the money raised goes directly to life-changing research that WILL find a cure.
 
Here’s how you can help:
  • Ride with Team Rowland
  • Pick your challenge -- Choose from rides of 5, 10, 15, or 30 miles
  • Not quite comfortable being around people yet?  That's ok!  You can ride from anywhere!  
  • Come cheer on Team Rowland
  • Show your support for Team Rowland's efforts to Eradicate Parkinson’s Disease
  • Or, donate and encourage your friends to donate as well
 
REGISTRATION FOR RIDERS IS NOW OPEN! 

Please go to the Team Rowland Page
 
Click on the “Join our Team” link to Register.
 
** Sorry, road courses only – The mountain biking trails will be closed that day for another event.

SHAKING  AND  BAKING  WITH  PARKINSON'S

Jami "Shugah" Davis

Jami "Shugah" Davis recently launched a new YouTube Channel called "Shaking and Baking with Parkinson's."  Jami is baking something new each week and posting his videos on YouTube.  

Please subscribe and join Jami on his journey of baking with Parkinson's at https://www.youtube.com/channel/UCtqyICFYI9qDDposobw1ajQ/.

Feel free to place recipe suggestions in the "Shaking and Baking with Parkinson's"  YouTube comments section for Jami. 

        

PLEASE TAKE OUR SURVEY

PAA LICENSE PLATE

 

Personalized car tag for Parkinson's
 
The PAA submitted the application for a Parkinson's Disease license plate through the Alabama Department of Revenue's Motor Vehicle Division (MVD).  Once the application is approved, the PAA will have one year to obtain a pre-commitment of 250 tag purchases to move forward.

Are you aware that as much as $45 of your $50 tag fee will directly support the PAA?  We hope you will consider purchasing the PAA Specialty License Plate when it is available.

Please assist the PAA by completing our survey pertaining to the PAA's Vehicle License Plate project at 
https://www.surveymonkey.com/r/2PGCGXP.


We will keep you updated on this project through our monthly newsletters!

 

SUPPORT  THE  PAA

WITH  AMAZONSMILE
 
 
Do You Know?
 
The Parkinson Association of Alabama Inc. is registered with AmazonSmile.  Amazon donates 0.5% of the price eligible smile.amazon.com purchases to the PAA.  AmazonSmile is a simple and automatic way for you to support the Parkinson Association of Alabama every time you shop, at no cost to you.

 




With you, #GivingTuesday is no ordinary Tuesday.

With you, it’s a movement.




 
Bibby S. Bailey
Executive Director
Parkinson Association of Alabama
www.parkinsonalabama.org
833.473.5465

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Parkinson Association of Alabama, Inc. · P.O. Box 590146 · Birmingham, Alabama 35259 · USA

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