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         Parkinson Association of Alabama, Inc.       
 
Newsletter | December 2020
 
 
Message from the PAA Board President, Brian Corbett

 
 

For numerous reasons both personal and professional, I hope you will join me in saying good riddance to 2020 and hello to a fresh and promising 2021!

Shortly after the new year begins and perhaps sooner, more than one vaccine will be available for COVID-19. In a mere 10 months our best and brightest heroes in the medical community have found a promising way to defeat the Coronavirus. 

Think about it. Ten months. Wouldn’t it be nice to do the same for Parkinson’s disease?  Together, with support and funding from our local community, I believe it is possible, but we need a sense of urgency.

Roughly 12,000 people in Alabama are living with PD. And each year, more than 60,000 in the United States are diagnosed. Founded in 1978, the Parkinson Association of Alabama is dedicated to serving those suffering from this dreadful disease, their family members and caregivers. We are also providing critical financial support for new research to slow or halt the progression of the disease and eventually find a cure. 

We are fortunate in Alabama and the U.S. to have 1of 8 Advanced Centers for Parkinson Research at the University of Alabama Birmingham. Each year, UAB treats more than 5,000 Parkinson's patients.  The PAA has worked diligently during the last few years to provide approximately $2.5 million in support of Parkinson's research at UAB, equating to more than $12 million in leveraged funds. 

Like all families, small businesses, and non-profits we have seen our share of economic hardship due to the pandemic.  Your gift to the PAA is tax-deductible and simple and you may give online at http://www.parkinsonalabama.com/give/ or by check payable to the Parkinson Association of Alabama, P. O. Box 590146, Birmingham, Alabama, 35259. 

I ask that you support my efforts and those of the PAA by making your personal or corporate donation today. Your generosity will have a direct impact on the lives of Parkinson’s patients in Alabama.

Sincerely, 

Brian Corbett

 


PAA is blessed to have an active, passionate, and growing support network of board members, volunteers, donors, sponsors, and thought leaders. It is because of this generous support - by people just like you - that PAA continues to fulfill and grow the promise of its mission to improve the lives of Parkinson’s patients, caregivers, and loved ones throughout Alabama. We hope you’ll consider a donation to the Parkinson Association of Alabama as part of your holiday giving plans. Every donation matters and plays a role in delivering the PD research and care programs that benefit those affected by Parkinson's throughout the State.

Donations may be made at our website at The Parkinson Association of Alabama 2019 Holiday Giving Campaign — Anedot.  If you would like to send the gift of a PAA donation to a friend or loved one, please provide the details in the comments field at the website . Please include at least the name and address of the gift recipient so that we may send them a card notifying them of your gift.

Please contact Bibby Bailey (executive.director@parkinsonalabama.org) if you have any questions or special handling requests for your donation. 

Up Next ...

 
Parkinson’s Journey from Despair to Hope
January 14, 2021
2:00 p.m. CT


Vevelyn P. Wilson, Licensed Independent Clinical Social Worker (LICSW)


The initial diagnosis of Parkinson’s Disease can be overwhelming as well as depressing. In this presentation, we will walk through some practical steps of how to move from the dread of feeling overwhelmed and as if your life is over, to hopefulness while living with Parkinson’s.

Vevelyn P. Wilson, Licensed Independent Clinical Social Worker (LICSW), is a Grief Counselor whose husband Dr. Bobby M. Wilson was diagnosed with Parkinson’s in 2014. Vevelyn has provided counseling to children, teens, and senior adults who have experienced loss in their lives. Vevelyn is currently focusing on being the helpmate her husband needs while living with Parkinson’s and has launched a Virtual HelpMate Support Group for wives and companions of men with Parkinson’s Disease.

 
 
Recaps of our previous webinars are available at https://www.pdlink.org/.

Registration link for January Webinar: https://www.pdlink.org/2021-paa-webinar-registration-parkinsons-journey-despair-to-hope/.


 
                                          
 
Webinar Sponsored by Acadia Pharmaceuticals and Amneal
 
 

Helpful Health Care Resources

PAA Care Navigator

Our Care Navigator is responsible for providing a comprehensive approach to managing PD.  Working directly with the healthcare community, our Care Navigator coordinates programs and provides information for new diagnoses and those with PD and their caregivers.  Our Care Navigator may be reached at 833.473.5465 or via email at pdnavigator@pdlink.org

Our statewide Parkinson's Disease Resource Center called PDLink serves to educate and support those with PD and their families.  Please visit our website at www.pdlink.org to obtain information on our resource center offerings.  


 Clinical Trials

The Michael J. Fox Foundation provides an online clinical study matching tool for Parkinson's Disease.  Additional information is available at the following url https://www.michaeljfox.org/trial-finder.

 
 PD HelpMates

A virtual support group for wives and companions of a PD loved one will begin meeting via Zoom the second Tuesday of each month at 6 p.m. This is an open group to talk about things happening and to provide information, ideas, and support to each other.

To Join Zoom Meeting https://us02web.zoom.us/j/2058354074?pwd=TG9hTzM3aDJGbDBHd3FXNlMzMWl0Zz09
Meeting ID: 205 835 4074 Passcode: 2058354074
 
Should you have questions, feel free to email Vevelyn Peterson Wilson at  vevelyn.wilson@yahoo.com.


Take A Stand For Caregivers
                              Initiative 2020


Free Virtual Education Classes
First and Third Wednesday of Each Month
10:00 a.m. -- 11:30 a.m.
An education series by the Middle Alabama Area Agency on Aging (M4A)

Additional information is available on the AAA's statewide brochure that is available at
https://m4a.org/?s=A4A.


The University of Alabama
 
Men & Women With Parkinson's Disease
Needed for Virtual Research Study
  • Ages 60 and Older
  • Interviews about food-related activities
Must have access to Zoom software
  • Survey about food and beverage consumption
INTERESTED?

Contact: Christine Ferguson
ccferguson1@crimson.ua.edu
1-844-348-7057
 
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NEW in this Issue:

- Message from            Brian Corbett
- Webinar Series
- Helpful Healthcare    Resources 

     - PAA Care                  Navigator
     - Clinical Trials
     - PD HelpMates
     - M4A

- Shaking and              Baking
- WCB
- Total Healthworks
- PD Outreach
- AmazonSmile
 

 

GIVE to the PAA!

Please go to this link to give Memorials, Honorariums, or a general donation. We appreciate you!

 

Email us your mailing address and you will receive any information that we send out.

 
 


Happy Holidays

from the

Parkinson

Association

of

Alabama

Staff

and

Board of Directors.




 

SHAKING  AND  BAKING  WITH  PARKINSON'S

Jami "Shugah" Davis

Jami "Shugah" Davis recently launched a new YouTube Channel called "Shaking and Baking with Parkinson's."  Jami is baking something new each week and posting his videos on YouTube.  

Please subscribe and join Jami on his journey of baking with Parkinson's at https://www.youtube.com/channel/UCtqyICFYI9qDDposobw1ajQ/.

Feel free to place recipe suggestions in the "Shaking and Baking with Parkinson's"  YouTube comments section for Jami. 

          

WCB's Online Patient Forum
 

Michael. S. Fitts

Assistant Dean for User Access and Diversity, UAB Libraries

Parkinson Association of Alabama Board Member

 

Western Institutional Review Board (WIRB) Copernicus Group (WCG) provides those who perform clinical trials with services to accelerate human health advancement.  Michael S.Fitts, PAA Board member, recently took part in WCB's online patient forum.  The event may be previewed in its entirety at the following direct link.  

 

Diversifying Parkinson's Trials - WCG Patient Forum (wcgclinical.com)

PAA’s New Program Offering
Parkinson’s Disease (PD) Outreach

 
The PAA’s Parkinson’s Disease Outreach program is designed to provide telephone support and companionship to individuals with PD.  Our trained volunteers develop relationships with people with PD via phone calls to those who are lonely, isolated, and in need of friendly and supportive conversation.

Clients may enter the program by contacting the PAA Care Navigator at 833.473.5465 or through email at
pdnavigator@pdlink.org and requesting this service. 
 

Image result for Red Telephone Clip Art

SUPPORT  THE  PAA

WITH  AMAZONSMILE
 
 
Do You Know?
 
The Parkinson Association of Alabama Inc. is registered with AmazonSmile.  Amazon donates 0.5% of the price eligible smile.amazon.com purchases to the PAA.  AmazonSmile is a simple and automatic way for you to support the Parkinson Association of Alabama every time you shop, at no cost to you.

 
Bibby S. Bailey
Executive Director
Parkinson Association of Alabama
www.parkinsonalabama.org
833.473.5465

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Parkinson Association of Alabama, Inc. · P.O. Box 590146 · Birmingham, Alabama 35259 · USA

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