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         Parkinson Association of Alabama, Inc.       
 
Newsletter | November 2020
 
Birdies for Charity

The Giving Continues 


The PAA is this year's winner of Birdies for Charity!  

Birdies for Charity had a record-breaking year raising $1.2 million for charities and thanks to record giving from the @RegionsTrad, the fight against Parkinson Disease continues!

      1st Place: Parkinson Association of Alabama 
      Represented by: Brian Corbett

About Birdies for Charity
Birdies for Charity is a program that runs in conjunction with the Regions Tradition and serves as one of the tournament’s charity initiatives. The fundraising program is designed to give 501c3 charities and schools the opportunity to raise funds for their organization by generating contributions through flat donations and per birdie pledges.

Birdies for Charity 2021 is scheduled for May 5-9 at the Greystone Golf and Country Club in Hoover, Alabama. 
    
Giving Tuesday

A day dedicated to giving back to your favorite causes.

With you, #GivingTuesday is no ordinary Tuesday.

With you, it's a movement!

 
Donations to the PAA may be made at the following link: 
https://secure.anedot.com/paa/giving-tuesday-2020
Up Next ...

 
Gut Microbiome and Parkinson's Disease

 
December 8, 2020
1:00 p.m. CT
Dr. Haydeh Payami, PhD, Strain Endowed Chair & Professor Neurology & Genetics
 
 
PD often involves gastrointestinal problems, such as constipation, which may precede motor symptoms by several years. One of the current thoughts is that PD may start in the gut and then spread to the brain. Gut health is, therefore, a focal point in research on the origin of PD as well as its progression and treatment. Critical to gut health is the gut microbiome, that is, the bacteria and other microorganisms that live in the human gut in a symbiotic relationship with their human host. A balanced gut microbiome is essential to keeping us healthy - they help with digestion, keep the lining of the gut intact and pathogens out, help with proper development and functioning of the immune system and even the nervous system. Imbalances in the gut microbiome can interfere with the checks and balances and cause problems for its human host. In this webinar, Dr. Payami will review the current knowledge on the connection between the gut microbiome and PD.
 
 
 
Recaps of our previous webinars are available at https://www.pdlink.org/.

Registration link for December Webinar: 
https://www.pdlink.org/2020-paa-webinar-registration-gut-microbiome-parkinsons-disease/

                                          
Webinar Sponsored by Acadia Pharmaceuticals and Amneal
 

Helpful Health Care Resources

PAA Care Navigator

Our Care Navigator is responsible for providing a comprehensive approach to managing PD.  Working directly with the healthcare community, our Care Navigator coordinates programs and provides information for new diagnoses and those with PD and their caregivers.  Our Care Navigator may be reached at 833.473.5465 or via email at pdnavigator@pdlink.org

Our statewide Parkinson's Disease Resource Center called PDLink serves to educate and support those with PD and their families.  Please visit our website at www.pdlink.org to obtain information on our resource center offerings.  


 Clinical Trials

The Michael J. Fox Foundation provides an online clinical study matching tool for Parkinson's Disease.  Additional information is available at the following url https://www.michaeljfox.org/trial-finder.

 
 PD HelpMates

A virtual support group for wives and companions of a PD loved one will begin meeting via Zoom the second Tuesday of each month at 6 p.m. This is an open group to talk about things happening and to provide information, ideas, and support to each other.

To Join Zoom Meeting https://us02web.zoom.us/j/2058354074?pwd=TG9hTzM3aDJGbDBHd3FXNlMzMWl0Zz09
Meeting ID: 205 835 4074 Passcode: 2058354074
 
Should you have questions, feel free to email Vevelyn Peterson Wilson at  vevelyn.wilson@yahoo.com.


Take A Stand For Caregivers
                              Initiative 2020


Free Virtual Education Classes
First and Third Wednesday of Each Month
10:00 a.m. -- 11:30 a.m.
An education series by the Middle Alabama Area Agency on Aging (M4A)

December 2
Long Term Care Advocacy/Resolutions for Residents

December 16
How to Better Serve the Intellectual and Developmental Disabilities (IDD) Population

Additional information is available on the AAA's statewide brochure that is available at
https://m4a.org/?s=A4A.


Learn and Move with Us!     
                                                   

Hear from a DBS patient on their PD journey & take a Dance for PD class

December 9, 2020 – 2pm-3pm ET/11am-12pm PT

Presenter:  Sierra Farris, PA and David Leventhal (Dance for PD)
Click HERE to register

Image result for dance classroom
 
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NEW in this Issue:

* Webinar Series
* Helpful Health Care
  Resources
  • PAA Care Navigator
  • Clinical Trials
  • PD HelpMates
  • M4A
  • Giving Tuesday
* Shaking & Baking
* Tanner Symposium
* AmazonSmile


 
GIVE to the PAA!

Please go to this link to give Memorials, Honorariums, or a general donation. We appreciate you!
Email us your mailing address and you will receive any information that we send out.
 
The University of Alabama
 
Men & Women With Parkinson's Disease Needed for Virtual Research Study
  • Ages 60 and Older
  • Interviews about food-related activities
Must have access to Zoom software
  • Survey about food and beverage consumption
INTERESTED?

Contact: Christine Ferguson

ccferguson1@crimson.ua.edu

1-844-348-7057
 

 

SHAKING  AND  BAKING  WITH  PARKINSON'S

Jami "Shugah" Davis

Jami "Shugah" Davis recently launched a new YouTube Channel called "Shaking and Baking with Parkinson's."  Jami is baking something new each week and posting his videos on YouTube.  

Please subscribe and join Jami on his journey of baking with Parkinson's at https://www.youtube.com/channel/UCtqyICFYI9qDDposobw1ajQ/.

Feel free to place recipe suggestions in the "Shaking and Baking with Parkinson's"  YouTube comments section for Jami. 

          

Everybody Counts Every Day 

 

Michael. S. Fitts

Assistant Dean for User Access and Diversity, UAB Libraries

Parkinson Association of Alabama Board Member

 

Michael S. Fitts works to promote awareness of Parkinson's Disease in diverse populations, spread accurate information about its signs and symptoms, and encourage PD research.  You may preview Michael's inspiring video at 

https://www.youtube.com/watch?v=ncOcsNgOVSw.

You never know who you are helping by giving your story!

Delay the Disease

Total HealthWorks is an online exercise and wellness platform developed by Jackie Russell and David Zid, the founders of the #1 nationally recognized “Delay the Disease”, exercise program for people with Parkinson’s.  


When COVID-19 abruptly impacted many of the in-person exercise classes around the country, Jackie and David immediately developed this online platform that could be accessed by anyone, anywhere, all from the comfort of their own home.  Since they launched, they have witnessed amazing success and helped many people stay active and moving while at home.  Their classes have also provided participants with a much needed social component as many people are struggling to deal with the effects of isolation and lack of community involvement during this time. 

To be a resource for these communities, they offer a free, online group exercise class every Wednesday at 12:00 PM ET that is suited for all skill levels.  The attached flyer provides additional information.

 

Join the founders of Delay the Disease: the #1 group exercise program for Parkinson's, for a FREE online group exercise class every Wednesday at 12:00 p.m. ET (11:00 a.m. CT) that you can perform from the comfort of your home via Zoom!  

Reserve your spot today at:
https://totalhealthworks.com/free-online-class/



 

PAA’s New Program Offering
Parkinson’s Disease (PD) Outreach

 
The PAA’s Parkinson’s Disease Outreach program is designed to provide telephone support and companionship to individuals with PD.  Our trained volunteers develop relationships with people with PD via phone calls to those who are lonely, isolated, and in need of friendly and supportive conversation.
Clients may enter the program by contacting the PAA Care Navigator at 833.473.5465 or through email at
pdnavigator@pdlink.org and requesting this service. 
 

Image result for Red Telephone Clip Art

SUPPORT  THE  PAA

WITH  AMAZONSMILE
 
 
Do You Know?
 
The Parkinson Association of Alabama Inc. is registered with AmazonSmile.  Amazon donates 0.5% of the price eligible smile.amazon.com purchases to the PAA.  AmazonSmile is a simple and automatic way for you to support the Parkinson Association of Alabama every time you shop, at no cost to you.

 
Bibby S. Bailey
Executive Director
Parkinson Association of Alabama
www.parkinsonalabama.org
833.473.5465

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Parkinson Association of Alabama, Inc. · P.O. Box 590146 · Birmingham, Alabama 35259 · USA

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