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The August Brain Health Resource Center In Action


We have officially made it past the halfway point of 2022! August has been a busy month for the IA2 Brain Health team. Check out some of the latest highlights.
             -- Resource - GoodHealthTV Native American PSA on Dementia narrated by Jesse Jones
             -- Banner Alzheimer's Institute releases "Walk with Me" CD with Native music for people living with dementia
             -- By IA2 - 10 Warning Signs Flyer for American Indian in Alaska Native communities (6 designs to choose from)
             -- By IA2 - Tribal Law and Policy for Dementia and Alzheimer's by IA²
             -- Ideas for Tribal Public Health Approaches to Dementia - a menu of activities for health & public health
             -- Research - Public Health Policy Recommendations for Unpaid Dementia Caregiving
             -- Indian Country Dementia ECHO presentation videos
  • Follow our Facebook page for campaigns and resources you can share or borrow for your own social media and newsletters-- and please share within your circle to help us spread the word.
In other IA2 news:

IA can print and ship up to $250 worth of flyers or other resources directly to your tribe or Urban Indian Health Organization. Email us for info on what is available for printing or for more info.



Click here to read our Resource Center updates, learn about our upcoming events, and what we've been doing to help American Indian and Alaska Native communities address brain health, Alzheimer's, and dementia.

Click to Request Printed Resources including 10 Signs of Dementia

Promising Practice: An Innovative Dementia Training for CHRs

Click here to listen to an excerpt from the interview with Dr. Reinschmidt on the CHW / CHR training program.


Dr. Kerstin Reinschmidt and a team from the Oklahoma University Health Sciences Center (OUHSC) created, Implementing the C3 Scope of Work in CHW Training Programs: An Innovative Dementia Training for CHWs with funding from HRSA. Tribal community health staff (and others) were tapped for feedback on the design and development of the training and have been participants in the live trainings.

Dr. Reinschmidt and the team meet and work with a community advisory board quarterly. This advisory board consists of 25 organizations. The aim is to address the unmet health needs of the people of Oklahoma with dementia and their caregivers.

In addition, the team used C3 CHW Core Roles, which provides evidence-based materials and presentations while respecting diverse communities.

This training reaches beyond just public health workers, and provides training to nurses, physicians, nursing homes, and more. Dementia care, dementia prevention, and dementia management are all topics covered in the training. The goal is to help the people on the ground be able to help their communities and those around them. Implementing the training is just a small portion of the overall project's goal. Creating a community-based workforce to work directly with the people helps to address unmet needs of those with dementia and their caregivers.

The training has multiple elements. The first is the train-the-trainer portion. This part of the training works directly with CHW/CHRs and is focused on a basic curriculum (introduction to the training, basics of dementia, knowledge and understanding of the Core Roles and Cores Skills, and a Resource Guide), along with time to explain how to implement the training and the technical aspects of the training. This train-the-trainer portion was implemented by five key trainers. Once the CHW/CHRs complete this part of the training, they are considered trainers within their community.

Click below to read the full article and learn more about the training. 

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Brain Health Advisory Group Feature: Chandra Wilson


Chandra Wilson
Project Manager -  Bold NW Tribal Elder Project - Northwest Portland Area Indian Health Board (NPAIHB)


I started my work in AI/AN public health services over two decades ago without  knowing or having any understanding of the healthcare delivery systems.

My interests and work are committed to developing programs and policies that will support tribal communities and address the persistent health disparities that tribal communities experience. I was born into a reservation community that views life through a Native lens which is a particular way of living; my vision has remained the same, to live out the ways I was raised by my grandparents, and that is to live in the footsteps of our ancestors, and to be guided by purpose and a good life. To me, this looks like to nurture, teach, protect, promote, provide, and advocate for the well-being of tribal communities, families, youth, and elders. This includes promoting traditional wellness,  for long, healthy lives for our people. I want to help our tribal communities, our tribal programs, and families learn about dementia by understanding more about Alzheimer’s and how to recognize the early signs of memory loss.
 
I am interested in serving on the national brain health advisory group for several reasons. I care about people. I care about elders, I care about the health of our brain. I care about traditional-wellness practices.

I  didn’t think twice about taking care of my brain until I experienced a traumatic brain injury. During my time serving on the advisory group, I hope to, build connections and expertise in dementia and brain health – bringing my knowledge, energy, and experience to the table and building relationships with other folks who care about people, elders, and brain health.

Chandra Wilson serves as the program manager for BOLD and the NW Tribal Elder’s Project at the Northwest Portland Area Indian Health Board located in Portland, Oregon. In her role as the program manager, she manages and is responsible for supporting the goals and objectives for the BOLD grant and oversees and manages the overall work for the BOLD and NTEP projects and is responsible for assisting the member tribes of Idaho, Oregon and Washington with capacity building to address Alzheimer’s disease and related dementias. 
Click to Learn More about other Advisory Group Members

Click Here for More Details and to View the Application

Four Paths to Addressing Dementia in Tribal Communities


The National Indian Health Board and co-host, the Alzheimer's Association, hosted a July 26th webinar Four Paths to Addressing Dementia in Tribal Communities. If you missed the webinar be sure to check it out below!
 
Click Here for the Presentation Slides

10 Signs of Thinking or Memory Changes that Might be Dementia - 6 Design Options to Choose From

 
Designed by and for American Indian and Alaska Native Communities!

Access high resolution 1) Adobe pdf, 2) .jpg, 3) .png and 4) original design files for use in your community.

Looking for a different customized picture for your community? For a limited time contact us to request an image swap.
We have $250 printing stipends for tribes and urban Indian organizations and can ship flyers directly to your community.
Contact us for design help or info on printing stipends at admin@iasquared.org.
 
Special thanks to our Brain Health Advisory Group for time and input in to this document.

Click to Access Downloadable Files

NEW Report -
Tribal Law & Policy: Alzheimer's Disease and Related Dementias


As sovereign nations, tribes are uniquely situated to use law as a public health tool to promote the health and well-being of their communities. Additionally, federal law creates a framework that governs the relationships among tribes, states, and the federal government that can affect tribal public health. (U.S. Centers for Disease Control and Prevention, 2017) 

Check out this new policy report for American Indian and Alaska Native (AI/AN) communities. This report explores existing tribal laws and policies related Alzheimer's Disease and Related Dementia for Native communities.

Law, regulation, and policy are all  essential public health services as tools to promote equity and improve public health.

From the International Association for Indigenous Aging by Splaine Consulting.

 

Click Here to Download the Tribal Law & Report

Plain Language Writing: Tips for Communicating with Your Community


This is a blog post written and re-shared with permission from the UAMS Center for Health Literacy.


 


Creating Equitable Health Materials through Translation


Providing health materials in more than one language is more than translating and converting words from one language to another while keeping the same message. The high-quality production of materials in a new language should reflect the beliefs and practices of the target audience. So how can we achieve this with health-related materials? If you need help with this, we encourage you to peruse this resource from the National Academy of Medicine which includes guidance on how to ensure that health-related materials are not only properly translated but also adapted for their audience. There are 3 key points that stood out to us and that we recommend you use when creating meaningful health-related materials in new languages.
  1. Use plain language: Plain language refers to using words that are easy to read, understand, and use to improve health. We suggest starting with ensuring your original document is written in plain language. This can help eliminate ambiguity and focus materials on “need-to-know” content, thus strengthening both your original and any adaptations. But you cannot assume that if the English material is easy to read and understand, the translated version will be as well. The translated material will likely only become easy to read and understand if you chose words and sentence structures that promote ease of reading and understanding in the new language.
  2. Adapt materials so they are culturally appropriate: Cultural adaptation refers to customizing the material so it is relevant to and meets the needs of the target audience. To make it relevant to the reader, for example, when communicating about the risk of a certain disease, communicate the risk that is associated with the readers of the material. Or, when communicating about preparing for a doctor’s visit for Spanish speakers, you might include some information about working with an interpreter to meet the unique needs of your target audience.
  3. Test materials with your target audience: We cannot think of a more effective way to find out if the translated material is easy to understand and use than to get feedback from a group of people who will use it. You can use that feedback to improve the translated material and you may even learn things that impact translations in the future.
Producing materials in multiple languages goes far beyond just converting words from one language to other. But this isn’t an easy thing to do, and you may need help to achieve high-quality translation. Working with highly qualified translators, who are trained and have experience with using the language, like those from our center, can help you best communicate with your audience.


Click Here to Visit the Center for Health Literacy

'Crash Course Public Health' launches




A new web series is explaining public health for the masses. The first episode of “Crash Course Public Health” launched on August 4 on YouTube. The 10-episode series will explore a range of issues — from health equity, racism and mental health to climate change, gun violence and transportation — in under 15 minutes each. Learn, watch and share.
 
Watch the Videos on Youtube

Community Voices Blog: Embrace Cultural Healing to Create Healthy Communities


Written by April Shaw, Senior Staff Attorney, Network for Public Health Law - Northern Region Office
 

People that work in public health work to promote healthy individuals and communities. Only recently have people began to understand that racial equity is needed to build healthy communities. One definition of equity is “the quality of being fair and impartial.”

Racial equity then can mean removing unfair and biased practices that have made people of color worse-off compared to White people. For example, cultural healing practices valued by Indigenous and other non-mainstream cultures are often seen as inferior to traditional White Western ideas on healing. The result is that diverse cultural healing practices are not available to people seeking them when they get health care services. So, the quality of healthcare services offered is not fair and impartial towards many people of color.

Racial equity calls for more than just fairness and impartiality. It also calls honoring different cultural practices, like cultural healing, and treating those practices as valuable.

Cultural healing has received too little attention in conversations about how to achieve racial justice and health equity. There is not one definition of cultural healing. But the term has been used to mean the need to include historically rooted cultural healing practices of non-Western and underrepresented cultures within traditional mainstream Western institutions (such as in hospitals, clinics, education, and research). To be clear, cultural healing is not about simply adding cultural practices in. Healing practices in the U.S. are culturally biased towards mainstream cultural practices. These cultural biases are often only seen by people who do not share the same beliefs, which tend to be underrepresented communities of color. Part of the harm that this creates is that the under-valuing and exclusion of different cultural views and practices is often invisible to those working in health care settings and others.

What does cultural healing look like in practice?

Click the button below to read the full blog post by April Shaw as she explains what cultural healing looks like in practice.

Click Here to Continue Reading

Banner Alzheimer's Institute Releases New "Walk with Me" CD for People Living with Dementia & Announces Plans for Fall Conference

Music has been shown to be a powerful tool when it comes to helping dementia and Alzheimer’s patients. Studies indicate music may help improve behavioral issues and can provide a way for patients to connect with others when they’re not able to verbally communicate.

Entitled “Walk with Me,” a new CD launched by Banner Alzheimer’s Institute will be distributed in tribal communities where dementia and Alzheimer’s outreach can be challenging.

For more information on how to obtain this CD, please contact BAIFCS@bannerhealth.com. For more information on Alzheimer’s disease and related dementias, including strategies for caregivers, please visit www.BannerAlz.org.

Banner Alzheimer's Institute

Annual Public Conference - Alzheimer's Disease and Dementia in Native Americans


Pre-Conference Intensive | Alzheimer's Disease: Keeping it Simple

Date              
10 a.m. - 3 p.m. Wednesday, Oct. 19
Description     
Let’s keep it simple! This Preconference is designed to arm professionals with basic communication techniques and understanding that you can take back to your community.
Cost                   
$25 per person
Registration   
Online or call (602) 230-2273


16th Annual Conference | Walk with Me

Date                  
8:30 a.m. - 3:45 p.m. Thursday, Oct. 20
Description    
Learn about a new a tool that could help remind, connect, soothe, motivate, distract and move people living with memory loss. Join us as we explore how to use music as a way to increase quality of life for both the person living with memory loss and those who care about them.
Cost                   
$25 per person
Registration     
Online or call (602) 230-2273
Click for More Banner Alzheimer's Conference Info

Dementia Friends for American Indian and Alaska Native Communities

Dementia Friends for American Indian and Alaska Native Communities – Information Session & Champion Training in September!

IA² is offering an opportunity to participate in a virtual pilot of Dementia Friends for American Indian and Alaska Native Communities. We have been continually working with American Indian and Alaska Native communities to develop and improve the Dementia Friends content to better meet the needs of our communities.



Dementia Friends for AI/AN Communities Updates:
We strive to create culturally relevant content by embracing American Indian and Alaska Native community values. IA2 continues to convene with a workgroup of Dementia Friends Champions for American Indian and Alaska Native Communities to consider changes to the content to improve readability and health literacy and identify additional resource needs to complement the initial training.

Interested in becoming a Dementia Friend?
Join us and become a Dementia Friend for American Indian and Alaska Native communities! By participating in the information session, you will become a Dementia Friend and help make your community more inclusive for people living with dementia!

Information Sessions will take place on Tuesday, September 27, 2022, 03:00 PM (Eastern Time) / 12:00 PM (Pacific Time): Register Here (link) Dementia Friends for American Indian and Alaska Native Communities – Information Session - International Association for Indigenous Aging (iasquared.org)

About the Session: This is a 90-minute interactive session.

This session touches on an overview of dementia, what it is like to live with dementia, and cover 6 key messages about dementia and memory problems for American Indian and Alaska Native people. After completing this session you will be asked to turn your understanding into action to help someone living with dementia within your community.

Champion Training will take place on Wednesday, Sep 28, 2022 12:00 PM (Eastern Time) / 9:00 AM (Pacific Time) Register Here (link) Dementia Friends for American Indian and Alaska Native Communities – Champion Training - International Association for Indigenous Aging (iasquared.org)

Note: Champion's Trainees must have gone through the Dementia Friends Information Session prior to the Champion's Training.

To learn more about the Dementia Friends Initiative, participate in a review of the materials, pilot the training content, or attend an upcoming session, please visit our Dementia Friends page by clicking here.

Click to Register for September Dementia Friends Info Session
Dementia Friends for American Indian and Alaska Native Communities – Information Session - International Association for Indigenous Aging (iasquared.org)

Click to Register for September Dementia Friends Champion Training
Dementia Friends for American Indian and Alaska Native Communities – Champion Training - International Association for Indigenous Aging (iasquared.org)

Click to Learn More: Dementia Friends

Webinar: Starting Strategies for Writing in Plain Language


Tuesday, September 27, 2022 2:00pm EST

SHIP TA Center is hosting this webinar that may be of interest to you and your colleagues.  Plain language helps everyone, not just readers who have limited literacy or limited English skills. According to the Plain Language Association International (PLAIN), “A communication is in plain language if its wording, structure, and design are so clear that the intended audience can easily find what they need, understand what they find, and use that information.” In this webinar, Helen Osborne will introduce what plain language is and is not, share strategies to get started and offer opportunities for participants to practice applying some of these strategies in their everyday work. Prerequisite: Prior to attending this event, please attend or watch the recording of the September 6 event Health Literacy: What It Is, Why It Matters, Ways You Can Help. Download the announcement here
 
Register for the Webinar Here

Webinar - Cultural Competence and Community Inclusion

In this webinar, they discuss ways to integrate cultural competence and community inclusion into the services that are provided by your organization. Oftentimes, services are delivered to communities with little attention to integrating their cultural practices and community norms. When communities are not responsive to the services being offered, it leads to a disconnect between those providing the service and those expected to receive it.  This webinar will present creative ways to engage community members by integrating their cultural practices into the services that are being offered. Be sure also to check out all of the other webinars

Be sure to watch the webinar by clicking here.
 
Click Here to view the Cultural Competence and Community Inclusion Toolkit

Learn About Ways to Stay Connected


Everyone needs social connections to survive and thrive. As people age, they often find themselves spending more time alone. Loneliness and social isolation have been associated with higher rates of depression, a weakened immune system, heart disease, and an increased risk of dementia. However, there are things older adults can do to stay connected. If you are looking for additional opportunities, consider joining a Dementia Caregiver Drop-In Support Group. Be sure to check out the IA2 Calendar of events by clicking the button below. 
Calendar of Events Including Dementia Caregiver Drop-In Support Group



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This e-news is supported by the Centers for Disease Control and Prevention (CDC) of the U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $348,711 with 90 percent funded by CDC/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by CDC/HHS, or the U.S. Government.
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