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It’s Not “All in My Head”: Living with a Misdiagnosed Disability Five Years on. Volume Two

Read Volume One here. 

Day #5

The clock was way beyond midnight, a new date had ticked over.

I could not sleep.
I knew it was time.
I collated all of my mobility and medical equipment in the hotel room, I reflected and summoned all of my past experiences
And I wrote.

I wrote until beyond 4am in the morning.
And even then, trying to achieve some semblance of sleep with a migraine, costochondritis and a CPAP mask on was not the ideal twilight combination.…

The post It’s Not “All in My Head”: Living with a Misdiagnosed Disability Five Years on. Volume Two appeared first on #MEAction.

Who is advising the Australian government on ME and CFS research and treatment guidelines?

Australia’s National Health and Medical Research Council (NHMRC) appointed a group of medical professionals and people representing people with Myalgic Encephalomyelitis and chronic fatigue syndrome to an ME and CFS advisory committee. The committee, who have begun meeting, will advise the government on current research, gaps in research and whether the 2002 clinical guidelines for doctors should be revised.

The NHMRC did not put…

The post Who is advising the Australian government on ME and CFS research and treatment guidelines? appeared first on #MEAction.


 


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